Month: August 2015

Call for patients with cutaneous lupus

GSK is looking for patients with cutaneous lupus to share their experiences. For more details please click here.

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Lupus Europe Follow 4,177 2,829

Lupus Europe is the umbrella association of currently 29 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

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; EMEUNET @EMEUNET ·

29 Nov 1597470673982603264

💻 We want to explore the current landscape of social media by #rheumatology professionals:

How can we support global scientific exchange? Reduce disparity in educational opportunities online?

Take the survey now 👉 https://pulse.ly/fqmlxt7d95

#eularEMEUNET #EULAR #rheumatologist

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; Lupus Europe @LupusEurope ·

13h 1598364057580568582

Lupus patients are at high risk of infections due to #SLE & its treatments. In this great review, @DrMiniDey @ElenaNikiUK et al. compare infection frequency, site & type across immune-modulatory drugs. Great work and visual that will aid when prescribing! https://buff.ly/3VoiAST

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; The Lancet Rheumatology @TheLancetRheum ·

29 Nov 1597533234681856001

@MuhammadShipa @MikeEhrenstein @VersusArthritis @LUPUSUK Molecular signature-based decision making in the era of targeted therapies for systemic #lupus erythematosus

Linked Comment by @IoannisParodis https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(22)00358-7/fulltext

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; The Lancet Rheumatology @TheLancetRheum ·

29 Nov 1597531752955875329

NEW RESEARCH—In an exploratory analysis of the BEAT-LUPUS RCT @MuhammadShipa and colleagues examine biomarkers for response to B-cell-targeted therapies in systemic lupus erythematosus https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(22)00332-0/fulltext @MikeEhrenstein @VersusArthritis @LUPUSUK #OpenAccess

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; RDI @rarediseasesint ·

28 Nov 1597270582730506243

On #UHCDay📅Monday 12 December, join us to make #UHC for rare diseases a reality for the over 300 million PLWRD worldwide.
👉Register:https://bit.ly/UHCRARE

"UHC for rare diseases: Developing Key pillars together" with @UNHumanRights @CSOs4UHC @UHC2030 @FEDER_ONG @irdirc✨

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; Laurent ARNAUD @Lupusreference ·

30 Nov 1597841215055360003

✅ Oh that's cool, we've just been granted a special link for free and direct access to our @JAADjournals paper about the #history of systemic #lupus for the next 50 days 👍 The paper is not new but now is freely downloadable by everyone 😎
https://authors.elsevier.com/a/1gAGehQtRJfKE

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; EMEUNET @EMEUNET ·

29 Nov 1597516175608582145

Find out the latest #EMEUNETwhatisnew about #SLE or #ConnectiveTissueDiseases clinical research by @cristianasieiroat on our website

Read more 👉 https://emeunet.eular.org/sle_ctd.cfm

Do you have any cases of exposure to belimumab during pregnancy?

#EULAR #eularEMEUNET #rheumatology

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; Laurent ARNAUD @Lupusreference ·

29 Nov 1597523514508312576

✅ SAVE THE DATE for a #WEBINAR about #Lupus and #FATIGUE that we will organize for @ern_reconnet with @LouKawka on the 18th of January 2023 at 17:00 (CET) [which is 11:00 EST]. WE WILL PRESENT THE RESULTS OF THE #LEAF study about fatigue in #SLE 👍

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; Lupus Europe @LupusEurope ·

29 Nov 1597618638030344196

Anti-drug antibodies (ADA) can be produced after administration of biological therapies.
ADA to RTX are common in SLE patients & demonstrate neutralising capacity & associate with ⬇️circulating drug levels & earlier relapse.
Study by @chriswincup et al. https://buff.ly/3FcMwfm

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; ERN ReCONNET 🇪🇺 @ern_reconnet ·

28 Nov 1597213513252241411

We're very lucky that we will be co-organising with @eurordis this pilot "Team building training" with the partecipation of #ERN #ePAGs and WG chairs testing the training.

This will be a great opportunity to reinforce existing collaborations and improve how we work together.

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; Lupus Europe @LupusEurope ·

28 Nov 1597297528566796288

Do you know someone with lupus between 18-30 years old? Encourage him/her to get in touch with us! We might have exciting opportunities for those who are member of a lupus group in Europe!
Send an email to zoe@lupus-europe.org and don't miss this unique chance!

