Alain CornetThe LUPUS EUROPE board met in Milan for a fruitful week-end of meetings from 9-11th of December. Several topics were on the agenda, including the very first preparations for the 2017 convention and mapping out the very busy 2017 calendar of events and work sessions. As well as the board (minus the wonderful Anne who was […]
Alain CornetThe Swedish Lupus group have sent us their report of the LUPUS EUROPE convention in Würzburg. It’s in Swedish – of course – but we thought it would be nice to share with you! Have you made a convention report for your group’s newsletter or magazine? If so we’d love to share it here too […]
Alain CornetToday, Tuesday, December 6th Chair Kirsten Lerstrøm, LUPUS EUROPE, was invited to address the European Parliament Interest Group on Rheumatic and Muscoskeletal Diseases (RMDs) on Patients’ Perspectives on Improving Access to Care and Therapies for People with Rare RMDs at the meeting of “Policy Issues and Challenges in the Treatment and Care of Rare Diseases”.
✅ #Rosacea versus #LUPUS ⬇️
Practical tips for distinguishing the 2 conditions 👍
🚨𝗗𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝗔𝗽𝗽𝗿𝗼𝗮𝗰𝗵𝗶𝗻𝗴 𝗙𝗮𝘀𝘁❗
Please take part in the Living With Lupus in 2024 survey.
🗣️ Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.
🧵Find the link for all 21 languages in this thread ⤵️
✅ Management of #glucocorticoids at the 4th advanced workshop on #Lupus by @SLEuroSociety by J Delgado Alves:
- Main mechanisms of action
- Optimal starting dose (organ- and severity driven)
- Tapering strategy (how fast/additional medications?)
- Stopping? (Yes/no/who?)
🔥 #SLE #lupus patients: Be part of the conversation. Let your voice be heard.
What is it like living with lupus?
Help @LupusEurope learn more about lupus patients so the rest of us know what you are going through
✅ Today is the start of the 4th @SLEuroSociety Advanced #Lupus #Workshop, an event created when I became President of the European Lupus Society. We bring together 30 lucky participants + an amazing faculty for 2 days of intensive & collective discussion of complex #SLE cases 👍
✍🏻Пройдіть опитування.
🔊Поділіться з вашою громадою.
👨🏼⚕Якщо ви медичний працівник і лікуєте пацієнтів з лупусом в Європі, ми були б дуже вдячні, якби ви поінформували своїх пацієнтів.
https://buff.ly/3xIyiBy
📣 One week left to register for our online EUPATI Essentials Training! 📣
Are you an industry, academia or consortium member wanting to enhance your knowledge on patient engagement?
🎯 Register now ▶️ https://bit.ly/4auAmen
#EUPATI #Essentials #OnlineTraining #RegisterToday
My absolute pleasure to work with @Lupusreference CC Mok and Talia for this nice review, prepared for the general medical community to better understand Dx challenge and Mx of SLE. Lots we can do to improve outcomes inc comorbidity burden! https://authors.elsevier.com/a/1ixq7V-4XOrME
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Doe mee aan de enquête.
🔊Deel met uw gemeenschap.
🙏 Help us and NVLE achieve more answers to ensure that the Dutch population is represented in the results
buff.ly/3xGBU6T
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Deltag i undersøgelsen.
🔊Del med dit fællesskab.
👨🏼⚕Hvis du er sundhedsprofessionel og behandler patienter med lupus i Europa, ville vi sætte stor pris på, at du informerer dine patienter.
🙏 Help us and Sle-Lupus- info achieve more answers to ensure that the Danish population is represented in the results
s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Dalyvaukite apklausoje.
🔊Dalinkitės savo bendruomenėje
👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.
🙏 Help us and Lupus Lt achieve more answers to ensure that the Lithuanian population is represented in the results
s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
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✍🏻Doe mee aan de enquête.
🔊Deel met uw gemeenschap.
👨🏼⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.
s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
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