Zoe Karakikla-MitsakouThe Lupus Europe Annual Convention 2023 took place in Lisbon from April 28 to May 1, 2023. The theme of this year’s Annual Convention was “Volunteering”. Lupus organisations in Europe are patient-led and volunteer based; volunteers are the life force of our organisations. Being a volunteer can be incredibly rewarding, can enhance skills and […]
Zoe Karakikla-MitsakouWe are thrilled to share some exciting news from the recent GlobalSkin ELEVATE Conference in Brussels, where Annemarie Sluijmers, Vice Chair and Secretary of Lupus Europe, was honoured with the prestigious GlobalSkin Patient Leaders Award. The conference, held from June 1 to 4, brought together experts, researchers, and patient advocates from the field of dermatology […]
Zoe Karakikla-MitsakouOn February 3-5 2023, Lupus Europe organised its 2nd Patient Panel on Youth, bringing together 10 young people from all over Europe to share their experience of living with lupus. The Panel addressed key issues young participants identified in their life with lupus and explored the possibility of creating a Lupus Europe youth group. […]
Zoe Karakikla-MitsakouThe European Alliance of Associations for Rheumatology (EULAR) Congress 2023 was incredibly interesting, full of groundbreaking research and information about lupus! EULAR 2023 was also very successful for Lupus Europe and its Patient Advisory Network (PAN) members. With unwavering dedication and hard work, PAN members showed their commitment to supporting the lupus community across […]
Zoe Karakikla-MitsakouLupus Europe Youth Group Meet Up Lupus Europe is organising a Meet Up of the Lupus Europe Youth Group! This event will take place from October 20 to October 22, in Leuven (Belgium). There are a few remaining spots available for new members to join: Do you have lupus? Do you live in geographical Europe? […]
Zoe Karakikla-MitsakouDiscover the future of healthcare at the upcoming Lupus Europe Digital Health Webinar! Join us on Thursday, September 28th at 20:00 CET (Brussels time) as we explore the fascinating world of digital health with renowned speaker, Dr. Philipp Bosch. Don’t miss this event! To register, send an e-mail to secretariat@lupus-europe.org
Zoe Karakikla-MitsakouSandra Schaftner volunteers for the German Lupus Group, Lupus Erythematodes Selbsthilfegemeinschaft e.V.. She is also one of the German-version translation volunteers of Lupus100. Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus100.org has also been […]
Zoe Karakikla-MitsakouAt the occasion of World Lupus Day 2023, Lupus Europe is delighted to announce the launch of the multi-lingual website of Lupus100! Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus 100.org has also […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Anne-Britt Eide and Cathrine Hjelmeset from the Norwegian Lupus Group, who talked to […]
Zoe Karakikla-MitsakouLupus Europe Youth Group Meet Up Lupus Europe is organising a Meet Up of its Youth Group. There are a few spots available for new members to join: Do you have lupus? Do you live in geographical Europe? Are you between 18-35 years old? Do you want to connect with other young people with lupus? […]
✅ #Rosacea versus #LUPUS ⬇️
Practical tips for distinguishing the 2 conditions 👍
🚨𝗗𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝗔𝗽𝗽𝗿𝗼𝗮𝗰𝗵𝗶𝗻𝗴 𝗙𝗮𝘀𝘁❗
Please take part in the Living With Lupus in 2024 survey.
🗣️ Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.
🧵Find the link for all 21 languages in this thread ⤵️
✅ Management of #glucocorticoids at the 4th advanced workshop on #Lupus by @SLEuroSociety by J Delgado Alves:
- Main mechanisms of action
- Optimal starting dose (organ- and severity driven)
- Tapering strategy (how fast/additional medications?)
- Stopping? (Yes/no/who?)
🔥 #SLE #lupus patients: Be part of the conversation. Let your voice be heard.
What is it like living with lupus?
Help @LupusEurope learn more about lupus patients so the rest of us know what you are going through
✅ Today is the start of the 4th @SLEuroSociety Advanced #Lupus #Workshop, an event created when I became President of the European Lupus Society. We bring together 30 lucky participants + an amazing faculty for 2 days of intensive & collective discussion of complex #SLE cases 👍
✍🏻Пройдіть опитування.
🔊Поділіться з вашою громадою.
👨🏼⚕Якщо ви медичний працівник і лікуєте пацієнтів з лупусом в Європі, ми були б дуже вдячні, якби ви поінформували своїх пацієнтів.
https://buff.ly/3xIyiBy
📣 One week left to register for our online EUPATI Essentials Training! 📣
Are you an industry, academia or consortium member wanting to enhance your knowledge on patient engagement?
🎯 Register now ▶️ https://bit.ly/4auAmen
#EUPATI #Essentials #OnlineTraining #RegisterToday
My absolute pleasure to work with @Lupusreference CC Mok and Talia for this nice review, prepared for the general medical community to better understand Dx challenge and Mx of SLE. Lots we can do to improve outcomes inc comorbidity burden! https://authors.elsevier.com/a/1ixq7V-4XOrME
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Deltag i undersøgelsen.
🔊Del med dit fællesskab.
👨🏼⚕Hvis du er sundhedsprofessionel og behandler patienter med lupus i Europa, ville vi sætte stor pris på, at du informerer dine patienter.
🙏 Help us and Sle-Lupus- info achieve more answers to ensure that the Danish population is represented in the results
s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Dalyvaukite apklausoje.
🔊Dalinkitės savo bendruomenėje
👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.
🙏 Help us and Lupus Lt achieve more answers to ensure that the Lithuanian population is represented in the results
s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
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✍🏻Doe mee aan de enquête.
🔊Deel met uw gemeenschap.
👨🏼⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.
s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
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💪💪💪
💚 Habt ihr 10 Minuten?
Seit 2020 hat LUPUS EUROPE umfassende Umfragen zum Thema "Leben mit Lupus" durchgeführt, die bereits viele positive Auswirkungen hatte.
⏰ Jetzt ist es an der Zeit für eine neue Umfrage, um unser Verständnis davon zu vertiefen, wie es ist, im Jahr 2024 mit Lupus zu leben. Sie wird eine große Anzahl von Bereichen abdecken, einschließlich des Seins einer jungen Mutter, eines Mannes, eines Seniors mit Lupus oder Fragen rund um die Arzt-Patient-Beziehung, aktuelle unerfüllte Bedürfnisse der Patienten und Patientinnen, Medikamentenpräferenzen und weitere!
👉 Die neue Umfrage startet am 1. April 2024, und wir brauchen Ihre Unterstützung! Ihre Stimme ist entscheidend, um ein breites Spektrum von Themen abzudecken.
Je mehr Teilnehmende, desto größer ist unser Einfluss. Bitte nehmt daher an der Umfrage teil unter www.surveylegend.com/s/5h8u.
Die Ergebnisse werden im Sommer veröffentlicht und über die nationalen Mitglieder verbreitet.
Danke für eure Unterstützung! 🥰
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