All around the world, scientists, academics, Doctors are looking for better treatments for people living with lupus. The complexity of the disease makes this search difficult, but many promising tracks are pursued with thousands of patients involved in clinical trials. The research is taking place in locations all over the world, maybe also close to your home.

Whether you just have an intellectual interest for the topic and would like to see what research is taking place where, or would like to become personally involved by enrolling in a clinical trial, here are links that will help you find the most current information. Our search link will direct you either to Clinicaltrials.gov (the global database of all clinical trials around the world), or to antidote.match, a platform identifying, based on few questions, which clinical trials are taking place near your home  for your condition

Lupus Clinical Research all around the world

Reach directly the active lupus trials from clinical trials.gov and be amazed by the quantity of on going research

Systemic Lupus Clinical trials near your home

If you want to find a clinical trial near you and have SYSTEMIC Lupus Erythematosus

Lupus Nephritis Clinical trials near your home

If you want to find a clinical trial near you and have LUPUS NEPHRITIS (Kidneys affected by systemic lupus)

Cutaneous Lupus Clinical trials near your home

If you want to find a clinical trial near you and have CUTANEOUS Lupus erythematosus

We hope the above links will be of use to you. LUPUS EUROPE has done its best to avoid any commercial bias in the data presented using the above links. Making the decision to participate in a clinical trial is your personal choice, to be made together with your trusted doctor. If you want to know more about clinical trials, we recommend you click on the link below. This will take you to EUPATI’s “An Introduction to Clinical Research” page where you can watch a short video that explains the essentials of a clinical trial:

https://toolbox.eupati.eu/resources/an-introduction-to-clinical-research/ 

You can also watch the following video where Jeanette Andersen, Chair of Lupus Europe and EUPATI fellow, and Marta Mosca, Coordinator of the ERN ReCONNET and Associate Professor in Rheumatology at the University of Pisa, discuss lupus, how patients can contribute to research and clinical trials and much more:

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6 days ago
LUPUS EUROPE

Over two billion people live with over 3000 different dermatological conditions. Lupus is one of them. That is the reason we'd like your input in the Global Research on the Impact of Dermatological Diseases (GRIDD) project by International Alliance of Dermatology Patient Organizations - IADPO.

Taking part on this project is very easy! You will only need to take a short 10-15 min survey in English. The survey tests a new tool that measures the impact of your disease. Doing this will help measure and validate the very real and difficult challenges faced by dermatology patients globally.

You can find the survey and all the information about the project in this link: globalskin.org/research/about-phase-4
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Over two billion people live with over 3000 different dermatological conditions. Lupus is one of them. That is the reason wed like your input in the Global Research on the Impact of Dermatological Diseases (GRIDD) project by International Alliance of Dermatology Patient Organizations  - IADPO. 

Taking part on this project is very easy! You will only need to take a short 10-15 min survey in English. The survey tests a new tool that measures the impact of your disease. Doing this will help measure and validate the very real and difficult challenges faced by dermatology patients globally.

You can find the survey and all the information about the project in this link: https://globalskin.org/research/about-phase-4Image attachmentImage attachment
1 week ago
LUPUS EUROPE

Today is #WorldSclerodermaDay! 🌻

A day that brings together scleroderma communities from around the world to raise awareness and show solidarity with those facing the challenges of this rare, invisible and disabling disease. On this special day, we want to reaffirm that we're here to support you, encourage you and help you find the light bloom.

#BloomWithScleroderma today and always.

Read more about our campaign 👉
fesca-scleroderma.eu/wsd2022/?utm_source=facebook&utm_medium=facebook-feed&utm_campaign=organic-c...
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2 weeks ago
LUPUS EUROPE

LEAF is an online tool developed by Dr. Laurent Arnaud whose objective is to assess fatigue and give some personalised advice on how we could manage it.

Fatigue could be affected by stress, low sleep quality or pain. The LEAF questionnaire will assess your pain based on your responses regarding depression, pain, stress, anxiety and quality of sleep. Once the data is analyzed, LEAF will give you some hints that could help improve fatigue.

The questionnaire is in English, French and Spanish and the answers will help understand more about fatigue! You can do LEAF even if you don’t have an autoimmune disease.

iamfatigued.limequery.org/584745?lang=en
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LEAF is an online tool developed by Dr. Laurent Arnaud whose objective is to assess fatigue and give some personalised advice on how we could manage it. 

Fatigue could be affected by stress, low sleep quality or pain. The LEAF questionnaire will assess your pain based on your responses regarding depression, pain, stress, anxiety and quality of sleep. Once the data is analyzed, LEAF will give you some hints that could help improve fatigue. 

The questionnaire is in English, French and Spanish and the answers will help understand more about fatigue! You can do LEAF even if you don’t have an autoimmune disease.

https://iamfatigued.limequery.org/584745?lang=en

Comment on Facebook

This looks really interesting, thanks. Fatigue is probably the worst aspect of having Lupus. Anything that helps manage that has to be a bonus

Such an endeavour to struggle !

2 weeks ago
LUPUS EUROPE

The 33rd Lupus Europe Annual Convention was held in person and online this year! After a General Assembly this past Sunday and a Board Meeting yesterday we are very happy to present you with the new Board of Directors of Lupus Europe!

We would like to take this opportunity to also offer our sincere congratulations to our newest member of the Board, elected on Sunday! A warm welcome to new Board Member, Dalila Tremarias!
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The 33rd Lupus Europe Annual Convention was held in person and online this year! After a General Assembly this past Sunday and a Board Meeting yesterday we are very happy to present you with the new Board of Directors of Lupus Europe!

We would like to take this opportunity to also offer our sincere congratulations to our newest member of the Board, elected on Sunday! A warm welcome to new Board Member, Dalila Tremarias!

Comment on Facebook

Congratulations Dalila Tremarias! Over the moon for you. They’re lucky to have you on board. 💜 👏

Congratulations Dalila 💜

Well done Dalila - so proud of you xx

Well done all of you and thanks .I am amy somers mum

I'm so proud of you!@Amy Somers.miss you much x

Congrats Dalila!!👍😁

What an amazing group of lupies.

Congratulations ❤️

Felicidades dalila

Dalilavan harte gefeliciteerd

Felicitaciones

🌹🌹🌹👍👋👋👋👋

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