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; Lupus Europe @LupusEurope ·

28 Nov 1597271356508233728

As a patient, what are your preferred methods for getting health related information? Do you trust the information shared across social media? Read the results of the last published study by Francesca S Cardwell et al. in which we have taken part! https://buff.ly/3XGiebO

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; RDI @rarediseasesint ·

24 Nov 1595797765879209985

Children living with rare diseases overcome challenges throughout their #education. Help change this❗️Join RDI & @IBE_UNESCO for a discussion on #inclusive education.
🗓28 Nov, 14.00 (UCT+1)
👉Register: https://bit.ly/3GlP0cb
@eurordis @FlaminiaRdi @RareDiseases @GlobalGenes

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; Autoimmunity Network @autoimmunitymd ·

25 Nov 1596146404744896514

There are only a few weeks left to register for CORA 2023 and save up to € 215! Secure your spot today!

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; EAAD @EAAD_EU ·

24 Nov 1595811983433007107

#Antibiotics myth-busting time!
“I am in good health and rarely sick, I cannot become resistant to antibiotics”.

THIS IS (DOUBLE) FALSE!

Why? Watch our video and learn more!

Let's prevent #AntimicrobialResistance together!
#AMR #WAAW #WAAW2022 #EAAD
http://bit.ly/EAAD2022

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; Lupus Europe @LupusEurope ·

25 Nov 1596180163443703808

Proliferative lupus nephritis progresses to end-stage kidney disease in roughly 10% of the cases despite treatment. Persistent isolated C3 hypocomplementemia could be a strong predictor of end-stage kidney disease, according to this study in @KIReports

Persistent Isolated C3 Hypocomplementemia as a Strong Predictor of End-Stage Kidney Disease in Lupus Nephritis

Proliferative lupus nephritis (LN) progresses to end-stage kidney disease (ESKD) in roughly 10% of the cases despite treatment. Other than achieving

buff.ly

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; Lupus Europe @LupusEurope ·

25 Nov 1596102652017770496

Have we learnt how to better use glucocorticoids? If you are taking more that 5mg/day of corticoids, watch this video in which Dr. Ruiz-Irastorza, @equipo_eas, explains how this drug should be used. Stay tuned for more #LUPUS2022 sessions summary series!

70 Years Learning to Use Glucocorticoids

Watch a brief summary on 70 years of learning to use glucocorticoids by Professor Ruiz-Irastorza

buff.ly

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; Loreto Carmona 🖖 @carmona_loreto ·

24 Nov 1595696502881615873

’Towards a global strategy to improve musculoskeletal health’ report now available in 7 languages | Healthy Workplaces LIGHTEN THE LOAD 2020-22 https://tinyurl.com/2luzz7pn

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; Lupus Europe @LupusEurope ·

15 Jan 2021 1350105471508766720

#exercise is key for physical & #mentalhealth. In collaboration with PTs, we have developed an exercise program in 5 levels for people with #SLE ! This has been endorsed by leading EU lupologists & is now also recommended by
@eular_org Do take a look:

Me & Lupus - Lupus Europe

LUPUS EUROPE is the European umbrella organisation that brings together national lupus patient organisations from across...

www.lupus-europe.org

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; Seminars in Arthritis and Rheumatism @seminarthrheum ·

21 Nov 1594763323630755841

Article in press:

Are there benefit to regular physical activity in patients with #lupus?

Aerobic and resistance training programs had clear benefit and were well tolerated in stable disease in this systematic review.
@Lupusreference

https://www.sciencedirect.com/science/article/abs/pii/S0049017222001792

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LUPUS EUROPE

2 weeks ago

In Lupus Europe, we work hard to fulfil our mission. A very important part of that work is to not only be successful in the projects we undertake, but to have high standards and to work collaboratively with #lupus patients, our member organisations and also with lupologists!

This morning we had a medical roundtable meeting, where we had the opportunity to discuss our Strategic Plan for 2023-2028 with a team of incredible lupologists: Professors Arnaud, Houssiau, Limper, Mosca and Schneider gave us incredibly useful feedback today and we had a very productive meeting with them! ... See MoreSee Less

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LUPUS EUROPE

3 weeks ago

We are delighted to announce the start of our annual #KickLupus competition! Send your submission in the format of your choice (drawing/video/writing) & tell us:
How has volunteering for a #lupus organisation helped change your life?
Amazing prize to be announced soon! ... See MoreSee Less

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LUPUS EUROPE

3 weeks ago

LUPUS EUROPE • Newsletter • November 2022

Have you read our latest newsletter?
Read all about it by going to
mailchi.mp/lupus-europe.org/lupus-europe-newsletter-november2022 ... See MoreSee Less

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Защо не се превеждат статийте за лупус

LUPUS EUROPE

3 weeks ago

"Effective doctor-patient communication is crucial in building a successful therapeutic doctor-patient relationship". This will bring benefits for both doctors & patients and will have an impact on the clinical outcomes.

Learn more about patient-doctor relationship from Prof. Chiara Tani by watching this video and tell us:
How is your relationship with your doctor?
Do you think it helps with adherence and other aspects of your disease?

youtu.be/JUhIx2fjJ_c ... See MoreSee Less