Quality of healthcare?

What does quality of healthcare mean for you? Take the EPF survey! Deadline: 31st May 2016. The survey is aimed at patient representatives: primarily individual patients, their family members or informal carers, and patient organisation representatives across the EU. You do not need in-depth knowledge or experience on quality of care to complete the survey! There […]

Introduction from a new board member

In September, during the LUPUS EUROPE convention, we were delighted to welcome Jeanette Andersen to the board. She has written a little introduction for those who don’t already know her from her work in LUPUS EUROPE and Young PARE. “I was diagnosed with SLE in 2011, although I had had symptoms of the disease since […]

The EUPATI toolkit has been launched

A Toolbox of presentations, videos, articles and other resources on patients’ involvement in development of new drugs for treatment was launched on January 27th. The EPF flagship project, EUPATI (the European Patient Academy on Therapeutic Innovation), has lanuched its Toolbox in 7 languages – read more on what fruits this will bring to patients and the research and regulatory […]

EPF Regional Advocacy Seminar

  Do you have members in Belgium, the Netherlands, Luxembourg or Germany?  This year’s EPF Regional Advocacy Seminar is open to patient representatives from these countries. Make sure you share this opportunity with them! This year’s Seminar is entitled “Getting the patients’ message across to the national and European level”. Participants will take part in […]

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1 week ago

🌍 Tomorrow #eular2024 kicks off!

Lupus Europe plays a significant role in this year's Congress, with a diverse range of exciting topics and great participation.

🦋 We will be sharing insights from most of the lupus sessions on X, so don't forget to follow us!

😃 Stay tuned!
... See MoreSee Less

1 week ago

🤩 EULAR Congress is around the corner!

✅ At Lupus Europe, everything is ready to make the most of one of the year's top events, and our Board & some of our PAN members will cover all the #lupus sessions 🦋.

If you are attending #EULAR2024, don't forget to visit our booth!
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🤩 EULAR Congress is around the corner!

✅ At Lupus Europe, everything is ready to make the most of one of the years top events, and our Board & some of our PAN members will cover all the #lupus sessions 🦋.

If you are attending #EULAR2024, dont forget to visit our booth!

3 CommentsComment on Facebook

Great

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2 weeks ago

😃 Yes! The theme for this month is UV light, which is known to have a direct association with lupus.

☀️ Throughout June, we'll be sharing helpful information to understand the importance of avoiding UV exposure if you have lupus.

🔊 Join us and share how you #kicklupus!
... See MoreSee Less

😃 Yes! The theme for this month is UV light, which is known to have a direct association with lupus.

☀️ Throughout June, well be sharing helpful information to understand the importance of avoiding UV exposure if you have lupus.

🔊 Join us and share how you #KickLupus!
2 weeks ago

🌞 Welcome June!

🦵🐺 As we approach Summer, we will #kicklupus this month by discussing a crucial topic for everyone affected by lupus.

🤔 Can you guess?

🔊 Stay tuned as we unveil the topic and share some important insights!
... See MoreSee Less

🌞 Welcome June!

🦵🐺 As we approach Summer, we will #KickLupus this month by discussing a crucial topic for everyone affected by lupus.

🤔 Can you guess?

🔊 Stay tuned as we unveil the topic and share some important insights!

7 CommentsComment on Facebook

Of course sun protection

Thank you so much for the big work you do every day for LUPUS EUROPE! Let's kick LUPUS all together!

Sun protection ☀️🕶🏖⛱️☂️

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