Lupus Europe Webinars

Watch this Lupus Europe webinar titled “EULAR 2024 Debrief, as Viewed by Lupus Europe’s PAN Members” to get the latest news and feedback from EULAR Congress 2024 from a doctor and patient perspective, in lay language.

EULAR 2024 Debrief, as Viewed by Lupus Europe's PAN Members

European Lupus Meeting 2024

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2nd Patient Panel on Youth

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European Lupus Meeting 2022

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Volunteer Testimonials

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Lupus Europe Convention in the Clouds 2021

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Lupus Europe Convention in the Clouds 2020

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EXERCISE PROGRAM for Lupus Patients

Lupus Europe • EXERCISE PROGRAM for Lupus Patients • INTRO
LUPUS EUROPE • EXERCISE PROGRAM for LUPUS PATIENTS In collaboration with trained physical therapists Lupus Europe has developed an exercise program in five levels which has been endorsed by leading European Lupologists. Studies show, that the only thing, that is clinically proven to help lupus fatigue is “moderate” exercise. We as lupus patients ourselves do however realise, how difficult it can be to start exercising, when you feel fatigue! This is why we developed this program from our own experiences. Exercise doesn´t necessarily mean, that you have to run a marathon or go to the gym. With this program we want to show, that you can do it no matter where you are and how you are feeling. You should be able to find a level that suits you each day. The goal is of course to increase in level whenever you can, but you will probably experience, that you have to go down a level at some point. Don´t despair, this is quite normal, and the most important thing is, that you do one exercise a day – not which level it is. Who knows - you might even feel so energized by doing one program, that you can take on the next level straight away…? All exercises can be done without training tools and in the individual videos we will guide you through the various options for increased or reduced difficulties. Each program can be done in 15-20 minutes, if you do two or three rounds.
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #1
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #2
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #3
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #4
Jan 28, 2020
Lupus Europe • EXERCISE PROGRAM for Lupus Patients • LEVEL #5
Jan 28, 2020
KICK LUPUS 2019 • Winner • Andrealara's Video

Kick Lupus

Lupus makes you understand which are the moments you can be happy and makes you enjoy these moments more than anyone else could ever do, because nobody can understand what it means to renounce something because your body can’t make it, and this is why we “fully live all our
experiences”.

Lupus Europe ANSWERS

MY LIFE with Lupus Europe

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Lupus Europe STRATEGIES

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3 days ago

🌍 Socio-economic factors can significantly impact the health outcomes of people with SLE, particularly those from economically or socially disadvantaged backgrounds. A multitude of issues such as limited access to transportation, low health literacy, insufficient healthcare resources can influence various aspects of access to healthcare, and affect the management and outcomes of diseases like #lupus

👨‍⚕️ In this insightful YouTube video, Dr. Daniel Guimarães de Oliveira discusses the crucial need for holistic care approaches that take into account a person's wider context, including these non-clinical factors.

🎥 Watch the video now to learn more about these insights and the need for tailored healthcare strategies that address a person’s broader context.

www.youtube.com/watch?v=RT2Qtllx2-s
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🌍 Socio-economic factors can significantly impact the health outcomes of people with SLE, particularly those from economically or socially disadvantaged backgrounds. A multitude of issues such as limited access to transportation, low health literacy, insufficient healthcare resources can influence various aspects of access to healthcare, and affect the management and outcomes of diseases like #lupus

👨‍⚕️ In this insightful YouTube video, Dr. Daniel Guimarães de Oliveira discusses the crucial need for holistic care approaches that take into account a persons wider context, including these non-clinical factors. 

🎥 Watch the video now to learn more about these insights and the need for tailored healthcare strategies that address a person’s broader context.

https://www.youtube.com/watch?v=RT2Qtllx2-s

13 CommentsComment on Facebook

Daniel Guimarães de Oliveira - Imunologia Clínica

That's true! Many people with problems are compelled to stop their cures because they do not have the money

I was never a person who believe in herbs as a means of treatment, now I know better, herbs has more efficiency than any pharmaceutical medicine. I suffered from FND with no results from pharmaceutical medicines, but after using herbal medicine from Dr Ehota I got cured of my ailments. I will advice you to try herbal medicine as well Contact Dr Ehota Dr Ehota

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4 days ago

‼️Today is #worldsjogrensday, a chronic autoimmune disease that affects 14-17.8% of #lupus patients.

💁‍♀️ Although Sjögren's is a systemic disease that goes far beyond dryness, dryness remains a frequent, significant and disabling symptom.

