At the occasion of World Lupus Day 2023, Lupus Europe is delighted to announce the launch of the multi-lingual website of Lupus100!

 

Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus 100.org has also been endorsed by ERN ReCONNET SLE Working Group doctors.

 

Lupus100.org is currently available in 11 European languages. Translations are validated by native speaking patients and rheumatologists specialised in lupus.

QR Code of https://lupus100.org/ website

As a result, it is a unique, free of charge, reliable and accessible source of information on lupus.

 

  • Visit the website to be convinced!
  • Spread the news about lupus100.org

 

If your language is not yet available, contact us on secretariat@lupus-europe.org

 

Click on the language names below to download and share this announcement in YOUR national language:

Albanian, Bosnian, Bulgarian, Croatian, Danish, Dutch, Estonian, Finnish, French, German, Greek, Hebrew, Hungarian, Icelandic, Italian, Lithuanian, Norwegian, Polish, Portuguese, Romanian, Russian, Serbian, Slovak, Slovenian, Spanish, Swedish

 

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
13 hours ago

🦋 It's #LupusAwarenessMonth❗

🦵 #KickLupus: make it visible

Take part in the Living With Lupus in 2024 survey.

🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

𝗞𝗲𝘆 𝗽𝗼𝗶𝗻𝘁𝘀 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘂𝗿𝘃𝗲𝘆:

1️⃣ Confidential and brief: Your identity stays anonymous and takes only 15 minutes.
2️⃣ Personalized and relevant: The survey adapts to your unique situation and covers aspects pertinent to your life with lupus.

👨‍💻 We're gathering data to:

🔹 Understand the current landscape of lupus treatment and management in Europe.
🔹 Identify key areas for support and improvement.
🔹 Ensure that the voices of those living with lupus are heard.
🔹 Recognise the diverse needs and challenges faced by the lupus community.

🦋 This survey will dive into your unique experience on 🩺 diagnosis & symptoms, 💊 treatment & 👨‍👩‍👧‍👦 how lupus affects your daily activities and the strategies you employ to manage it.

🔄 Please 𝘀𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝘀𝘂𝗿𝘃𝗲𝘆 with your community and on your social media.

Languages available:

🇨🇿 Czech s.surveylegend.com/-NtkhoZPH8WNeA5e2ZCC
🇩🇰 Danish s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
🇩🇪 German s.surveylegend.com/-Nr0_sVBruuAHJTsHkuE
🇬🇷 Greek s.surveylegend.com/-Nr5KNkcBGDrsYl1F1xG
🇪🇸 Spanish s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
🇬🇧 English s.surveylegend.com/-NqgyR5b7jLpCyBwEssv
🇪🇪 Estonian s.surveylegend.com/-Nt145Q5s02kLYdspFDs
🇫🇷 French s.surveylegend.com/-NrWK4Io8HFYwgd_JF9W
🇮🇹 Italian s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🇳🇴 Norwegian s.surveylegend.com/-NrQBaJNQ4HcwZblYzh5
🇱🇹 Lithuanian s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
🇳🇱 Dutch s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
🇵🇱 Polish s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🇷🇴 Romanian s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
🇷🇺 Russian s.surveylegend.com/-NtkhreGgEglDg9AeMfH
🇸🇮 Slovenian s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
🇫🇮 Finnish s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
🇺🇦 Ukrainian s.surveylegend.com/-Nt1t0lpqlsn9jRPHe-3
🇧🇬 Bulgarian s.surveylegend.com/-NuOC4mQDrt8udTrqS85
🇵🇹 Portuguese s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
🇭🇺 Hungarian s.surveylegend.com/-Nucu0zQ8je0kzInRWb8

Association Lupus erythémateux Belgique Luupuse Selts / Lupus Estonia Организация на пациентите с ревматологични заболявания Σύνδεσμος Ρευματοπαθών Κύπρου ΣύΡεΚ Lupus Suomi ry Association Francaise du lupus et autres maladies auto-immunes AFL + LUPUS FRANCE Lupus Erythematodes SHG e.V. Ελληνική Εταιρεία Αντιρευματικού Αγώνα ΕΛ Ε ΑΝ Α Lupus Poland Lupus Klub Motýlik Reumatikerförbundet Lupus UK Felupus Associação de Doentes com Lúpus
... See MoreSee Less

2 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍️ Responda à pesquisa e compartilhe com sua comunidade.

🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results

s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi

#LupusAwarenessMonth
... See MoreSee Less

3 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Compila il sondaggio.

🔊Condividi con il tuo network.

s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0

🙏 Help us and Gruppo LES Italiano ODV achieve more answers to ensure that the Italian population is represented in the results
... See MoreSee Less

1 CommentComment on Facebook

I want to introduce to you Dr. Ravi Herbal Home. Don’t die in silent 🔇 there’s still hope I understand you may have tried different medications but to no avail. Dr Ravi is here to help you cure any kind of diseases such as HIV, LUPUS, CANCER, PILE, ASTHMA , HEPATITIS, VIRGINAL INFECTION , ALZHEIMER-VIRUS, STROKE, HEART DISEASES, AORTIC, DISEASE AND KIDNEY DISEASES ETC . With the use of herbs Kindly contact him on WhatsApp +234(0)9025094850, or email: drravi5314@gmail.com or follow his Facebook page through the link. www.facebook.com/profile.php?id=61558012011988&mibextid=LQQJ4d

4 days ago

📅 𝗠𝗮𝗿𝗸 𝘆𝗼𝘂𝗿 𝗰𝗮𝗹𝗲𝗻𝗱𝗮𝗿❗

🤩 Lupus Europe is excited to invite you to a unique event on World Lupus Day:

🧑‍💻 “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist”

🚀 𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗼𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗮𝗻𝗱 𝗹𝗲𝗱 𝗲𝘅𝗰𝗹𝘂𝘀𝗶𝘃𝗲𝗹𝘆 𝗯𝘆 𝗼𝘂𝗿 𝗬𝗼𝘂𝘁𝗵 𝗚𝗿𝗼𝘂𝗽.

📆 10th of May.
🕖 19:00 CET.

🙌 A space dedicated to discussing issues that impact youth, by the youth and for the youth.

This event is a tremendous opportunity to connect, learn, and share experiences related to lupus from a youthful perspective.

👩‍⚕️ Joining us will be the talented young rheumatologist from Italy, Francesca Crisafulli, who will answer your questions and engage in meaningful conversation.

Don't miss the chance to interact directly with a specialist in rheumatology!

🦋 At Lupus Europe, we deeply understand the importance of paying attention to the needs and voices of the young. This webinar reflects our commitment to supporting and including youth in the dialogue on living with lupus.

‼️ Register now by sending an e-mail to secretariat@lupus-europe.org ‼️
... See MoreSee Less

📅 𝗠𝗮𝗿𝗸 𝘆𝗼𝘂𝗿 𝗰𝗮𝗹𝗲𝗻𝗱𝗮𝗿❗

🤩 Lupus Europe is excited to invite you to a unique event on World Lupus Day:

🧑‍💻 “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist”

 🚀 𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗼𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗮𝗻𝗱 𝗹𝗲𝗱 𝗲𝘅𝗰𝗹𝘂𝘀𝗶𝘃𝗲𝗹𝘆 𝗯𝘆 𝗼𝘂𝗿 𝗬𝗼𝘂𝘁𝗵 𝗚𝗿𝗼𝘂𝗽.

📆 10th of May.
🕖 19:00 CET.

🙌  A space dedicated to discussing issues that impact youth, by the youth and for the youth.

This event is a tremendous opportunity to connect, learn, and share experiences related to lupus from a youthful perspective.

👩‍⚕️ Joining us will be the talented young rheumatologist from Italy, Francesca Crisafulli, who will answer your questions and engage in meaningful conversation.

Dont miss the chance to interact directly with a specialist in rheumatology!

🦋 At Lupus Europe, we deeply understand the importance of paying attention to the needs and voices of the young. This webinar reflects our commitment to supporting and including youth in the dialogue on living with lupus.

‼️ Register now by sending an e-mail to secretariat@lupus-europe.org ‼️

1 CommentComment on Facebook

I ordered a remedy🌿☘️ for weight loss and herpes and it works after 18days of taking his medicine He also have the following treatment for ... DIABETES, HPV, CANCER, CHRONIC FATIGUE, LEAKY GUT HEALING, HSV, HIV, THYROID, PSORIASIS, COPD, PCOS, LUPUS, BP, HS and many more.👇👇👇🏿👇🏿👇🏿 www.facebook.com/-Dr-Abumere-herbal-remedies-592671634437907

LUPUS EUROPE Uniting people with Lupus throughout Europe
Send