Zoe Karakikla-MitsakouLupusGPT is temporarily unavailable LupusGPT and EasyLupus are currently offline while we carry out technical updates and security improvements. We are sorry for the inconvenience and are working to bring the tool back online as soon as possible. Thank you very much for your patience and understanding. In the meantime, you can visit the Lupus100 […]
Zoe Karakikla-MitsakouWe are very proud to share that LupusGPT has now been published in The Lancet Rheumatology, one of the world’s leading medical journals in rheumatology. For us, this is not only about a publication. It is about what LupusGPT stands for. LupusGPT is free. It is patient-led. And it was built to help people […]
Zoe Karakikla-MitsakouLupus Europe is organising a Patient Panel for Men this autumn and there are a few remaining spots available for those who want to apply! 📍 Where: Leuven, Belgium 📅 When: (Arrival) Friday 31 October in the afternoon – Sunday 2 November 2025 (departure after lunch) 👥 Who is organising: Lupus Europe. The Panel will […]
Zoe Karakikla-MitsakouLupusGPT Named Finalist for the 2025 Made With Patients Awards: A Milestone in Patient-Driven Innovation We are thrilled to announce that LupusGPT (https://lupusgpt.org/ ), LUPUS EUROPE’s patient-led initiative to provide reliable, accessible lupus information, has been selected as a finalist for the 2025 “Made With Patients Awards” in the Best Tools Implementation category, powered […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with David Kříž from the Lupus Group of Revma Liga Česká Republika, who talked […]
Zoe Karakikla-MitsakouMy name is Melina and I live in the easternmost, warmest, and sunniest part of Europe, the small island of Cyprus. I have lived with lupus for the last 21 years, most of my life, if you count that I am 37 years old. I have also made a dream come true and I want […]
Zoe Karakikla-MitsakouLupus Europe is set to mark World Lupus Day with a webinar aimed specifically at young people living with lupus. The webinar, “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist,” is scheduled for the 10th of May at 19:00 CET. Why This Webinar Matters Lupus frequently affects […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Viola Zajk from Lupus Poland, who talked to us about the incredible work […]
Zoe Karakikla-MitsakouFebruary 29th 2024 is Rare Disease Day. Lupus is a condition that is classified as rare in Europe. While it remains rare in numbers, lupus is all too familiar to those it affects. Living with lupus often means navigating a world that is not designed with rare diseases in mind. The challenges faced by […]
Zoe Karakikla-MitsakouLupus Europe is proud to announce a significant milestone in the representation of people with skin lupus. Annemarie Sluijmers, Vice Chair and Secretary of Lupus Europe has taken an important step by becoming an ePAG (European Patient Advocacy Group) Patient Advocate of ERN Skin.Annemarie became an ePAG in July 2023. Her recent attendance at the […]
🤔 What can kidney biopsies really tell us in lupus nephritis?
👨⚕️Prof Rovin explains why biopsy is key for diagnosis & treatment, & how research may help us get even more information from it in the future.
Watch the first video of our #ELM2026 playlist! https://youtu.be/nyw0Ug-Uap0?si=2z1V0WfUnAkJlHnf
🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.
😔 30% of the global population is not able to access essential health services.
#StandWithScience #WorldHealthDay
Science works better together. 🔬
On #WorldHealthDay, #3TR celebrates the power of collaboration. By working across academia, pharma and patients we aim to better understand response and non-response to therapy and make personalised treatment a reality.💡
#StandWithScience #IHI
🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.
🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.
In the meantime, for reliable, multilingual lupus information👉 https://lupus100.org/
💜Thanks for your support!
🎥 Missed our @SLEuroSociety #ELM2026 Recap Webinar?
🤩 Watch it now!
https://www.youtube.com/watch?v=Bw5Iptu-ZNc
🌟 PAN members share key takeaways, and experts explain the latest on lupus in short, patient-friendly videos.
More coming soon!
So proud to see #LupusGPT published in @TheLancetRheum
Huge credit to @LupusEurope Europe for leading such an inspiring, patient-driven initiative 👏
A privilege to contribute to this work 💜
🔗
LupusGPT: an AI-driven information model for patients with systemic lupus erythematosus
Systemic lupus erythematosus (SLE) is a chronic autoimmune multisystem disease affecting more than 300 000 people in ...
www.thelancet.com
✅ Now that #LupusGPT is published in the Lancet #Rheumatology (LINK: https://doi.org/10.1016/s2665-9913(25)00370-4), I wonder whether you have previously tested the app itself. Ask it anything about #lupus, in any language and tell me what you think: https://www.lupusgpt.org/
✅ Happy to share that we have just published #LupusGPT... in the Lancet #Rheumatology 👍
Check the post below by @LupusEurope for the link 🔓
🤔 What can kidney biopsies really tell us in lupus nephritis?
🔬 Kidney biopsy is a key tool in the diagnosis and management of lupus nephritis. It helps doctors understand what is happening in the kidneys and guides treatment decisions.
But… could it tell us even more?
📽️ In this short video, Prof. Brad Rovin explains how ongoing research is exploring new ways to get deeper and more precise information from kidney biopsies with the goal of improving how lupus nephritis is monitored and treated.
👉 Watch here: youtu.be/nyw0Ug-Uap0?si=gOF2F_AzaL_R-4tC
Don't miss out and visit the #ELM2026 playlist with all videos in the "Video on Demand" section of our website!
Explore Our Videos On Demand: A Window Into Lupus - Lupus Europe
www.lupus-europe.org
LUPUS EUROPE is the European umbrella organisation that brings together national lupus patient organisations from across Europe. We are a non profit independent organisation. We aim to support and emp...0 CommentsComment on Facebook
🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.
😔 30% of the global population is not able to access essential health services.
#StandWithScience #WorldHealthDay #WHD2026
0 CommentsComment on Facebook
🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.
🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.
In the meantime, for reliable, multilingual lupus information👉 lupus100.org/
💜Thanks for your support!
0 CommentsComment on Facebook
🎥 Did you miss our ELM 2026 Recap Webinar?
😃 Watch it now on our YouTube channel!
👉 Our Patient Advisory Network (PAN) members and volunteers share their key takeaways from the European Lupus Meeting 2026.
👉 Doctors and researchers explain, in a clear, short, and patient-friendly way, key messages from their talks.
🎯 Click the link below and discover the latest advances in lupus, explained directly by experts:
www.youtube.com/watch?v=Bw5Iptu-ZNc
More insights from #elm2026 coming soon. Stay tuned!
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