All around the world, scientists, academics, Doctors are looking for better treatments for people living with lupus. The complexity of the disease makes this search difficult, but many promising tracks are pursued with thousands of patients involved in clinical trials. The research is taking place in locations all over the world, maybe also close to your home.

Whether you just have an intellectual interest for the topic and would like to see what research is taking place where, or would like to become personally involved by enrolling in a clinical trial, here are links that will help you find the most current information. Our search link will direct you either to Clinicaltrials.gov (the global database of all clinical trials around the world), or to antidote.match, a platform identifying, based on few questions, which clinical trials are taking place near your home  for your condition

Lupus Clinical Research all around the world

Reach directly the active lupus trials from clinical trials.gov and be amazed by the quantity of on going research

Systemic Lupus Clinical trials near your home

If you want to find a clinical trial near you and have SYSTEMIC Lupus Erythematosus

Lupus Nephritis Clinical trials near your home

If you want to find a clinical trial near you and have LUPUS NEPHRITIS (Kidneys affected by systemic lupus)

Cutaneous Lupus Clinical trials near your home

If you want to find a clinical trial near you and have CUTANEOUS Lupus erythematosus

We hope the above links will be of use to you. LUPUS EUROPE has done its best to avoid any commercial bias in the data presented using the above links. Making the decision to participate in a clinical trial is your personal choice, to be made together with your trusted doctor. If you want to know more about clinical trials, we recommend you click on the link below. This will take you to EUPATI’s “An Introduction to Clinical Research” page where you can watch a short video that explains the essentials of a clinical trial:

https://toolbox.eupati.eu/resources/an-introduction-to-clinical-research/ 

You can also watch the following video where Jeanette Andersen, Chair of Lupus Europe and EUPATI fellow, and Marta Mosca, Coordinator of the ERN ReCONNET and Associate Professor in Rheumatology at the University of Pisa, discuss lupus, how patients can contribute to research and clinical trials and much more:

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☹️ Does joint pain affect your daily life? You are not alone.

💁‍♀️ According to Lupus Europe’s 2024 Swiss Knife Survey, joint pain and/or swelling were reported by 𝟳𝟮.𝟴% 𝗼𝗳 𝗽𝗲𝗼𝗽𝗹𝗲 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗦𝗟𝗘. It was also one of the symptoms 𝗺𝗼𝘀𝘁 𝗹𝗶𝗸𝗲𝗹𝘆 𝘁𝗼 𝘀𝘁𝗼𝗽 𝗽𝗲𝗼𝗽𝗹𝗲 𝗳𝗿𝗼𝗺 𝗹𝗶𝘃𝗶𝗻𝗴 𝗹𝗶𝗳𝗲 𝘁𝗼 𝘁𝗵𝗲 𝗳𝘂𝗹𝗹𝗲𝘀𝘁, reported by 44.6% of respondents.

🦋 #Lupus is a systemic autoimmune disease that can affect different parts of the body, including the joints.

💜 Today is World Aimmune Autoinflammatory Arthritis Day, also known as #AiArthritisDay.
It is a day to raise awareness of autoimmune and autoinflammatory diseases, such as lupus, that can involve joint inflammation.

❌ But lupus is not “just joint pain”.

‼️ Lupus can affect the whole body. That’s why it is important that symptoms such as pain, fatigue, swelling, stiffness, and their impact on daily life are discussed clearly during medical appointments.

💬 To help with these conversations, take a look at the 𝗟𝘂𝗽𝘂𝘀 𝗖𝗼𝗻𝘀𝘂𝗹𝘁𝗮𝘁𝗶𝗼𝗻 𝗖𝗮𝗿𝗱𝘀: a practical tool to help people living with lupus prepare for appointments and explain what matters most to them.

Inspired by NVLE and in collaboration with ERN RECONNET, these cards are available in 19 languages (more to come!).

📥 Download them here and make your consultation count: www.lupus-europe.org/lupus-consultation-cards/

#MakeItCount
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☹️ Does joint pa

🗨️ Lupus affects men, too! And its impact can be different from women’s, both physically and mentally.

‼️ From symptoms to how it is experienced and expressed, men living with lupus may face challenges that are not always recognised or addressed in consultation.

💁‍♂️ That's why we have created the Lupus Consultation Cards adapted for men: designed to help prepare for consultations, prioritise concerns, and make sure what matters most is addressed.

🌍 Available in 18 languages!
📥 Download for free and make your consultation count: www.lupus-europe.org/lupus-consultation-cards/

🟣 #MakeItCount
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😱 New tool for lupus!

✅ Lupus Europe proudly presents the Lupus Consultation Cards: a tool designed to help both patients and healthcare professionals structure consultations, prioritise what matters to patients, and support more focused discussions.

Because lupus is complex, and consultation time is limited.

✔️ Set your priorities
✔️ Organise your thoughts
✔️ Focus the conversation

🌍 Available in 18 languages
📥 Download for free or fill it in online: www.lupus-europe.org/lupus-consultation-cards/

🟣 #makeitcount
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🟪 Consultations don’t always leave enough time to cover everything that matters.

😩 Symptoms, concerns, and questions can quickly become overwhelming when living with lupus.

🍀 The Lupus Consultation Cards are designed to help you come prepared, prioritise what matters, and make the most of your time with your doctor.

✔️ Set your priorities
✔️ Organise your thoughts
✔️ Focus the conversation

🌍 Available in 18 languages
🔗 Download them for free: www.lupus-europe.org/lupus-consultation-cards/

🟣 Make your consultation count.
#MakeItCount
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