Month: June 2019

HELP US COLLECT VALUABLE DATA FROM PEOPLE LIVING WITH LUPUS

Alain Cornet
Posted on June 2, 2019
CategoriesUncategorized
2 Comments on HELP US COLLECT VALUABLE DATA FROM PEOPLE LIVING WITH LUPUS

As part of its cooperation with the ERN ReCONNET, Lupus Europe is launching an important survey, which we would like to ask you to disseminate as largely as you can to people actually living with lupus. We have made the effort of providing 13 different languages, and are open to adding new ones, so we hope […]

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Lupus Europe is the umbrella association of currently 32 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

Lupus Europe @LupusEurope ·

14 Apr 2044099146236248146

🤔 What can kidney biopsies really tell us in lupus nephritis?

👨‍⚕️Prof Rovin explains why biopsy is key for diagnosis & treatment, & how research may help us get even more information from it in the future.

Watch the first video of our #ELM2026 playlist! https://youtu.be/nyw0Ug-Uap0?si=2z1V0WfUnAkJlHnf

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Lupus Europe @LupusEurope ·

7 Apr 2041584745511862691

🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.

😔 30% of the global population is not able to access essential health services.

#StandWithScience #WorldHealthDay

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3TR-IMI @3TR_IMI ·

7 Apr 2041440857933381792

Science works better together. 🔬

On #WorldHealthDay, #3TR celebrates the power of collaboration. By working across academia, pharma and patients we aim to better understand response and non-response to therapy and make personalised treatment a reality.💡

#StandWithScience #IHI

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Lupus Europe @LupusEurope ·

2 Apr 2039777151256338894

🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.

🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.

In the meantime, for reliable, multilingual lupus information👉 https://lupus100.org/

💜Thanks for your support!

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Lupus Europe @LupusEurope ·

30 Mar 2038663629218763213

🎥 Missed our @SLEuroSociety #ELM2026 Recap Webinar?

🤩 Watch it now!

https://www.youtube.com/watch?v=Bw5Iptu-ZNc

🌟 PAN members share key takeaways, and experts explain the latest on lupus in short, patient-friendly videos.

More coming soon!

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Cristiana Sieiro Santos @cristianasieiro ·

27 Mar 2037494401128095813

So proud to see #LupusGPT published in @TheLancetRheum

Huge credit to @LupusEurope Europe for leading such an inspiring, patient-driven initiative 👏

A privilege to contribute to this work 💜
🔗

LupusGPT: an AI-driven information model for patients with systemic lupus erythematosus

Systemic lupus erythematosus (SLE) is a chronic autoimmune multisystem disease affecting more than 300 000 people in ...

www.thelancet.com

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Laurent ARNAUD @Lupusreference ·

27 Mar 2037441254292644265

✅ Now that #LupusGPT is published in the Lancet #Rheumatology (LINK: https://doi.org/10.1016/s2665-9913(25)00370-4), I wonder whether you have previously tested the app itself. Ask it anything about #lupus, in any language and tell me what you think: https://www.lupusgpt.org/

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Laurent ARNAUD @Lupusreference ·

26 Mar 2037152697644618179

✅ Happy to share that we have just published #LupusGPT... in the Lancet #Rheumatology 👍
Check the post below by @LupusEurope for the link 🔓

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LUPUS EUROPE

4 days ago

🤔 What can kidney biopsies really tell us in lupus nephritis?

🔬 Kidney biopsy is a key tool in the diagnosis and management of lupus nephritis. It helps doctors understand what is happening in the kidneys and guides treatment decisions.

But… could it tell us even more?

📽️ In this short video, Prof. Brad Rovin explains how ongoing research is exploring new ways to get deeper and more precise information from kidney biopsies with the goal of improving how lupus nephritis is monitored and treated.

👉 Watch here: youtu.be/nyw0Ug-Uap0?si=gOF2F_AzaL_R-4tC

Don't miss out and visit the #ELM2026 playlist with all videos in the "Video on Demand" section of our website! ... See MoreSee Less

Explore Our Videos On Demand: A Window Into Lupus - Lupus Europe

www.lupus-europe.org

LUPUS EUROPE is the European umbrella organisation that brings together national lupus patient organisations from across Europe. We are a non profit independent organisation. We aim to support and emp...

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2 weeks ago

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LUPUS EUROPE

2 weeks ago

🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.

🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.

In the meantime, for reliable, multilingual lupus information👉 lupus100.org/

💜Thanks for your support! ... See MoreSee Less

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LUPUS EUROPE

3 weeks ago

🎥 Did you miss our ELM 2026 Recap Webinar?

😃 Watch it now on our YouTube channel!

👉 Our Patient Advisory Network (PAN) members and volunteers share their key takeaways from the European Lupus Meeting 2026.

👉 Doctors and researchers explain, in a clear, short, and patient-friendly way, key messages from their talks.

🎯 Click the link below and discover the latest advances in lupus, explained directly by experts:

www.youtube.com/watch?v=Bw5Iptu-ZNc

More insights from #elm2026 coming soon. Stay tuned! ... See MoreSee Less

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