Imprint
Lupus Europe
Rue d’Egmont 11,
1000 Bruxelles,
Belgium
Tel: +32 486 331 872
Lupus Europe is a Belgium based non-profit organisation (0758.650.658)
Lupus Europe
Rue d’Egmont 11,
1000 Bruxelles,
Belgium
Tel: +32 486 331 872
Lupus Europe is a Belgium based non-profit organisation (0758.650.658)
UV light could cause a flare➡️ it is advisable that patients avoid it.
Always wear 🌞protection when outdoors.
Even though skin manifestations may appear more frequently on the face, protective measures should be applied to all exposed areas
https://buff.ly/3vptgJ8
#WORDDAY2024
💊Apart from pharmacological treatment, other non-pharmacological measures can help in #lupus management.
🏃♀️Did you know exercise has been shown to improve SLE symptoms like #fatigue?
More at #Lupus100 https://buff.ly/3PnE8hD
Also, follow our exercise programme!
#WORDDAY2024
💜Today is #WORDDay2024 !
It is the occasion to deep into the journeys of young people facing #RheumaticDiseases. Hear their stories of struggles, challenges, and successes
➡️https://ern-rita.org/world-young-rheumatic-disease-day-word-day-2024/
#Lupus might sound scary at first, but the diagnosis doesn't mean your child will not be able to have a normal life.
Talk to your doctor about infection prevention & self-care measures.
Find reliable information on #Lupus100 http://www.lupus100.org in your language
#WORDDAY2024
🎙️ Tune in to our latest PAED podcast to raise awareness for #WORDDay2024!
Join us on a journey of understanding and empathy as we discuss the transition from childhood to adulthood for individuals RMDs.
👉https://pulse.ly/srzyskrp7p
#WORDDay2024 #RMDs
😰The moment your child is diagnosed may be overwhelming for you. This can go away with time & access to the✅ information like http://www.lupus100.org
Remember: it is impossible to learn everything about #lupus overnight! Your child's Dr is the best source of ℹ️
#WORDDAY2024
Today is World Young Rheumatic Diseases Day - an awareness day for young #Lupus, #MultipleSclerosis & #rheumatoidarthritis #patients❗️
Learn more about #3TR research into these disorders:
👉 https://www.3tr-imi.eu/research/diseases/chronic-autoimmune-diseases
About #WORDDay2024:
👉 https://wordday.org/
#SLE #MS #RA
Symptoms of #lupus in children are the same as in adults, including:
👉 Low grade fever for no apparent reason
👉 Fatigue
👉 Joint pain
👉 Butterfly rash
👉 Sores in the mouth or nose
👉 Weight loss
Raising awareness of the symptoms is key for an early diagnosis
#WORDDAY2024
🚨 Today is #WORDDay2024! which stands for WOrld Young Rheumatic Disease Day.
🌍 Through this global event we can spread the word that children and young people get rheumatic diseases like lupus too.
‼️ It is estimated that around 15-20% of #Lupus patients are children, although it is rare that a child develops lupus before 5 years of age.
As with adult patients, the cause of lupus remains unknown, and there is a great choice of treatments to keep the disease under control.
🔴 On average, it takes nearly 6 years for people with lupus to be diagnosed. This delay in diagnosis, and therefore in treatment, can have an impact on the prognosis and quality of life of patients; this includes kids.
😰 The moment your child gets a diagnosis might be overwhelming for you. This feeling of overwhelm can and does go away with time and with access to the right information.
👉 Remember: it is impossible to learn everything about #Lupus overnight! Your child's doctor is the best source of information.
Apart from pharmacological treatment, other non-pharmacological measures can also help in lupus management.
📷 Take a look at the images we are sharing today to learn about these non-pharmacological measures and share them with your community to help us raise awareness.
🐺 Lupus can seem scary at first. Remember that you are not alone and that you are going to do a great job!
Turn to your lupus association for support.
🤗 There are many organisations across Europe that can help you and your child cope with the disease.
More information on #SLE in children at #Lupus100: lupus100.org/en/questions/can-lupus-affect-children
For more information on #WORDDay2024 you can visit World Young Rheumatic Diseases Day - WORD Day
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🔴 Tomorrow is #WORDDAY2024!
🦋 And we will be sharing tips and information on how #lupus can affect children.
Help us raise awareness, which is key for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.
Share our posts and follow the World Young Rheumatic Diseases Day - WORD Day campaign.
More information on lupus in children at #Lupus100 (14 languages):
lupus100.org/en/questions/can-lupus-affect-children
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🔊 Raise global awareness about the significant impact of skin conditions like #Lupus and skin lupus.
🦋 Join the movement: It's about our Skin, but it's also about our lives 🌟📢 #NotJustMySkin buff.ly/3IFxcZC
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🔴 Although lupus nephritis remains one of the most serious complications for SLE patients, early diagnosis and adequate treatment make remission possible in many cases ✅.
🦋 Kidney disease is a silent illness. Getting to recognise its symptoms is key to getting an early diagnosis and preventing potential complications:
1️⃣ Urine changes (in frequency or colour)
2️⃣ Swelling in 🤲 🦶 🦵
3️⃣ Foamy urine
4️⃣ High blood pressure
Prevention is key! There are many ways to take care of your kidneys:
1️⃣ Have an active life 🚶♂️ 🏃♀️
2️⃣ Don't smoke 🚭
3️⃣ Have a healthy diet 🥗 🍏
4️⃣ Check & control your blood sugar & blood pressure
5️⃣ Take the appropriate fluid intake
6️⃣ Don't take NSAIDs regularly
#WorldKidneyDay
#KidneyHealthforAll
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Welcome to Lupus Europe. To join our pan-European community, please contact us.
Info Center: https://www.lupus-europe.org/me-lupus/lupus-europe-info-center/
Survey Center: https://www.lupus-europe.org/me-lupus/lupus-europe-survey-center/
Blog: https://www.lupus-europe.org/blog/
Videos: https://www.lupus-europe.org/videos-on-demand/
Facebook: https://www.facebook.com/LupusEurope
Twitter: https://twitter.com/LupusEurope