All around the world, scientists, academics, Doctors are looking for better treatments for people living with lupus. The complexity of the disease makes this search difficult, but many promising tracks are pursued with thousands of patients involved in clinical trials. The research is taking place in locations all over the world, maybe also close to your home.

Whether you just have an intellectual interest for the topic and would like to see what research is taking place where, or would like to become personally involved by enrolling in a clinical trial, here are links that will help you find the most current information. Our search link will direct you either to Clinicaltrials.gov (the global database of all clinical trials around the world), or to antidote.match, a platform identifying, based on few questions, which clinical trials are taking place near your home  for your condition

Lupus Clinical Research all around the world

Reach directly the active lupus trials from clinical trials.gov and be amazed by the quantity of on going research

Systemic Lupus Clinical trials near your home

If you want to find a clinical trial near you and have SYSTEMIC Lupus Erythematosus

Lupus Nephritis Clinical trials near your home

If you want to find a clinical trial near you and have LUPUS NEPHRITIS (Kidneys affected by systemic lupus)

Cutaneous Lupus Clinical trials near your home

If you want to find a clinical trial near you and have CUTANEOUS Lupus erythematosus

We hope the above links will be of use to you. LUPUS EUROPE has done its best to avoid any commercial bias in the data presented using the above links. Making the decision to participate in a clinical trial is your personal choice, to be made together with your trusted doctor. If you want to know more about clinical trials, we recommend you click on the link below. This will take you to EUPATI’s “An Introduction to Clinical Research” page where you can watch a short video that explains the essentials of a clinical trial:

https://toolbox.eupati.eu/resources/an-introduction-to-clinical-research/ 

You can also watch the following video where Jeanette Andersen, Chair of Lupus Europe and EUPATI fellow, and Marta Mosca, Coordinator of the ERN ReCONNET and Associate Professor in Rheumatology at the University of Pisa, discuss lupus, how patients can contribute to research and clinical trials and much more:

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1 week ago
LUPUS EUROPE

🚨 Call for patients🚨

🔊 INSPIRE SURVEY from the University of Cambridge.

This survey aims to improve the understanding of neurological symptoms in SLE and other rheumatic conditions.

Lupus is a very heterogeneous disease, which means that it affects people of different ethnic backgrounds and gender in different ways.

That is why, to get accurate research results, as many different groups as possible must be represented in the sample.

The INSPIRE survey was launched last year to get the patient experience on the assessment/monitoring of neurological symptoms, but they received very few responses from people from ethnic minorities.

That is why the research team led by Dr Chris Wincup has launched a new survey.

The new INSPIRE survey can be completed by lupus patients or their carers from around the world.

🟣 Please share as much as possible 🟣 in order to get a sample that includes a good proportion of all ethnic groups.

Thank you!

bit.ly/inspire_patients_short
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Comment on Facebook

I did it a second time and no it went good till the end

The survey was demolished.

1 week ago
LUPUS EUROPE

Discoid lupus erythematosus (DLE) is the most common form of chronic cutaneous lupus erythematosus. It is characterised by persistent scaly plaques on the scalp, face, and ears, which can progress to scarring, atrophy, depigmentation, and permanent hair loss in affected hair-bearing areas (Source: DermNet).

This study, published by Prof Marca Mosca et al., describes 2 cases of severe and refractory DLE successfully treated with anifrolumab, a human monoclonal antibody.

Although anifrolumab has been recently approved for the treatment of SLE, data from randomized clinical trials have shown a significant difference in cutaneous response rate in patients treated with anifrolumab from those in the placebo group.

While the effectiveness of this treatment in real life and in different types of skin lesions has yet to be determined, it could represent a new valid opportunity for treating DLE.

jamanetwork.com/journals/jamadermatology/article-abstract/2798967
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Discoid lupus erythematosus (DLE) is the most common form of chronic cutaneous lupus erythematosus. It is characterised by persistent scaly plaques on the scalp, face, and ears, which can progress to scarring, atrophy, depigmentation, and permanent hair loss in affected hair-bearing areas (Source: DermNet). 

This study, published by Prof Marca Mosca et al., describes 2 cases of severe and refractory DLE successfully treated with anifrolumab, a human monoclonal antibody. 

Although anifrolumab has been recently approved for the treatment of SLE, data from randomized clinical trials have shown a significant difference in cutaneous response rate in patients treated with anifrolumab from those in the placebo group. 

While the effectiveness of this treatment in real life and in different types of skin lesions has yet to be determined, it could represent a new valid opportunity for treating DLE.

https://jamanetwork.com/journals/jamadermatology/article-abstract/2798967Image attachmentImage attachment
1 week ago
LUPUS EUROPE

We know some of you missed the great seminar recently delivered by Prof. Laurent Arnaud.

Well, no worries!

You have the chance to see it again, thanks to the European Federation of Internal Medicine (EFIM).

"Challenges in 2023 for Systemic Lupus Erythematosus".

Next 29th of March at 18:00 CET (i.e. Paris time).

Register for free here!

us02web.zoom.us/webinar/register/WN_O5yMwjfgTS29pMKvOZfgZw
... See MoreSee Less

We know some of you missed the great seminar recently delivered by Prof. Laurent Arnaud. 

Well, no worries! 

You have the chance to see it again, thanks to the European Federation of Internal Medicine (EFIM). 

Challenges in 2023 for Systemic Lupus Erythematosus.

Next 29th of March at 18:00 CET (i.e. Paris time).

Register for free here! 

https://us02web.zoom.us/webinar/register/WN_O5yMwjfgTS29pMKvOZfgZwImage attachment
1 week ago
LUPUS EUROPE

Did you miss this ERN RECONNET webinar with Lou Kawka and Prof Laurent Arnaud about #fatigue in #SLE?

Now you have the chance to watch it!!! 😃🙌

www.youtube.com/watch?v=7jc7SiP5BsA
... See MoreSee Less

Did you miss this ERN RECONNET webinar with Lou Kawka and Prof Laurent Arnaud about #fatigue in #SLE? 

Now you have the chance to watch it!!! 😃🙌

https://www.youtube.com/watch?v=7jc7SiP5BsA