We have exciting news!!!
Lupus Europe keeps growing! Sara Badreh has now joined our team as the Patient Advisory Network (PAN) coordinator!
We are very excited to be working with Sara; you can read more about her in our newsflash!
What is the PAN?
At LUPUS EUROPE we believe that patients have great potential to be an added value in research and development. That's why we invest in training and have created our PAN: trained patients involved in research projects with organisations like EULAR, the European SLE Society and ERN Reconnet.
The PAN is formed by 25-30 trained and energised patients, experienced in living with #lupus, appointed by LUPUS EUROPE to act as liaison and resource to value-adding scientific projects, clinical trials and other research related to lupus. They also had an active role in #LUPUS2022!
The PAN also connects the patient community to the scientific community by providing prompt, reliable and consistent advice and support from the very initial stages of research all the way to effective access through treatment plan
Do you want to see what it is like to be part of the PAN? In this video, Francesca shares her insight
youtu.be/eJtGDtL9Ngg
Do you want to be part of this amazing team?
If the answer is "YES”, e-mail zoe@lupus-europe.org and find out more about it. No previous knowledge needed!
Don't miss our Newsflash, where our Chair, Jeanette Andersen, introduces Sara Badreh, talks about her background and her role in Lupus Europe.
Welcome to the team Sara!
mailchi.mp/lupus-europe.org/lupus-europe-newsletter-january-2023
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Alain Cornet
