The Hellenic League Against Rheumatism’s (ELEANA) Special Lupus Project

The Hellenic League Against Rheumatism (ELEANA) with the contribution of Mr. Michael Konstantinidis, who is the writer and the art director of the total projectย  and of the arts community, created and coordinated a special project for Lupus. This was done with the hope that it would contribute to relieving the stigma the disease bears, […]

Lupus, Skin and COVID19

During the Pandemic various online webinars were given about the Psycho-Social Impacts of COVID-19 on Patients with Chronic Skin Conditions. Generally they showed that: Patients with chronic skin conditions (auto-immune disease related) using HQC have no higher risk of getting Covid. When using immune suppressants, patients should be more careful. When infected with Covid, consult […]

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2 days ago

๐Ÿ‘จโ€โš•๏ธ Don't miss Prof. Ian Bruce talking about the Systemic Lupus Erythematosus Damage Index (SDI) revision!

๐Ÿ“ˆ The SDI is a tool designed to track lupus progression and impacts treatment decisions worldwide.

๐Ÿ” The revised SDI aims to enhance accuracy, include pediatric cases, and update outdated definitions, ensuring that every patientโ€™s condition is comprehensively evaluated.

๐ŸŽฅ Do you want to explore these updates more thoroughly and understand what they mean for patients and healthcare providers? Click the link to watch the full video!

youtu.be/okAJvPAzIWg?si=6dwHxhoaqS0OJ7zm
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๐Ÿ‘จโ€โš•๏ธ Dont miss Prof. Ian Bruce talking about the Systemic Lupus Erythematosus Damage Index (SDI) revision!

๐Ÿ“ˆ The SDI is a tool designed to track lupus progression and impacts treatment decisions worldwide.

๐Ÿ” The revised SDI aims to enhance accuracy, include pediatric cases, and update outdated definitions, ensuring that every patientโ€™s condition is comprehensively evaluated.

๐ŸŽฅ Do you want to explore these updates more thoroughly and understand what they mean for patients and healthcare providers? Click the link to watch the full video!

https://youtu.be/okAJvPAzIWg?si=6dwHxhoaqS0OJ7zmImage attachment
3 days ago

๐Ÿ˜จ Did you miss our #eular2024 debrief webinar?

๐Ÿ˜ฎโ€๐Ÿ’จ Don't worry! You can watch the full session at your convenience.

Catch up on all the insights shared by many of the presenters and some of our PAN members!

EULAR Congress 2024 Debrief Webinar
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๐Ÿ˜จ Did you miss our #EULAR2024 debrief webinar?

๐Ÿ˜ฎโ€๐Ÿ’จ Dont worry! You can watch the full session at your convenience.

Catch up on all the insights shared by many of the presenters and some of our PAN members!

https://www.facebook.com/LupusEurope/videos/815970850254193
1 week ago

๐ŸŒŸ Thank you to all who attended our #eular2024 debrief webinar!

๐Ÿ™Œ Especially to our presenters and PAN members who shared their invaluable insights and experiences.

Stay tuned for more news and updates and don't forget to subscribe to our newsletter! www.lupus-europe.org/emails/
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Svær sygdom ♥๏ธ๐Ÿ‘Š

1 week ago

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To try out LupusGPT, just go to: lupusgpt.org/ This is a multi-lingual tool, so do try it in your language and let us know what you think!

This is the webinar Jeanette Andersen, Lupus Europe Chair, mentioned in her feedback on "CAR T Cell Therapy in Lupus: Promises and Challenges Explored": www.youtube.com/watch?v=JMifTgQgvVs&t=3s

Thank you