LUPUS EUROPE MEMBERS

LE MEMBERS

LUPUS EUROPE MEMBER ORGANISATIONS

 

If you would like to contact one of our National Member Organisations, just send an e-mail to secretariat@lupus-europe.org 
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Belgium (Flemish)

Liga voor Chronische
Inflammatoire Bindweefselziekten vzw
Ingrid Hennes

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Belgium (French)

Lucie Lété

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Bulgaria

Bulgarian organisation for people with rheumatic diseases

Boryana Boteva

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Croatia

Petra Plivelić

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Cyprus

Lupus Cyprus – Cyprus League of People with Rheumatism
Andri Phoka

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Estonia

Ingrid Poldemaa

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Finland

Elina Tammistola

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France (LUPUS France)

Lupus France
Catherine Guislain

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Greece

The Lupus Group of ELEANA: Katerina Rousta

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Netherlands

Wendy Zacouris

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Norway

Kari Odegardt

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Poland

Part of 3majmy Się Razem Viola Zajk

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Portugal

Rita Mendes

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Slovakia

Petra Balazova

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Spain

Silvia Perez Ortega

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Sweden

Katrin Rudgard

Riksförening för SLE

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Switzerland

Martin Bienlein

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United Kingdom

Caroline Olshewsky

LE ASSOCIATE MEMBER ORGANISATIONS

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Ireland

Caroline Daly

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Israel

Inbar Association for Rheumatic and Autoimmune Diseases

Sharon Abuloff Ram

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Montenegro

Igor Medojevic

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❤️‍🔥 Something big is coming...

... this #WorldLupusDay 🌍.

#makeitcount
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📣 Register now by sending an email to secretariat@lupus-europe.org, and don't miss our Youth Group Webinar!

❞𝗙𝗲𝗿𝘁𝗶𝗹𝗶𝘁𝘆 𝗮𝗻𝗱 𝗳𝗮𝗺𝗶𝗹𝘆 𝗽𝗹𝗮𝗻𝗻𝗶𝗻𝗴 𝗳𝗼𝗿 𝘆𝗼𝘂𝗻𝗴 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝗹𝘂𝗽𝘂𝘀❞

🌟 What should young people know? What questions do young people have?
🌟 Key information to support informed decisions and future planning

🖥️ In this online webinar, Lupus Europe’s Youth Group will host an open, evidence-based discussion with Prof. Laura Andreoli on lupus, lupus treatments, fertility, pregnancy planning, and reproductive health in young people.

The session will address real questions from young lupus patients, providing clear, practical information to support communication and decision-making between patients and healthcare professionals.

🗣️ Moderated by Jeanette Andersen

Save the date!

🗓️ May 10, 2026
⏰ 19:00 CET (i. e. Paris time)
💻 Zoom
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📣 Register now by

💧 You’ve probably heard about “liquid biopsy”, a promising concept in lupus research.

But do you actually know what it means?
And why is everyone talking about it?

🤔 Could it help detect lupus nephritis and keep track of how it evolves using less invasive methods?

In this short video from our #ELM2026 series, Dr Andrea Fava breaks it down in a clear and patient-friendly way.

🎥 Watch the video and find out!

youtu.be/GnRbBK7x5hs?si=DzGfLGNW0tp_UMn-

🚨 Don't miss out and visit the #ELM2026 playlist with all videos in the "Video on Demand" section of our website! www.lupus-europe.org/videos-on-demand/

🙏 Thank you, Dr Andrea Fava, for your generosity in taking the time to share your knowledge in such a clear and accessible way, helping bring complex medical information closer to people living with lupus.
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💧 You’ve probab

📅 𝗠𝗮𝗿𝗸 𝘆𝗼𝘂𝗿 𝗰𝗮𝗹𝗲𝗻𝗱𝗮𝗿❗

🤩 Lupus Europe is excited to invite you to a unique event on World Lupus Day:

🧑‍💻 “Fertility, family planning for young lupus patients”

🚀 𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗼𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗮𝗻𝗱 𝗹𝗲𝗱 𝗯𝘆 the Lupus Europe 𝗬𝗼𝘂𝘁𝗵 𝗚𝗿𝗼𝘂𝗽.

📆 10th of May.
🕖 19:00 h CET.

🙌 A space dedicated to discussing issues that impact young people, by young and for young people.

This event is a tremendous opportunity to connect, learn, and share experiences related to lupus from the perspective of young people.

👩‍⚕️ Joining us will be Prof Laura Andreoli, who will answer your questions and engage in meaningful conversation with Lynette, Makya, Marina and Rita from the Lupus Europe Youth Group.

Moderated by our Chair, Jeanette Andersen.

‼️Register now by sending an e-mail to secretariat@lupus-europe.org‼️
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📅 𝗠𝗮𝗿