Alain CornetInput is being sought from European Patients’ Forum members on the Patient Empowerment Charter. The deadline for feedback is 10th January 2016. For more information please click here.
The European Patients’ Forum has also put together its draft position paper on Cross Border Healthcare. Feedback is invited from member groups. More information here.
You can still register for the "#EULAR2023 Debrief–for people living with #lupus" webinar that we have organised with @ern_reconnet‼️
With Prf @Lupusreference & our Chair @Jeanette_Lupus
Today at 19.30 CEST
Register➡️ secretariat@lupus-europe.org
🚨Registration compulsory🚨
Thanks to @LupusEurope for letting me live this great experience at #EULAR2023 and get to see my Lupus Europe family again!
Volunteering is the greatest thing ever! And I am so proud to be part of this organisation 🙌🏻🙌🏻
Don’t miss this unique opportunity and register now for this webinar that we have organised with @ern_reconnet and that will take place tomorrow!
Send an e-mail now to secretariat@lupus-europe.org.
📣@ern_reconnet shares the #webinar done together with @LupusEurope
Speakers will be Prof @Lupusreference n @Jeanette_Lupus on "#EULAR2023 Debrief – for people living with #lupus"
🗓️May 7th at 19.30 CEST
Register at: secretariat@lupus-europe.org
Link: http://bit.ly/45QGmMS
One of our PAN members explains to the Italian #lupus community what is #Lupus100 and what it can offer: high-quality and reliable information about #lupus in a patient-friendly language!
At the moment, available in 🇬🇧 🇩🇰 🇩🇪 🇪🇸 🇬🇷 🇫🇷 🇮🇹 🇳🇱 🇷🇴 🇫🇮 🇺🇦.
https://lupus100.org/
The #EULAR #lupus task force has made a big effort to update the current guidelines for management of #SLE. Prof D. Boumpas has highlighted in #EULAR2023 that the new guidelines will be applicable to all international #rheumatology communities. See below:
#EULAR2023 #SLEuroLottery #Bruges2024
Last few hours to come meet us at the SLEuro booth and try to win a free registration for the 14th European Lupus Meeting in Bruges!
You can participate in the lottery if you register as a SLEuro member or if you bring a new one.
Rumours, unchecked data, unconfirmed research... all contribute to confusion➕anxiety in patients, which can lead to 👎 decisions.
#Lupus100 aims to change this by providing ℹ️ & education about #lupus in their native language
👀 @eular_org press release
https://buff.ly/43nakXc
✈️ We hope you enjoyed your onsite congress experience in Milan!
📑Download your Certificate of Attendance today and receive accreditation for #EULAR2023!
👉https://account-congress.eular.org/Home/Index/Account
#EULAR #Rheumatology
Thank you Martijn, for your question! We will ensure your question is raised 🙂
Thank you for following this joint Lupus Europe / ERN ReCONNET webinar! If you have any questions for the speakers, please post them here and we will ensure they are raised! 😃
Hi from Corfu thank you for this it was really helpful!!!
I am curious about diet and microbiome as well. I think the topic is very much understudied and not good understood - but has great influence.
There are huge differences!
Are there possibility’s with food to have remission
There were only young people for the treatment with Car-T cells In am nog young any more. Is ther hope for me?
Only on my phone de zoom started. I do not know why
Metty Staal volgt
What is there to expect the coming years. I mean mean in treatments?
Thank you very much professor Arnoud
Our joint webinar with ERN RECONNET is also going on Facebook Live!
If you have not been able to register, go to our Facebook Page and enjoy "#EULAR2023 Debrief–for people living with #lupus".
1 hour to go! 😃
www.facebook.com/LupusEurope
🚨Don't miss our webinar today🚨
Along with ERN RECONNET, we have organised this "#EULAR2023 Debrief–for people living with #lupus" webinar with speakers Prof. Laurent Arnaud and our Chair, Jeanette Andersen.
Today at 19.30 CEST (i.e. Paris time).
Register by sending an email to secretariat@lupus-europe.org now!
This is the link to the webinar: us02web.zoom.us/postattendee?mn=M427EvtnmvHdk0JAHWvzvFfSLI8DNl0Dwz8Q.UQk33isEc4kWzlqy
𝗛𝗼𝘄𝗲𝘃𝗲𝗿, 𝘆𝗼𝘂 𝘄𝗶𝗹𝗹 𝗻𝗼𝘁 𝗯𝗲 𝗮𝗱𝗺𝗶𝘁𝘁𝗲𝗱 𝘁𝗼 𝘁𝗵𝗲 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝘂𝗻𝗹𝗲𝘀𝘀 𝗿𝗲𝗴𝗶𝘀𝘁𝗲𝗿𝗲𝗱.
Registration is compulsory.
Not succeeding to send an email for registration. I would like to participate. Thanks
Bonjour, en quelle langue sera la webinaire s'il vous plaît
Joy and happiness is all i see around ever since i came in contact with this great man. i complained bitterly to him about me having herpes only for him to tell me it’s a minor stuff. He told me he has cured thousands of people but i did not believe until he sent me the herbal medicine and i took it as instructed by this great man, only to go to the hospital after two weeks for another test and i was confirmed negative. For the first time in four years i was getting that result. i want to use this medium to thank this great man. His name is Dr aziegbe, i came in contact with his email through a friend in UK and ever since then my live has been full with laughter and great peace of mind. i urge you all with herpes or HSV to contact him if you willing to give him a chance. you can contact him through this email DRAZIEGBE1SPELLHOME@GMAIL .COM He also cured my friend with HIV and ever since then i strongly believe he can do all things. Don't be deceived thinking he does not work, i believe if you can get in contact with this man all your troubles will be over. i have done my part in spreading the good news. Contact him through his email and you will be the next to testify of his great work. web.facebook.com/Herpes-std-cure-dr-aziegbe-herbal-cure-103360314788997/
One of our PAN members explains to the Italian lupus community what is #Lupus100 and what it can offer: high-quality and reliable information about #lupus in a patient-friendly language!
At the moment, available in 🇬🇧 🇩🇰 🇩🇪 🇪🇸 🇬🇷 🇫🇷 🇮🇹 🇳🇱 🇷🇴 🇫🇮 🇺🇦.
More languages to come soon! Stay tuned, and don't miss it!
lupus100.org/
Grazie
💜💜💜
