Alain CornetSince his amazing feat Andreas has been busy recovering and getting back to normal life, but he hasn’t forgotten about his lupus supporters and has been working on his final article, telling us all about his fantastic achievement. Lupus New York Marathon Finisher – 06.11.2016 For Lupus Warriors, Lupus Heros, Lupus Scientists, Lupus Family, Lupus Friends, […]
Alain CornetOn Jan 20th, in Paris, the Organization for Economic Co-operation and Development (OECD) held a Forum on the Future of Health, with the tag line of “People at the Center”. The Organization provides a setting where governments can compare policy experiences, seek answers to common problems, identify good practice and coordinate domestic and international […]
Alain CornetKirsten represents LUPUS EUROPE at ERN meeting in Vilnius For tweets and pictures from the event, visit LUPUS EUROPE’s twitter page. From our recent newsflash: On March 9th EU President of the European Commission, Jean-Claude Juncker, opened the third meeting and Kick-off of the European Reference Networks (ERNs) taking place in Vilnius, Lithuania. Please see the short […]
Alain CornetMonday 27th saw the official launch of EPF’s campaign on Access to Healthcare at the European Parliament. LUPUS EUROPE has been involved in the Working group for this project and the working group met on Tuesday to discuss Monday’s meeting and the next steps and the work which remains ahead. There is still a lot […]
🤩What an amazing #EULAR2025 Congress!!
🔝Congratulations to @eular_org & the whole team for the outstanding organisation and speaker line-up!
Happy with our performance and extra proud this year— #LupusGPT won the #MadeWithPatients Award 2025!
See you in London at #EULAR2026!
We are so #proud at @LupusEurope for being featured in the closing plenary. Thanks #eular2025 for highlighting this amazing tool.
#lupusgpt
Find out more at. https://lupusgpt.org/
#Lupus is one of the biggest social discriminators
🔺️Higher prevalence in Women
🔺️Higher prevalence in Non-Whites
🔺️More catastrophic manifestations in low socioeconomic groups
Disaster Medicine Session
Social disparities and impact on outcomes
#EULAR2025
@RheumNow
Thank you to @SEReumatologia for highlighting #LupusGPT!
#EULAR2025
@DrGomezPuerta @Reumaclinic @AlvaroGraciaSER @ReumaVHebron @GVADrPeset @Inmusc1 @reumahulp @RaquelAlmodovaG @ReumaValdecilla @MPaulinoreuma @Maitesidi @reumacastro @ligareuma @RusinovichOlga @ReumaPdeHierro En #EULAR2025, de la mano de @TuLupus conocemos la iniciativa de @LupusEurope: #LupusGPT. Las asociaciones interesadas en hacer un proyecto similar para otras patologías, ¡atentas al final del vídeo porque están dispuestas a ayudaros!
#Equality vs. #Equity
Some people may need more than others
Disaster Medicine Session
Social disparities and impact on outcomes
#EULAR2025
@RheumNow
😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide.
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
Research & health projects must be based on true co-creation, engaging trained patient partners in all stages of research.
Our Patient Advisory Network (PAN) ensures that patient voices actively shape research to deliver meaningful & patient-relevant outcomes
#EULAR2025
Digital health has evolved a lot, but there’s still a lot we can improve.
That’s where tools like #LupusGPT and #EasyLupus can make a change!
Great and dynamic talk by Dr Rafael Prieto Moreno, from @openreuma!
#EULAR2025
🏆 We’re thrilled to announce that #LupusGPT has won the PFMD #MadeWithPatients Award 2025 as Best Emerging Innovation!
🌍A huge moment for Lupus Europe & the European #lupus community — proving what’s possible through true patient innovation and collaboration.
😃Celebrating at #EULAR2025!
#PEOF2025
16 CommentsComment on Facebook
🏆 This Wednesday, we will find out if LupusGPT will win the PFMD Made with Patients Award 2025!
🎉 Join us in this exciting moment for the lupus community by watching the ceremony live online (registration is available at the link provided in our blog post).
👉 If you still don’t know what this huge achievement means, read our latest blog post, where you will also find the link to register for the live ceremony at the Patient Engagement Open Forum (PEOF).
💜 Created by patients, for patients, #LupusGPT and #EASYLupus are already breaking barriers in access to reliable, multilingual lupus information. Check the tool out and explore how easy it is to access valid and clear lupus information in your language.
Remember! All the information and links are available in our latest blog post!
www.lupus-europe.org/lupusgpt-made-with-patients-awards-2025/
3 CommentsComment on Facebook
🟣 LUPUS-ALERT is moving forward!
Thanks to the amazing collaboration between healthcare professionals and patients, we’ve now identified many potential vulnerabilities that can impact access to appropriate lupus care.
We want to extend a special thank you to all the lupus patients who responded to our call and shared the barriers patients may face: financial, social, linguistic, geographic…
🌟 Your contribution is helping to develop a tool that will systematically identify the vulnerabilities patients face. This is a wonderful step towards lupus care that is more holistic, equitable, personalised, and responsive to patients' real-life needs.
🔝 A huge thank you to Prof. Laurent Arnaud, Dr. Daniel Guimarães de Oliveira - Imunologia Clínica, Jeanette Andersen, and Zoe Karakikla-Mitsakou for their invaluable contributions and commitment to LUPUS-ALERT!
🌍 And a special thank you to the many physicians and patients who have come together to work on this project for the benefit of lupus patients.
🚀 #LupusAlert now moves into Step 2!!!
🔔 Stay tuned!
1 CommentsComment on Facebook
#EULAR2025 is around the corner!
🦋 Lupus Europe plays a significant role in this year's Congress, with a diverse range of exciting topics and great participation.
✅ We will be sharing insights from most of the lupus sessions on X, so don't forget to follow us!
😃 Stay tuned!
1 CommentsComment on Facebook
;
