Lupus Europe Webinars

Watch this exciting webinar to listen to first hand feedback of European Lupus Meeting (ELM) 2022 sessions given by lupologists, specialists and researchers who participated in the Congress and to hear from Lupus Europe Patient Advisory Network Members who also took part in the European Lupus Meeting (ELM) 2022
European Lupus Meeting 2022 Feedback

European Lupus Meeting 2022

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Volunteer Testimonials

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Lupus Europe Convention in the Clouds 2021

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Lupus Europe Convention in the Clouds 2020

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EXERCISE PROGRAM for Lupus Patients

Lupus Europe • EXERCISE PROGRAM for Lupus Patients • INTRO
LUPUS EUROPE • EXERCISE PROGRAM for LUPUS PATIENTS In collaboration with trained physical therapists Lupus Europe has developed an exercise program in five levels which has been endorsed by leading European Lupologists. Studies show, that the only thing, that is clinically proven to help lupus fatigue is “moderate” exercise. We as lupus patients ourselves do however realise, how difficult it can be to start exercising, when you feel fatigue! This is why we developed this program from our own experiences. Exercise doesn´t necessarily mean, that you have to run a marathon or go to the gym. With this program we want to show, that you can do it no matter where you are and how you are feeling. You should be able to find a level that suits you each day. The goal is of course to increase in level whenever you can, but you will probably experience, that you have to go down a level at some point. Don´t despair, this is quite normal, and the most important thing is, that you do one exercise a day – not which level it is. Who knows - you might even feel so energized by doing one program, that you can take on the next level straight away…? All exercises can be done without training tools and in the individual videos we will guide you through the various options for increased or reduced difficulties. Each program can be done in 15-20 minutes, if you do two or three rounds.
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #1
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #2
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #3
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #4
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #5
Jan 28, 2020
KICK LUPUS 2019 • Winner • Andrealara's Video

Kick Lupus

Lupus makes you understand which are the moments you can be happy and makes you enjoy these moments more than anyone else could ever do, because nobody can understand what it means to renounce something because your body can’t make it, and this is why we “fully live all our
experiences”.

Lupus Europe ANSWERS

MY LIFE with Lupus Europe

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Lupus Europe STRATEGIES

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7 days ago
LUPUS EUROPE

We have exciting news!!!

Lupus Europe keeps growing! Sara Badreh has now joined our team as the Patient Advisory Network (PAN) coordinator!
We are very excited to be working with Sara; you can read more about her in our newsflash!

What is the PAN?

At LUPUS EUROPE we believe that patients have great potential to be an added value in research and development. That's why we invest in training and have created our PAN: trained patients involved in research projects with organisations like EULAR, the European SLE Society and ERN Reconnet.

The PAN is formed by 25-30 trained and energised patients, experienced in living with #lupus, appointed by LUPUS EUROPE to act as liaison and resource to value-adding scientific projects, clinical trials and other research related to lupus. They also had an active role in #LUPUS2022!

The PAN also connects the patient community to the scientific community by providing prompt, reliable and consistent advice and support from the very initial stages of research all the way to effective access through treatment plan

Do you want to see what it is like to be part of the PAN? In this video, Francesca shares her insight

youtu.be/eJtGDtL9Ngg

Do you want to be part of this amazing team?

If the answer is "YES”, e-mail zoe@lupus-europe.org and find out more about it. No previous knowledge needed!

Don't miss our Newsflash, where our Chair, Jeanette Andersen, introduces Sara Badreh, talks about her background and her role in Lupus Europe.
Welcome to the team Sara!

mailchi.mp/lupus-europe.org/lupus-europe-newsletter-january-2023
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1 week ago
LUPUS EUROPE

Remember!

Our #kicklupus competition is running! Get your chance to attend our #lupusconvention and see firsthand all that we are doing for the European #lupus community!

All you have to do is tell us how volunteering for a lupus organisation has helped you changed your life. Send your testimonial (drawing, short/long text, song... any format is valid!) to zoe@lupus-europe.org.

As our Chair, Jeanette Andersen says, you can do it in your own language!
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1 week ago
LUPUS EUROPE

Comorbidity occurs when a person has more than one disease or condition at the same time. 2 of the most frequent comorbidities in #SLE are cardiovascular diseases and infection.
Prevention is key.

As per Dr. Angela Tincani says, "don't be worried because you have a higher risk than the general population. Take action to prevent it because there are several effective strategies:
- Stop smoking
- Have a healthy diet
- Do exercise
- Follow what your Dr. says.

Learn more about prevention and lupus here:

youtu.be/l10LsKDDkuY
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2 weeks ago
LUPUS EUROPE

Remember that next Wednesday, 18th January, at 17:00 CET (i.e. Paris time), we will be able to learn the latest data on #fatigue in #SLE thanks to Prof. Arnaud and Lou Kawka.

Don't miss this amazing ERN RECONNET webinar and register now!

us02web.zoom.us/webinar/register/WN_s-I4UVxsTW-eJd3bKPLvSg
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