Patient View Survey

Dear Members, You might have received a mail from PatientView, seeking input to their study on the corporate reputation of the pharmaceutical industry in 2015— from the perspective of patient groups. We also know that some of you have not received it, and would be interested in taking part. We therefore relay the information so […]

Patient stories…

Our first patient stories have arrived in our inbox. What a treat to read and something we look forward to sharing with you all in the near future. We are still looking for further contributions so, if you’re wondering what to do with all that spare time over the holidays (and beyond), don’t worry, the […]

EPF news

Input is being sought from European Patients’ Forum members on the Patient Empowerment Charter. The deadline for feedback is 10th January 2016. For more information please click here. The European Patients’ Forum has also put together its draft position paper on Cross Border Healthcare. Feedback is invited from member groups. More information here.    

Patient Panel dates set

The final dates have been set for the Patient Panel. The Patient Panel is seeking participants and will take place in Brussels from March 11-13th 2016. This is a rare and unique opportunity for patients to participate in a truly worthwhile experience. All costs, travel, accommodation and meals are reimbursed. For further information, please click […]

LupuzorTM enters phase III

LupuzorTM enters phase III Press release from the CNRS Paris, 15 December 2015 LupuzorTM may become the first specific and non-immunosuppressant therapy for lupus, a disabling autoimmune disease that is currently incurable. Discovered by Sylviane Muller’s team in the CNRS Immunopathologie et Chimie Thérapeutique laboratory, in Strasbourg, this peptide is the subject of a CNRS […]

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🦋 Living with lupus can feel overwhelming when you're trying to sift through an ocean of information that may or may not be reliable.

🥵 Are you tired of endless searches?
😵‍💫 Do you feel overwhelmed by medical jargon?

🙌 It’s time to try #LupusGPT! Our AI-driven tool is designed to cut through the noise, providing you with trusted, doctor/patient-validated information.

💫 Whether you're a newly diagnosed patient, a long-term one, or a caregiver, #LupusGPT offers the support and knowledge you need to make informed health decisions alongside the invaluable support and guidance of your medical team.

🌍 Plus, with availability in multiple languages, #LupusGPT ensures that high-quality lupus information is accessible to everyone, no matter where you are or what language you speak.

Visit s.mtrbio.com/dkbhqzgrrd now and share this post to help us spread the word. Help us empower more individuals to gain control over their lupus management!
... See MoreSee Less

🦋 Living with lupus can feel overwhelming when youre trying to sift through an ocean of information that may or may not be reliable.

🥵 Are you tired of endless searches?
😵‍💫 Do you feel overwhelmed by medical jargon?

🙌 It’s time to try #LupusGPT! Our AI-driven tool is designed to cut through the noise, providing you with trusted, doctor/patient-validated information.

💫 Whether youre a newly diagnosed patient, a long-term one, or a caregiver, #LupusGPT offers the support and knowledge you need to make informed health decisions alongside the invaluable support and guidance of your medical team.

🌍 Plus, with availability in multiple languages, #LupusGPT ensures that high-quality lupus information is accessible to everyone, no matter where you are or what language you speak.

Visit https://s.mtrbio.com/dkbhqzgrrd now and share this post to help us spread the word. Help us empower more individuals to gain control over their lupus management!
5 days ago

⁉️ Do you want to know more about diet & #lupus?

✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language.

🔊 Whether you're looking for tips on living with lupus, treatment options, or understanding lupus better, this website has it all. Plus, it's available in multiple European languages! Making it accessible to a wider audience.

Check it out now! ⬇️

lupus100.org/en/questions/should-we-follow-a-special-diet-in-lupus

🇩🇰 lupus100.org/da/questions/should-we-follow-a-special-diet-in-lupus
🇩🇪 lupus100.org/de/questions/should-we-follow-a-special-diet-in-lupus
🇪🇸 lupus100.org/es/questions/should-we-follow-a-special-diet-in-lupus
🇬🇷 lupus100.org/el/questions/should-we-follow-a-special-diet-in-lupus
🇫🇷 www.rhumatismes.net/index.php?id_q=854
🇮🇹 lupus100.org/it/questions/should-we-follow-a-special-diet-in-lupus
🇱🇹 lupus100.org/lt/questions/should-we-follow-a-special-diet-in-lupus
🇳🇱 lupus100.org/nl/questions/should-we-follow-a-special-diet-in-lupus
🇵🇹 lupus100.org/pt/questions/should-we-follow-a-special-diet-in-lupus
🇷🇴 lupus100.org/ro/questions/should-we-follow-a-special-diet-in-lupus
🇫🇮 lupus100.org/fi/questions/should-we-follow-a-special-diet-in-lupus
🇺🇦 lupus100.org/uk/questions/should-we-follow-a-special-diet-in-lupus
🇷🇺 lupus100.org/ru/questions/should-we-follow-a-special-diet-in-lupus
Catalan: lupus100.org/ca/questions/should-we-follow-a-special-diet-in-lupus
... See MoreSee Less

⁉️ Do you want to know more about diet & #lupus?

✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language.

🔊 Whether youre looking for tips on living with lupus, treatment options, or understanding lupus better, this website has it all. Plus, its available in multiple European languages! Making it accessible to a wider audience.

Check it out now! ⬇️

https://lupus100.org/en/questions/should-we-follow-a-special-diet-in-lupus

🇩🇰 https://lupus100.org/da/questions/should-we-follow-a-special-diet-in-lupus
🇩🇪 https://lupus100.org/de/questions/should-we-follow-a-special-diet-in-lupus
🇪🇸 https://lupus100.org/es/questions/should-we-follow-a-special-diet-in-lupus
🇬🇷 https://lupus100.org/el/questions/should-we-follow-a-special-diet-in-lupus
🇫🇷 https://www.rhumatismes.net/index.php?id_q=854
🇮🇹 https://lupus100.org/it/questions/should-we-follow-a-special-diet-in-lupus
🇱🇹 https://lupus100.org/lt/questions/should-we-follow-a-special-diet-in-lupus
🇳🇱 https://lupus100.org/nl/questions/should-we-follow-a-special-diet-in-lupus
🇵🇹 https://lupus100.org/pt/questions/should-we-follow-a-special-diet-in-lupus
🇷🇴 https://lupus100.org/ro/questions/should-we-follow-a-special-diet-in-lupus
🇫🇮 https://lupus100.org/fi/questions/should-we-follow-a-special-diet-in-lupus
🇺🇦 https://lupus100.org/uk/questions/should-we-follow-a-special-diet-in-lupus
🇷🇺 https://lupus100.org/ru/questions/should-we-follow-a-special-diet-in-lupus
Catalan: https://lupus100.org/ca/questions/should-we-follow-a-special-diet-in-lupus
6 days ago

✅ Yes! As many of you guessed, the January theme of the #kicklupus campaign is... diet! One of the New Year's resolutions that is among the most commonly chosen by people every year.

🤓 Did you know that a well-balanced diet plays an essential role in the holistic approach to #lupus management🦋? It also helps support overall health and well-being.

🥦 From incorporating the Mediterranean diet🐟 to staying hydrated💧, small dietary changes can greatly impact the lives of those with lupus.

💪 Let's make this a year of health: join us in this challenge!

📸 Share your journey and tips and tricks towards a healthier diet using the hashtag and inspire others to make positive changes too.
... See MoreSee Less

✅ Yes! As many of you guessed, the January theme of the #KickLupus campaign is... diet! One of the New Years resolutions that is among the most commonly chosen by people every year.

🤓 Did you know that a well-balanced diet plays an essential role in the holistic approach to #lupus management🦋? It also helps support overall health and well-being.

🥦 From incorporating the Mediterranean diet🐟 to staying hydrated💧, small dietary changes can greatly impact the lives of those with lupus.

💪 Lets make this a year of health: join us in this challenge!

📸 Share your journey and tips and tricks towards a healthier diet using the hashtag and inspire others to make positive changes too.
1 week ago

🛠️ We are currently performing maintenance to enhance your experience with #LupusGPT.

✅ Adjustments & updates are normal and expected.

We appreciate your understanding & support as we fine-tune our tool to better meet your needs.
... See MoreSee Less

🛠️ We are currently performing maintenance to enhance your experience with #LupusGPT.

✅ Adjustments & updates are normal and expected.

We appreciate your understanding & support as we fine-tune our tool to better meet your needs.

1 CommentComment on Facebook

I come from a Pacific Island nation called Papua New Guinea. My country shares borders with Indonesia, Australia, and the Solomon Islands. I usually search on YouTube for interesting documentaries. Whilst looking up YouTube videos, I came across a documentary on people who suffer from SLE Lupus disease and their real treatment from www. multivitamincare .org. I had never heard of this crippling and debilitating disease affecting a lot of American Europeans. It is very tortuous to watch and hear patients who suffer. It is more like a combination of various diseases all put into one. Like a person who has suffered a stroke, plus someone suddenly becoming paralyzed, Parkinson's disease, COPD, ALS, cancer, etc., but I also get to understand that there has been a successful cure for this disease from www. multivitamin care. org It is too much for a patient to endure, such as they slowly begin to pass away if the right medication is not taken . Having a positive mind is a powerful tool . My prayers go out to Lupus patients and their caregivers.