All around the world, scientists, academics, Doctors are looking for better treatments for people living with lupus. The complexity of the disease makes this search difficult, but many promising tracks are pursued with thousands of patients involved in clinical trials. The research is taking place in locations all over the world, maybe also close to your home.

Whether you just have an intellectual interest for the topic and would like to see what research is taking place where, or would like to become personally involved by enrolling in a clinical trial, here are links that will help you find the most current information. Our search link will direct you either to Clinicaltrials.gov (the global database of all clinical trials around the world), or to antidote.match, a platform identifying, based on few questions, which clinical trials are taking place near your homeย  for your condition

Lupus Clinical Research all around the world

Reach directly the active lupus trials from clinical trials.gov and be amazed by the quantity of on going research

Systemic Lupus Clinical trials near your home

If you want to find a clinical trial near you and have SYSTEMIC Lupus Erythematosus

Lupus Nephritis Clinical trials near your home

If you want to find a clinical trial near you and have LUPUS NEPHRITIS (Kidneys affected by systemic lupus)

Cutaneous Lupus Clinical trials near your home

If you want to find a clinical trial near you and have CUTANEOUS Lupus erythematosus

We hope the above links will be of use to you. LUPUS EUROPE has done its best to avoid any commercial bias in the data presented using the above links. Making the decision to participate in a clinical trial is your personal choice, to be made together with your trusted doctor. If you want to know more about clinical trials, we recommend you click on the link below. This will take you to EUPATI’s “An Introduction to Clinical Research” page where you can watch a short video that explains the essentials of a clinical trial:

https://toolbox.eupati.eu/resources/an-introduction-to-clinical-research/ย 

You can also watch the following video where Jeanette Andersen, Chair of Lupus Europe and EUPATI fellow, and Marta Mosca, Coordinator of the ERN ReCONNET and Associate Professor in Rheumatology at the University of Pisa, discuss lupus, how patients can contribute to research and clinical trials and much more:

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2 weeks ago
LUPUS EUROPE

๐Ÿฆ‹ Lupus is a complex autoimmune disease, and its exact cause is not fully understood.

โœ‹ While various risk factors have been identified, such as genetic predisposition๐Ÿงฌ and exposure to certain environmental๐ŸŒ‡ triggers, ๐—น๐˜‚๐—ฝ๐˜‚๐˜€ ๐—บ๐—ฎ๐˜† ๐—ป๐—ผ๐˜ ๐—ฏ๐—ฒ ๐—ฒ๐—ป๐˜๐—ถ๐—ฟ๐—ฒ๐—น๐˜† ๐—ฝ๐—ฟ๐—ฒ๐˜ƒ๐—ฒ๐—ป๐˜๐—ฎ๐—ฏ๐—น๐—ฒ.

๐Ÿ” Understanding and managing these risk factors, along with early detection and appropriate medical care, are essential in effectively addressing #lupus and improving the quality of life for individuals affected by this condition.

๐Ÿค” So, how can we #kicklupus with prevention?
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๐Ÿฆ‹ Lupus is a complex autoimmune disease, and its exact cause is not fully understood.

โœ‹ While various risk factors have been identified, such as genetic predisposition๐Ÿงฌ and exposure to certain environmental๐ŸŒ‡ triggers, ๐—น๐˜‚๐—ฝ๐˜‚๐˜€ ๐—บ๐—ฎ๐˜† ๐—ป๐—ผ๐˜ ๐—ฏ๐—ฒ ๐—ฒ๐—ป๐˜๐—ถ๐—ฟ๐—ฒ๐—น๐˜† ๐—ฝ๐—ฟ๐—ฒ๐˜ƒ๐—ฒ๐—ป๐˜๐—ฎ๐—ฏ๐—น๐—ฒ. 

๐Ÿ” Understanding and managing these risk factors, along with early detection and appropriate medical care, are essential in effectively addressing #lupus and improving the quality of life for individuals affected by this condition.

๐Ÿค” So, how can we #KickLupus with prevention?Image attachmentImage attachment
4 weeks ago
LUPUS EUROPE

๐ŸŒŸ Calling all Lupus Patient Organisation Volunteers! ๐ŸŒŸ

๐Ÿ—ฃ๏ธ Your Voice Matters!

We want to hear from YOU!

โ“ Are you a volunteer for a lupus patient organisation?

Your insights are invaluable! ๐Ÿ’Ž

Participate in our quick survey, taking just 2-3 minutes of your time, and help us understand volunteer motivations better.

Your feedback will help shape the future and help us understand what we should work on to make our volunteers happier and more motivated.

โœ๏ธ You can answer in English or in your own language.

Ready to share your thoughts?

๐Ÿ”— Click the link below and let your voice be heard!

s.surveylegend.com/-NfBafeCoorOLsOkK1Du

๐Ÿค— Thank you for reading this post and considering answering the survey!

Together, we can make a huge difference! ๐Ÿ’ช
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1 CommentComment on Facebook

๐Ÿคท‍โ™‚๏ธ

4 weeks ago
LUPUS EUROPE

๐Ÿ“† New month, new challenge!

๐Ÿ As the calendar flips to November, our #kicklupus campaign has a new theme!

๐Ÿค” Can you guess what this month's theme is all about?

๐Ÿ’ก Hint: It's all about implementing measures to help us hold #lupus at bay!

๐Ÿ™Œ Stay tuned for a month of discovery and empowerment as we unveil the importance of these measures in managing lupus.

Ready to embark on this journey with us? ๐Ÿ’ช
... See MoreSee Less

๐Ÿ“†  New month, new challenge!

๐Ÿ As the calendar flips to November, our #KickLupus campaign has a new theme! 

