Alain CornetSince Hydroxychloroquine (HcQ) has been regularly mentioned in media as a potential medication in the fight against COVID, the number of patients highlighting unavailability issues increased substantially. With the help of its members, LUPUS EUROPE initiated a survey amongst patients to obtain broad based feedback on the magnitude and impact of the issue. Results covering […]
Alain CornetOver the past weeks, LUPUS EUROPE and several of its members have worked to improve availability of Hydroxychloroquine for people with lupus in Europe, as speculations on its possible use for COVID treatment have resulted in an increased (off-label) demand. Our objective is that all patients with a chronic condition requiring Hydroxychloroquine have access, if […]
✅ Today, focus 🔎 on the 4th #EULAR #recommendation for #Lupus 🐺 As you can see:
➡️ CYC is suggested for severe (organ/life-threatening) forms 🔥
➡️ #RITUXIMAB is recommended for REFRACTORY disease 💪 but I know that for MANY of you 🌏🌎🌍 RTX is the ONLY biologic available 😢
🔴 People with #lupus are twice as likely to develop cardiovascular disease as healthy people.
👀 Learn more about CV risk management in RMDs with the @eular_org recommendations by @SavinoSciascia @Lupusdoc @ramos_casals et al.➡️ ➡️ https://buff.ly/46nDCWT
#WorldHeartDay
🌺Thank you for your active participation & enthusiasm, which has made our webinar exceptional.
We hope that Dr. Bosch has provided valuable knowledge & shed some light on the incredible possibilities technology can bring to healthcare.
Stay tuned! More webinars to come soon!
‼️ Exercise is not only fundamental to general health but especially vital for individuals facing RMDs like #lupus.
➡️ According to the @WHO, physical inactivity is a significant global health risk, underlining the importance of staying active for overall well-being.
#KickLupus
✅ Do you REMEMBER the #PHOTOLUP Study 🌞 about #photosensitivity in #Lupus? I'm VERY HAPPY to report that the paper has been ACCEPTED in a very good journal 👍 Thanks to ALL of you with lupus who have contributed 🙏 and of course we will soon show the detailed results 👌
🚨 Only one day left!
🌟 Join our Webinar on digital health! 🌟
⏲️ Time is running out!
📧 Email: secretariat@lupus-europe.org and secure your spot!
✅ Engage with Dr. Philipp Bosch.
✅ Explore tech's potential in healthcare.
🗓️ Sep 28 (tomorrow!)
🕗 20:00 CET
✅ In line with the new #EULAR recommendations, #hydroxychloroquine is recommended for all with #lupus (unless contraindicated). If you haven't done so yet, have a look 👀 at our Editorial in @TheLancetRheum ⬇️ regarding #EMA concerns about the potential teratogenicity of #HCQ
‼️Lupus can have an impact on mental health.
🚶♀️Exercise can help #KickLupus by managing stress, anxiety & depression.
It can be a good aid in promoting relaxation & ⬇️ stress, offering a positive coping outlet.
Remember: #MentalHealth is important. Talk to your doctor about it
🔴 People with #lupus are twice as likely to develop cardiovascular disease as healthy people.
👀 Learn more about cardiovascular risk management in rheumatic and musculoskeletal diseases (RMDs) with the EULAR recommendations ➡️ ➡️ buff.ly/46nDCWT
🔴 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗶𝘀 𝗸𝗲𝘆 in RMDs Like #lupus.
1️⃣ Always talk to your physician about preventive measures.
2️⃣ Work to minimise risk factors ⤵️
- Don't smoke🚭
- Practise exercise🏃♂️
- Have a healthy diet🍏
#WorldHeartDay
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🌺Thank you for your active participation & enthusiasm, which has made our webinar truly exceptional.
We hope that Dr. Bosch has provided valuable knowledge & shed some light on the incredible possibilities technology can bring to healthcare.
Stay tuned! More webinars to come soon!
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If you have any questions or any points you would like to raise, please feel free to do so here! 😃
Only one day left for the great day!
🌟 Don't miss our webinar on digital health & patient care! 🌟
⏲️ Time is running out to secure your spot at our transformative webinar.
💻 In this rapidly evolving healthcare landscape, digital health is the way forward, and we want you to be at the forefront of this revolution.
Here's a glimpse of what awaits you:
✅ Engage in enriching discussions led by the esteemed Dr. Philipp Bosch.
✅ Explore the boundless potential of technology in advancing healthcare.
🗓️ Date: September 28th (tomorrow!).
🕗 Time: 20:00 CET.
This is your opportunity to be part of a digital health revolution that's shaping the future of patient care.
Join us and empower yourself with the knowledge that can transform lives! 📱🏥
The webinar will also be streamed live on Facebook. 🎥
Secure your spot now by registering:
📧 Email: secretariat@lupus-europe.org
If you have registered for Zoom already, please ensure you attend via Zoom 🤗.
See you at the webinar!
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