Stay Updated and Knowledgeable About Lupus Europe

    Lupus Europe – Info Centre

    We want to share some key information and links that we found particularly relevant for people living with lupus in Europe. While we do our utmost to select credible sources of information and quality publications, the articles and links reflect the views of their authors rather than of LUPUS EUROPE.

    Latest Lupus Europe News

    See our latest Blog articles, initiatives or projects.

    LEAF - Lupus Expert system for the Assessment of Fatigue

    Go to the LEAF tool for an assessment and personalised recommendations on improving fatigue

    Hydroxychloroquine Dosing survey

    Our survey on HcQ dosing, retinopathy and adherence is published in Lupus Science and medicine!

    Anifrolumab

    Anifrolumab has now been approved by the European Medicines Agency (EMA) as an add-on therapy for the treatment of active, moderate to severe SLE

    Voclosporin

    Voclosporin has been approved by the European Medicines Agency (EMA) as an add-on therapy for the treatment of severe & active lupus nephritis in adults

    EULAR on Vaccination

    Read the EULAR View-points on SARS-CoV-2 vaccination in patients with Rheumatic and Musculoskeletal diseases (RMDs)

    What are ERNs?

    Find out about Patient Involvement in the ERNs

    Lupus reference tweets

    Prof. L. Arnaud is very active on twitter, often with recent news in 1 slide

    Covid impact on rare diseases patients

    look at the attached infographic made by EURORDIS based on 6945 answers

    Phase 2 Data on Litifilimab in CLE

    Read about the Positive Phase 2 Data on Litifilimab in Cutaneous Lupus Erythematosus

    Do you know ERN ReCONNET

    This is the European Reference Network responsible for lupus

    VACOLUP Study

    Learn about the Tolerance of COVID19 Vaccines in Lupus Patients

    This is living

    Go to the campaign’s autoimmune conditions webpage!

    Do you know ERN ReCONNET

    This is the European Reference Network responsible for lupus

    VACOLUP Study

    Learn about the Tolerance of COVID19 Vaccines in Lupus Patients

    Lupus Europe STRATEGIES

    Live Facebook Feed

    Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
    3 days ago
    LUPUS EUROPE

    Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus.

    What is the question you should have asked and you didn't?

    What is the question you think physicians should answer without being asked?

    #Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.
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    Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus. 

What is the question you should have asked and you didnt?

What is the question you think physicians should answer without being asked?
 
#Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.

    Comment on Facebook

    Qu'es le lupus ? Moi j'ai eu a " c'est un lupus...comme votre grand mère" point final Je me suis imaginer ,mes mains se déformer,me paralyser j'ai eu peur maintenant 7 ans plus tard bien-sûr chez changer d'internet me suis tourné vers un rhumatologue et centre des douleurs un nouveau immunosuppresseurs mais pas d'explication sur les effets secondaires a part pour le foie ... suspens es ce que mon corps va accepte ce médicament

    Recording your appointment helps

    Medication side effects short and long twem

    6 days ago
    LUPUS EUROPE

    More good news for the #lupus commnunity!!

    Voclosporin has been approved in Europe for the treatment of adults with active lupus nephritis in combination with a background immunosuppressive therapy regimen.

    ir.auriniapharma.com/press-releases/detail/263/aurinia-announces-european-commission-approval-of
    ... See MoreSee Less

    6 days ago
    LUPUS EUROPE

    Date is set! And #Lupus100 is fast approaching.
    If you haven't done yet, subscribe to our newsletter to get the latest updates!

    www.lupus-europe.org/me-lupus/lupus-europe-info-centre/
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