Zoe Karakikla-MitsakouAt the occasion of World Lupus Day 2023, Lupus Europe is delighted to announce the launch of the multi-lingual website of Lupus100! Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus 100.org has also […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Anne-Britt Eide and Cathrine Hjelmeset from the Norwegian Lupus Group, who talked to […]
Zoe Karakikla-MitsakouLupus Europe Youth Group Meet Up Lupus Europe is organising a Meet Up of its Youth Group. There are a few spots available for new members to join: Do you have lupus? Do you live in geographical Europe? Are you between 18-35 years old? Do you want to connect with other young people with lupus? […]
Zoe Karakikla-MitsakouHow does it feel when you have had lupus for more than 20 years ? Lupus Europe is organising its 4th Patient Panel which will focus on the theme of « Senior with lupus ». If you are 60 Years + and have been diagnosed before 2000, send us an email and be selected to […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Rita Mendes from the Portuguese Lupus Association – Associação de Doentes com Lupus […]
Zoe Karakikla-MitsakouVolunteering can be incredibly rewarding, important, and empowering. With that in mind we want to announce the Kick Lupus 2023 Competition, a competition that this year is all about volunteering! To enter the Kick Lupus 2023 Competition, send us your testimonial on “How has volunteering for a lupus organisation helped changed my life?” […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Gaia VonÖrn from the Swedish Rheumatism Association who talked to us about the […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Ram Blass from Inbar who talked to us about the wonderful work the […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Marga Schut and Wendy Zacouris from NVLE who talked to us about the […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Ingrid Hennes from CIB Liga who talked to us about the wonderful […]
You can still register for the "#EULAR2023 Debrief–for people living with #lupus" webinar that we have organised with @ern_reconnet‼️
With Prf @Lupusreference & our Chair @Jeanette_Lupus
Today at 19.30 CEST
Register➡️ secretariat@lupus-europe.org
🚨Registration compulsory🚨
Thanks to @LupusEurope for letting me live this great experience at #EULAR2023 and get to see my Lupus Europe family again!
Volunteering is the greatest thing ever! And I am so proud to be part of this organisation 🙌🏻🙌🏻
Don’t miss this unique opportunity and register now for this webinar that we have organised with @ern_reconnet and that will take place tomorrow!
Send an e-mail now to secretariat@lupus-europe.org.
📣@ern_reconnet shares the #webinar done together with @LupusEurope
Speakers will be Prof @Lupusreference n @Jeanette_Lupus on "#EULAR2023 Debrief – for people living with #lupus"
🗓️May 7th at 19.30 CEST
Register at: secretariat@lupus-europe.org
Link: http://bit.ly/45QGmMS
One of our PAN members explains to the Italian #lupus community what is #Lupus100 and what it can offer: high-quality and reliable information about #lupus in a patient-friendly language!
At the moment, available in 🇬🇧 🇩🇰 🇩🇪 🇪🇸 🇬🇷 🇫🇷 🇮🇹 🇳🇱 🇷🇴 🇫🇮 🇺🇦.
https://lupus100.org/
The #EULAR #lupus task force has made a big effort to update the current guidelines for management of #SLE. Prof D. Boumpas has highlighted in #EULAR2023 that the new guidelines will be applicable to all international #rheumatology communities. See below:
#EULAR2023 #SLEuroLottery #Bruges2024
Last few hours to come meet us at the SLEuro booth and try to win a free registration for the 14th European Lupus Meeting in Bruges!
You can participate in the lottery if you register as a SLEuro member or if you bring a new one.
Rumours, unchecked data, unconfirmed research... all contribute to confusion➕anxiety in patients, which can lead to 👎 decisions.
#Lupus100 aims to change this by providing ℹ️ & education about #lupus in their native language
👀 @eular_org press release
https://buff.ly/43nakXc
✈️ We hope you enjoyed your onsite congress experience in Milan!
📑Download your Certificate of Attendance today and receive accreditation for #EULAR2023!
👉https://account-congress.eular.org/Home/Index/Account
#EULAR #Rheumatology
Thank you Martijn, for your question! We will ensure your question is raised 🙂
Thank you for following this joint Lupus Europe / ERN ReCONNET webinar! If you have any questions for the speakers, please post them here and we will ensure they are raised! 😃
Hi from Corfu thank you for this it was really helpful!!!
I am curious about diet and microbiome as well. I think the topic is very much understudied and not good understood - but has great influence.
There are huge differences!
Are there possibility’s with food to have remission
There were only young people for the treatment with Car-T cells In am nog young any more. Is ther hope for me?
Only on my phone de zoom started. I do not know why
Metty Staal volgt
What is there to expect the coming years. I mean mean in treatments?
Thank you very much professor Arnoud
Our joint webinar with ERN RECONNET is also going on Facebook Live!
If you have not been able to register, go to our Facebook Page and enjoy "#EULAR2023 Debrief–for people living with #lupus".
1 hour to go! 😃
www.facebook.com/LupusEurope
🚨Don't miss our webinar today🚨
Along with ERN RECONNET, we have organised this "#EULAR2023 Debrief–for people living with #lupus" webinar with speakers Prof. Laurent Arnaud and our Chair, Jeanette Andersen.
Today at 19.30 CEST (i.e. Paris time).
Register by sending an email to secretariat@lupus-europe.org now!
This is the link to the webinar: us02web.zoom.us/postattendee?mn=M427EvtnmvHdk0JAHWvzvFfSLI8DNl0Dwz8Q.UQk33isEc4kWzlqy
𝗛𝗼𝘄𝗲𝘃𝗲𝗿, 𝘆𝗼𝘂 𝘄𝗶𝗹𝗹 𝗻𝗼𝘁 𝗯𝗲 𝗮𝗱𝗺𝗶𝘁𝘁𝗲𝗱 𝘁𝗼 𝘁𝗵𝗲 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝘂𝗻𝗹𝗲𝘀𝘀 𝗿𝗲𝗴𝗶𝘀𝘁𝗲𝗿𝗲𝗱.
Registration is compulsory.
Not succeeding to send an email for registration. I would like to participate. Thanks
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One of our PAN members explains to the Italian lupus community what is #Lupus100 and what it can offer: high-quality and reliable information about #lupus in a patient-friendly language!
At the moment, available in 🇬🇧 🇩🇰 🇩🇪 🇪🇸 🇬🇷 🇫🇷 🇮🇹 🇳🇱 🇷🇴 🇫🇮 🇺🇦.
More languages to come soon! Stay tuned, and don't miss it!
lupus100.org/
Grazie
💜💜💜
