Alain CornetDear Members, You might have received a mail from PatientView, seeking input to their study on the corporate reputation of the pharmaceutical industry in 2015— from the perspective of patient groups. We also know that some of you have not received it, and would be interested in taking part. We therefore relay the information so […]
Alain CornetOur first patient stories have arrived in our inbox. What a treat to read and something we look forward to sharing with you all in the near future. We are still looking for further contributions so, if you’re wondering what to do with all that spare time over the holidays (and beyond), don’t worry, the […]
Alain CornetInput is being sought from European Patients’ Forum members on the Patient Empowerment Charter. The deadline for feedback is 10th January 2016. For more information please click here. The European Patients’ Forum has also put together its draft position paper on Cross Border Healthcare. Feedback is invited from member groups. More information here.
Alain CornetThe final dates have been set for the Patient Panel. The Patient Panel is seeking participants and will take place in Brussels from March 11-13th 2016. This is a rare and unique opportunity for patients to participate in a truly worthwhile experience. All costs, travel, accommodation and meals are reimbursed. For further information, please click […]
Alain CornetLupuzorTM enters phase III Press release from the CNRS Paris, 15 December 2015 LupuzorTM may become the first specific and non-immunosuppressant therapy for lupus, a disabling autoimmune disease that is currently incurable. Discovered by Sylviane Muller’s team in the CNRS Immunopathologie et Chimie Thérapeutique laboratory, in Strasbourg, this peptide is the subject of a CNRS […]
Alain CornetA UNIQUE OPPORTUNITY to meet people living with lupus from around Europe LUPUS EUROPE is looking for people interested in participating in its 2016 Patient panel which will address the burden of living with lupus, with a particular focus on treatment day after day. The questions discussed by the group will cover the realities […]
🤔 What can kidney biopsies really tell us in lupus nephritis?
👨⚕️Prof Rovin explains why biopsy is key for diagnosis & treatment, & how research may help us get even more information from it in the future.
Watch the first video of our #ELM2026 playlist! https://youtu.be/nyw0Ug-Uap0?si=2z1V0WfUnAkJlHnf
🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.
😔 30% of the global population is not able to access essential health services.
#StandWithScience #WorldHealthDay
Science works better together. 🔬
On #WorldHealthDay, #3TR celebrates the power of collaboration. By working across academia, pharma and patients we aim to better understand response and non-response to therapy and make personalised treatment a reality.💡
#StandWithScience #IHI
🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.
🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.
In the meantime, for reliable, multilingual lupus information👉 https://lupus100.org/
💜Thanks for your support!
🎥 Missed our @SLEuroSociety #ELM2026 Recap Webinar?
🤩 Watch it now!
https://www.youtube.com/watch?v=Bw5Iptu-ZNc
🌟 PAN members share key takeaways, and experts explain the latest on lupus in short, patient-friendly videos.
More coming soon!
So proud to see #LupusGPT published in @TheLancetRheum
Huge credit to @LupusEurope Europe for leading such an inspiring, patient-driven initiative 👏
A privilege to contribute to this work 💜
🔗
LupusGPT: an AI-driven information model for patients with systemic lupus erythematosus
Systemic lupus erythematosus (SLE) is a chronic autoimmune multisystem disease affecting more than 300 000 people in ...
www.thelancet.com
✅ Now that #LupusGPT is published in the Lancet #Rheumatology (LINK: https://doi.org/10.1016/s2665-9913(25)00370-4), I wonder whether you have previously tested the app itself. Ask it anything about #lupus, in any language and tell me what you think: https://www.lupusgpt.org/
✅ Happy to share that we have just published #LupusGPT... in the Lancet #Rheumatology 👍
Check the post below by @LupusEurope for the link 🔓
🤔 What can kidney biopsies really tell us in lupus nephritis?
🔬 Kidney biopsy is a key tool in the diagnosis and management of lupus nephritis. It helps doctors understand what is happening in the kidneys and guides treatment decisions.
But… could it tell us even more?
📽️ In this short video, Prof. Brad Rovin explains how ongoing research is exploring new ways to get deeper and more precise information from kidney biopsies with the goal of improving how lupus nephritis is monitored and treated.
👉 Watch here: youtu.be/nyw0Ug-Uap0?si=gOF2F_AzaL_R-4tC
Don't miss out and visit the #ELM2026 playlist with all videos in the "Video on Demand" section of our website!
Explore Our Videos On Demand: A Window Into Lupus - Lupus Europe
www.lupus-europe.org
LUPUS EUROPE is the European umbrella organisation that brings together national lupus patient organisations from across Europe. We are a non profit independent organisation. We aim to support and emp...0 CommentsComment on Facebook
🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.
😔 30% of the global population is not able to access essential health services.
#StandWithScience #WorldHealthDay #WHD2026
0 CommentsComment on Facebook
🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.
🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.
In the meantime, for reliable, multilingual lupus information👉 lupus100.org/
💜Thanks for your support!
0 CommentsComment on Facebook
🎥 Did you miss our ELM 2026 Recap Webinar?
😃 Watch it now on our YouTube channel!
👉 Our Patient Advisory Network (PAN) members and volunteers share their key takeaways from the European Lupus Meeting 2026.
👉 Doctors and researchers explain, in a clear, short, and patient-friendly way, key messages from their talks.
🎯 Click the link below and discover the latest advances in lupus, explained directly by experts:
www.youtube.com/watch?v=Bw5Iptu-ZNc
More insights from #elm2026 coming soon. Stay tuned!
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