Month: March 2015

EPF working group on access

Tomorrow, 30th March, Katharine will be taking part in the second meeting of the EPF working group on Access to Healthcare. More details here.

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World Lupus Day 2015

Dear Lupus Europe members, The theme for this year’s World Lupus Day is “Tame your wolf – Tame your lupus”. We were delighted to be able to ask Leslie Quagraine, a fellow lupus sufferer, if he could produce the artwork for our campaign. Leslie was born in London but is a long-time resident in Finland. […]

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The Lupus Tamer

Work on the Lupus Tamer book is nearly complete for French and English. We will announce when it is available in e-book format.

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LUPUS EUROPE Patient Panel on Treatment – A great success

Following on from the workshop held during the Helsinki convention, LUPUS EUROPE organised a Patient panel, bringing together 10 people living with lupus, from 7 countries, to share their experience about “treatment”, with a view to help improving the quality of life of people living with lupus. The Panel was conducted through a series of interactive presentations, […]

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Activities February and March

Kirsten attended the Lupus Academy meeting in Rome from 27-28th February – 1st March The trustees will be meeting from 20th – 22nd March – Items on the agenda include organisation for our 2015 Convention to be held in Vienna following directly on from the ICL congress – more information on the convention coming soon!

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Welcome to the Lupus Europe blog

We have created this blog to keep you up to date with the latest news and happenings in Lupus Euorpe. We hope you enjoy reading it.

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Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

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; Laurent ARNAUD @Lupusreference ·

21 Apr 1782082790642839797

✅ #Rosacea versus #LUPUS ⬇️
Practical tips for distinguishing the 2 conditions 👍

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; Lupus Europe @LupusEurope ·

22 Apr 1782428279221195104

🚨𝗗𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝗔𝗽𝗽𝗿𝗼𝗮𝗰𝗵𝗶𝗻𝗴 𝗙𝗮𝘀𝘁❗

Please take part in the Living With Lupus in 2024 survey.

🗣️ Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

🧵Find the link for all 21 languages in this thread ⤵️

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; Laurent ARNAUD @Lupusreference ·

19 Apr 1781347561221009574

✅ Management of #glucocorticoids at the 4th advanced workshop on #Lupus by @SLEuroSociety by J Delgado Alves:
- Main mechanisms of action
- Optimal starting dose (organ- and severity driven)
- Tapering strategy (how fast/additional medications?)
- Stopping? (Yes/no/who?)

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; Donald Thomas, MD @lupuscyclopedia ·

18 Apr 1781049456458117278

🔥 #SLE #lupus patients: Be part of the conversation. Let your voice be heard.

What is it like living with lupus?

Help @LupusEurope learn more about lupus patients so the rest of us know what you are going through

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; Laurent ARNAUD @Lupusreference ·

19 Apr 1781214145993474455

✅ Today is the start of the 4th @SLEuroSociety Advanced #Lupus #Workshop, an event created when I became President of the European Lupus Society. We bring together 30 lucky participants + an amazing faculty for 2 days of intensive & collective discussion of complex #SLE cases 👍

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; Lupus Europe @LupusEurope ·

19 Apr 1781231778566434827

✍🏻Пройдіть опитування.

🔊Поділіться з вашою громадою.

👨🏼‍⚕Якщо ви медичний працівник і лікуєте пацієнтів з лупусом в Європі, ми були б дуже вдячні, якби ви поінформували своїх пацієнтів.

https://buff.ly/3xIyiBy

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; EUPATI @eupatients ·

17 Apr 1780599208841707623

📣 One week left to register for our online EUPATI Essentials Training! 📣
Are you an industry, academia or consortium member wanting to enhance your knowledge on patient engagement?
🎯 Register now ▶️ https://bit.ly/4auAmen
#EUPATI #Essentials #OnlineTraining #RegisterToday

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; Alberta Hoi @alberta_hoi ·

18 Apr 1780759680127791322

My absolute pleasure to work with @Lupusreference CC Mok and Talia for this nice review, prepared for the general medical community to better understand Dx challenge and Mx of SLE. Lots we can do to improve outcomes inc comorbidity burden! https://authors.elsevier.com/a/1ixq7V-4XOrME

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2 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

🙏 Help us and NVLE achieve more answers to ensure that the Dutch population is represented in the results

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3 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Deltag i undersøgelsen.

🔊Del med dit fællesskab.

👨🏼⚕Hvis du er sundhedsprofessionel og behandler patienter med lupus i Europa, ville vi sætte stor pris på, at du informerer dine patienter.

🙏 Help us and Sle-Lupus- info achieve more answers to ensure that the Danish population is represented in the results

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4 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Dalyvaukite apklausoje.

🔊Dalinkitės savo bendruomenėje

👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.

🙏 Help us and Lupus Lt achieve more answers to ensure that the Lithuanian population is represented in the results

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5 days ago

✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

👨🏼‍⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.

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✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

👨🏼‍⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.

https://s.surveylegend.com/-NqgyeOSaTVcd7gBoK15

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