๐Ÿค” Can you guess what this months theme is all about?

๐Ÿ’ก Hint: Its all about implementing measures to help us hold #lupus at bay!

๐Ÿ™Œ Stay tuned for a month of discovery and empowerment as we unveil the importance of these measures in managing lupus. 

Ready to embark on this journey with us? ๐Ÿ’ช

1 CommentComment on Facebook

๐Ÿ’ช๐Ÿป๐Ÿ€

1 month ago
LUPUS EUROPE

โ€ผ๏ธDespite a higher risk of infection in #SLE patients, vaccination rates are low due to:

๐Ÿ”นFear
๐Ÿ”นLack of trust
๐Ÿ”นFeeling of unsafety
๐Ÿ”นBelief in good health
๐Ÿ”นLack of recommendations by doctor

๐Ÿ’กLet's #KickLupus by shedding light on the facts & debunking the misconceptions surrounding vaccinations for people with lupus.

๐Œ๐ฒ๐ญ๐ก 1๏ธโƒฃ: Vaccines & lupus flares

One of the most common fears among #lupus patients is the possibility of vaccines causing a flare.

โœ… Prof. Arnaud states that the risk of flare after vaccination is not confirmed. Typically the benefits of vaccination outweigh any potential, small risks.

๐Œ๐ฒ๐ญ๐ก 2๏ธโƒฃ: People with lupus should avoid all vaccines

โœ… While some vaccines may not be recommended for people with lupus, many vaccines are safe and important.

Protecting against infections is key, as even minor illnesses could lead to complications in individuals with SLE.

๐Œ๐ฒ๐ญ๐ก 3๏ธโƒฃ: Lupus patients can't receive live vaccines

โœ… Live vaccines are not typically recommended for lupus patients. However, in certain circumstances, it may be appropriate for some people to get live vaccines.

It is crucial this is assessed on a case-by-case basis by your doctor.

๐Œ๐ฒ๐ญ๐ก 4๏ธโƒฃ: Vaccines worsen lupus symptoms

โœ… Vaccines don't worsen lupus symptoms. In fact, they help protect against infections, which could be more severe in lupus patients.

๐Œ๐ฒ๐ญ๐ก 5๏ธโƒฃ: Lupus patients should only get vaccines if they are in remission

โœ… According to EULAR recommendations, vaccination in patients with lupus should preferably be administered during quiescent disease.

For patients with active disease, immunisation should not be ruled out & should be assessed on an individual basis.

๐Œ๐ฒ๐ญ๐ก 6๏ธโƒฃ: One dose of the vaccine covers you for life

โœ… If you have lupus, your doctor should assess your vaccination status every year. That ensures vaccination strategies continue to be aligned with your needs & medical history.

Always consult with your doctor. They will tell you which vaccination schedule is safe & effective for you

๐ŸŒ Help us #KickLupus by raising awareness of the importance of immunisation.

Check the EULAR recommendations for vaccination in adult patients with autoimmune inflammatory rheumatic diseases:

ard.bmj.com/content/79/1/39
... See MoreSee Less

โ€ผ๏ธDespite a higher risk of infection in #SLE patients, vaccination rates are low due to:

๐Ÿ”นFear
๐Ÿ”นLack of trust
๐Ÿ”นFeeling of unsafety
๐Ÿ”นBelief in good health
๐Ÿ”นLack of recommendations by doctor

๐Ÿ’กLets #KickLupus by shedding light on the facts & debunking the misconceptions surrounding vaccinations for people with lupus. 

๐Œ๐ฒ๐ญ๐ก 1๏ธโƒฃ: Vaccines & lupus flares

One of the most common fears among #lupus patients is the possibility of vaccines causing a flare.

โœ… Prof. Arnaud states that the risk of flare after vaccination is not confirmed. Typically the benefits of vaccination outweigh any potential, small risks.

๐Œ๐ฒ๐ญ๐ก 2๏ธโƒฃ: People with lupus should avoid all vaccines

โœ… While some vaccines may not be recommended for people with lupus, many vaccines are safe and important.

Protecting against infections is key, as even minor illnesses could lead to complications in individuals with SLE.

๐Œ๐ฒ๐ญ๐ก 3๏ธโƒฃ: Lupus patients cant receive live vaccines

โœ… Live vaccines are not typically recommended for lupus patients. However, in certain circumstances, it may be appropriate for some people to get live vaccines.

It is crucial this is assessed on a case-by-case basis by your doctor.

๐Œ๐ฒ๐ญ๐ก 4๏ธโƒฃ: Vaccines worsen lupus symptoms

โœ… Vaccines dont worsen lupus symptoms. In fact, they help protect against infections, which could be more severe in lupus patients. 

๐Œ๐ฒ๐ญ๐ก 5๏ธโƒฃ: Lupus patients should only get vaccines if they are in remission

โœ… According to EULAR recommendations, vaccination in patients with lupus should preferably be administered during quiescent disease.

For patients with active disease, immunisation should not be ruled out & should be assessed on an individual basis. 

๐Œ๐ฒ๐ญ๐ก 6๏ธโƒฃ: One dose of the vaccine covers you for life

โœ… If you have lupus, your doctor should assess your vaccination status every year. That ensures vaccination strategies continue to be aligned with your needs & medical history.

Always consult with your doctor. They will tell you which vaccination schedule is safe & effective for you 

๐ŸŒ Help us #KickLupus by raising awareness of the importance of immunisation.

Check the EULAR recommendations for vaccination in adult patients with autoimmune inflammatory rheumatic diseases:

https://ard.bmj.com/content/79/1/39Image attachmentImage attachment+6Image attachment