Lupus100 – Multilingual Website Launch

At the occasion of World Lupus Day 2023, Lupus Europe is delighted to announce the launch of the multi-lingual website of Lupus100!

 

Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus 100.org has also been endorsed by ERN ReCONNET SLE Working Group doctors.

 

Lupus100.org is currently available in 11 European languages. Translations are validated by native speaking patients and rheumatologists specialised in lupus.

QR Code of https://lupus100.org/ website

As a result, it is a unique, free of charge, reliable and accessible source of information on lupus.

 

  • Visit the website to be convinced!
  • Spread the news about lupus100.org

 

If your language is not yet available, contact us on secretariat@lupus-europe.org

 

Click on the language names below to download and share this announcement in YOUR national language:

Albanian, Bosnian, Bulgarian, Croatian, Danish, Dutch, Estonian, Finnish, French, German, Greek, Hebrew, Hungarian, Icelandic, Italian, Lithuanian, Norwegian, Polish, Portuguese, Romanian, Russian, Serbian, Slovak, Slovenian, Spanish, Swedish

 

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About the author

Zoe Karakikla-Mitsakou

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    LUPUS EUROPE
    9 hours ago

    🚨 Today is #WORDDAY2026! Which stands for WOrld Young Rheumatic Disease Day.

    🌍 Through this global event, we can spread the word that children and young people get rheumatic diseases like lupus, too.

    ‼️ It is estimated that around 15-20% of #lupus patients are children, although it is rare that a child develops lupus before 5 years of age.

    As with adult patients, the cause of lupus remains unknown, and there is a great choice of treatments to keep the disease under control.

    🔴 On average, it takes nearly 6 years for people with lupus to be diagnosed. This delay in diagnosis, and therefore in treatment, can have an impact on the prognosis and quality of life of patients; this includes kids.

    😰 The moment your child gets a diagnosis might be overwhelming for you. This feeling of overwhelm can and does go away with time and with access to the right information.

    👉 Remember: it is impossible to learn everything about #lupus overnight! Your child's doctor is the best source of information.

    Apart from pharmacological treatment, other non-pharmacological measures can also help in lupus management.

    📷 Take a look at the images we are sharing today to learn about these non-pharmacological measures and share them with your community to help us raise awareness.

    🐺 Lupus can seem scary at first. Remember that you are not alone and that you are going to do a great job!

    Turn to your lupus association for support.

    🤗 There are many organisations across Europe that can help you and your child cope with the disease.

    More information on #SLE in children at #Lupus100: f.mtr.cool/oklkpqamyu

    For more information on WORD Day, you can visit World Young Rheumatic Diseases Day - WORD Day     ... See MoreSee Less

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    LUPUS EUROPE
    1 day ago

    🔴 Tomorrow is #WORDDAY2026!

    🦋 And we will be sharing tips and information on how #lupus can affect children.

    Help us raise awareness, which is key for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.

    Share our posts and follow the World Young Rheumatic Diseases Day - WORD Day campaign.

    More information on lupus in children at #Lupus100 (19 languages):

    f.mtr.cool/hnfukbkwdf     ... See MoreSee Less

    🔴 Tomorrow is #WO
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    LUPUS EUROPE
    2 days ago

    Watch this Lupus Europe Webinar on the European Lupus Meeting (ELM) 2026, As Viewed by Lupus Europe's PAN Members & Volunteers!

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    LUPUS EUROPE
    2 days ago

    Thank you so much for bearing with us. We’re experiencing some unexpected technical difficulties with Facebook Live in relation to the European Lupus Meeting (ELM) 2026 webinar due to air at 19:00 CET. The webinar is being recorded, and we will make sure it is shared with you as soon as possible. ... See MoreSee Less

    Thank you so much fo
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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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