Alain CornetSince Hydroxychloroquine (HcQ) has been regularly mentioned in media as a potential medication in the fight against COVID, the number of patients highlighting unavailability issues increased substantially. With the help of its members, LUPUS EUROPE initiated a survey amongst patients to obtain broad based feedback on the magnitude and impact of the issue. Results covering […]
Alain CornetOver the past weeks, LUPUS EUROPE and several of its members have worked to improve availability of Hydroxychloroquine for people with lupus in Europe, as speculations on its possible use for COVID treatment have resulted in an increased (off-label) demand. Our objective is that all patients with a chronic condition requiring Hydroxychloroquine have access, if […]
#EULARAdvocacy echoes the need to strengthen #Rehabilitation services and will do whatever is on our hands. Together we will push for better access and quality of #nursing #physiotherapy #occupationalTherapy #psychology for people with rheumatic diseases
.@AlarcosC explains why rehabilitation services need to be a part of universal health coverage.
She also talks about the landmark resolution on strengthening rehabilitation in health systems during #WHA76.
#Rehabilitation is a set of interventions needed for those who experience or are likely to experience limitations in everyday functioning due to ageing or a health condition, incl chronic diseases or disorders, injuries or traumas http://bit.ly/2xC1qrG
2023 SLE Recommendations
🔹Lower GC dose (5 mg instead of 7.5)
🔹 Early use of biologics for corticosparing
🔹 Cyclophosphamide if life-threatening
🔹 MMF: new in hemato manif
🔹Lupus nephritis: VCL vs BEL???
🔹Maintain trt for 3 years then taper, except HCQ
#EULAR2023
NZ
Did you miss our joint webinar with @ern_reconnet?
Among other things, Prof. @Lupusreference talked about the new @eular_org recommendations for the management of #lupus & the main changes introduced.
Head over to our Facebook page and watch it now! 👉
EULAR 2023 Debrief – for people living with lupus LIVE LINK | LUPUS...
250 views, 7 likes, 2 loves, 20 comments, 3 shares, Facebook Watch Videos from LUPUS EUROPE: LUPUS EUROPE was live.
buff.ly
📢Virtual Seminar today at 1pm with Professor Laurent Arnaud @Lupusreference. Hosted by Professor @AnisurRahman60
DoM Virtual Seminar: ‘What are the main 2023 Challenges in Systemic Lupus Erythematosus?’ Professor Laurent Arnaud, 8 June, 1:00pm https://www.ucl.ac.uk/medicine/events/2023/jun/dom-virtual-seminar-professor-laurent-arnaud
🧵Alert
#EULAR2023
🦋2023 EULAR-Recommendations on the management of lupus
🔥Summary slides
Our joint webinar with @ern_reconnet is also going on Facebook Live!
If you have not been able to register, go to our Facebook Page and enjoy "#EULAR2023 Debrief–for people living with #lupus".
1 hour to go!
https://www.facebook.com/LupusEurope
✅ Checklist for the new #EULAR2023 #Recommendations ✍️ for the treatment of systemic #Lupus, as presented by Boumpas 📺 last week for the taskforce 💪 We have been working VERY HARD to update & improve these reco compared to the previous ones (2019) 👍 #RheumTwitter #MedTwitter
Did you miss our joint webinar with ERN RECONNET?
Among other things, Prof. Laurent Arnaud talked about the new EULAR recommendations for the management of #lupus and the main changes that have been introduced.
Watch it and tell us what you think about them!
Did you know that our Chair, Jeanette Andersen was part of the task force?
😃
EULAR 2023 Debrief – for people living with lupus LIVE LINK
Today is #WORLDAPSDAY, an autoimmune disease that affects 20-30% of people with #lupus.
#APS can cause:
- Excessive blood clotting.
- Certain pregnancy complications.
Pregnancy planning and close monitoring are key to reduce the risk in pregnancy in patients with APS.
#pregnancy #planning #SLE #awareness #APSAwareness
Did you know? We presented 6️⃣ abstracts for #EULAR2023, and all 6️⃣ of them were accepted!
We also...
🙌 Had 2️⃣ oral presentations.
🙌 3️⃣ posters.
🙌 Alain Cornet was one of the abstract award winners.
🙌 Zoe presented in the scientific abstract plenary session.
Watch the interview Dr. Anthony Psarras made with Alain Cornet in Milan!
youtu.be/lLNJmCJ7iqk
Thank you Martijn, for your question! We will ensure your question is raised 🙂
Thank you for following this joint Lupus Europe / ERN ReCONNET webinar! If you have any questions for the speakers, please post them here and we will ensure they are raised! 😃
Hi from Corfu thank you for this it was really helpful!!!
I am curious about diet and microbiome as well. I think the topic is very much understudied and not good understood - but has great influence.
There are huge differences!
Are there possibility’s with food to have remission
There were only young people for the treatment with Car-T cells In am nog young any more. Is ther hope for me?
Only on my phone de zoom started. I do not know why
Metty Staal volgt
What is there to expect the coming years. I mean mean in treatments?
Thank you very much professor Arnoud
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