Stay Updated and Knowledgeable About Lupus Europe

    Lupus Europe – Info Centre

    We want to share some key information and links that we found particularly relevant for people living with lupus in Europe. While we do our utmost to select credible sources of information and quality publications, the articles and links reflect the views of their authors rather than of LUPUS EUROPE.

    Latest Lupus Europe News

    See our latest Blog articles, initiatives or projects.

    LEAF - Lupus Expert system for the Assessment of Fatigue

    Go to the LEAF tool for an assessment and personalised recommendations on improving fatigue

    Hydroxychloroquine Dosing survey

    Our survey on HcQ dosing, retinopathy and adherence is published in Lupus Science and medicine!

    Anifrolumab

    Anifrolumab has now been approved by the European Medicines Agency (EMA) as an add-on therapy for the treatment of active, moderate to severe SLE

    Lupus reference tweets

    Prof. L. Arnaud is very active on twitter, often with recent news in 1 slide

    EULAR on Vaccination

    Read the EULAR View-points on SARS-CoV-2 vaccination in patients with Rheumatic and Musculoskeletal diseases (RMDs)

    Want To Make A Poster?

    See attached Simon Stones slides explaining how to make a poster for a scientific event!

    Covid impact on rare diseases patients

    look at the attached infographic made by EURORDIS based on 6945 answers

    This is living

    Go to the campaign’s autoimmune conditions webpage!

    What are ERNs?

    Find out about Patient Involvement in the ERNs

    Do you know ERN ReCONNET

    This is the European Reference Network responsible for lupus

    VACOLUP Study

    Learn about the Tolerance of COVID19 Vaccines in Lupus Patients

    Living with lupus in 2020 - SURVEY PUBLISHED

    Thank you to the 5922 respondents

    What are ERNs?

    Find out about Patient Involvement in the ERNs

    Do you know ERN ReCONNET

    This is the European Reference Network responsible for lupus

    VACOLUP Study

    Learn about the Tolerance of COVID19 Vaccines in Lupus Patients

    Do you know ERN ReCONNET

    This is the European Reference Network responsible for lupus

    VACOLUP Study

    Learn about the Tolerance of COVID19 Vaccines in Lupus Patients

    Lupus Europe STRATEGIES

    Live Facebook Feed

    Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
    2 weeks ago
    LUPUS EUROPE

    As much as we love hearing from you all and appreciate the time you take to share how you #kicklupus and inspire others, we cannot allow any content specifically about healing products for lupus.

    We would greatly appreciate if you followed this rule when posting on the page.
    Thank you
    ... See MoreSee Less

    2 weeks ago
    LUPUS EUROPE

    #WorldLupusDay finishes today, but #lupusawareness does not. There is so much more we can do to make life with #lupus better. Watch our vice chair, Anne Charlet, talk about her journey of becoming a Board Member.
    You can also join us and become a volunteer
    ... See MoreSee Less

    Comment on Facebook

    Wauvvvv SO good looking :-)