➡️ Follow Sjögren Europe to know more.
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‼️Today is #WorldSjogrensDay, a chronic autoimmune disease that affects 14-17.8% of #lupus patients.

💁‍♀️ Although Sjögrens is a systemic disease that goes far beyond dryness, dryness remains a frequent, significant and disabling symptom.

➡️ Follow Sjögren Europe to know more.

5 CommentsComment on Facebook

I know

Truly, natural remedies do work. If they didn't, we wouldn't have used them for thousands of years. And, pharmaceutical companies wouldn't be studying plants, taking extracts of them, and patenting them as drugs.this is not a claim or lies I was totally cured from herpes and neuropathy by Dr osewen, His remedy is surely the best. I suggest you try him out if you are having any health challenges and also get cured too, give him a try 👇👇 www.facebook.com/114932024817210

Meeting dr edaghonghon here on Facebook has really been one of the best time of my life. After years of suffering, I am finally cured permanently from HSV1 and 2, thanks doc God bless you www.facebook.com/pg/Dr-Edaghoghon-107119921039442/community/ OR Whatsapp wa.me/2349056731866

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1 week ago

🪫 Fatigue is one of the most common and challenging symptoms of lupus. Even in remission, this persistent issue can continue to affect the daily lives of those with lupus, highlighting the complex nature of this autoimmune disease and its symptoms.

🔬 On our YouTube channel, Dr. Chris Wincup shares groundbreaking research on lupus-related fatigue, presented at ELM. This study offers new insights into some of the possible underlying mechanisms of fatigue in lupus patients and potential therapeutic approaches.

🎥 Watch the full video to discover how these findings could potentially improve the quality of life for those living with lupus.

youtu.be/R5usgt-soE4?si=o426qWO-TP7WiMik
... See MoreSee Less

🪫 Fatigue is one of the most common and challenging symptoms of lupus. Even in remission, this persistent issue can continue to affect the daily lives of those with lupus, highlighting the complex nature of this autoimmune disease and its symptoms.

🔬 On our YouTube channel, Dr. Chris Wincup shares groundbreaking research on lupus-related fatigue, presented at ELM. This study offers new insights into some of the possible underlying mechanisms of fatigue in lupus patients and potential therapeutic approaches. 

🎥 Watch the full video to discover how these findings could potentially improve the quality of life for those living with lupus.

https://youtu.be/R5usgt-soE4?si=o426qWO-TP7WiMik

4 CommentsComment on Facebook

Wow, it would certainly make an enormous difference in our lives!!! Iron deficiency can be difficult to overcome because of stomach problems but it would certainly be worth trying to get rid of this perennial fatigue.

Natural🌿remedies do work. If they didn't, we wouldn't have used them for thousands of years. And, pharmaceutical companies wouldn't be studying plants, taking extracts of them, and patenting them as drugs.this is not a claim or lies I was totally cured from a deadly disease and neuropathy by Herbalist His remedy is surely the best. I suggest you try him out if you are having any health challenges and also get cured too, give him a try 👇👇 Dr Osabor herbal home

Herbal remedies is the most recent cure I can only imagine I thought it was lies when I saw some one testifying about Dr Osabor. I was so happy that I get back my health, and with the help of dr Osabor. I was cured you can also give a try 👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻 www.facebook.com/Dr-osabor-Herbal-home-113980518216580/

2 weeks ago

👨‍⚕️ Don't miss Prof. Ian Bruce talking about the Systemic Lupus Erythematosus Damage Index (SDI) revision!

📈 The SDI is a tool designed to track lupus progression and impacts treatment decisions worldwide.

🔍 The revised SDI aims to enhance accuracy, include pediatric cases, and update outdated definitions, ensuring that every patient’s condition is comprehensively evaluated.

🎥 Do you want to explore these updates more thoroughly and understand what they mean for patients and healthcare providers? Click the link to watch the full video!

youtu.be/okAJvPAzIWg?si=6dwHxhoaqS0OJ7zm
... See MoreSee Less

👨‍⚕️ Dont miss Prof. Ian Bruce talking about the Systemic Lupus Erythematosus Damage Index (SDI) revision!

📈 The SDI is a tool designed to track lupus progression and impacts treatment decisions worldwide.

🔍 The revised SDI aims to enhance accuracy, include pediatric cases, and update outdated definitions, ensuring that every patient’s condition is comprehensively evaluated.

🎥 Do you want to explore these updates more thoroughly and understand what they mean for patients and healthcare providers? Click the link to watch the full video!

https://youtu.be/okAJvPAzIWg?si=6dwHxhoaqS0OJ7zmImage attachment