Month: January 2021

The Hellenic League Against Rheumatism’s (ELEANA) Special Lupus Project

The Hellenic League Against Rheumatism (ELEANA) with the contribution of Mr. Michael Konstantinidis, who is the writer and the art director of the total project  and of the arts community, created and coordinated a special project for Lupus. This was done with the hope that it would contribute to relieving the stigma the disease bears, […]

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Lupus, Skin and COVID19

During the Pandemic various online webinars were given about the Psycho-Social Impacts of COVID-19 on Patients with Chronic Skin Conditions. Generally they showed that: Patients with chronic skin conditions (auto-immune disease related) using HQC have no higher risk of getting Covid. When using immune suppressants, patients should be more careful. When infected with Covid, consult […]

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LUPUS EUROPE
4 days ago
LUPUS EUROPE

🦋 How much do you really know about lupus?

Stop wondering — find out now with SLAKE, the Systemic Lupus Assessment score for Essential Knowledge.

✔️ Quick and easy
✔️ Just a few minutes
✔️ Available in 20 languages
✔️ Get your personal lupus knowledge score

SLAKE is not a test — it’s a tool designed to help you understand which areas of lupus you already know well and where you could learn more.

And if you want to keep learning, remember to visit #Lupus100 and #LupusGPT — two reliable resources to improve your lupus knowledge.

Don’t wait any longer.
👉 Click the link, choose your language, and take SLAKE today!

maladie-autoimmune.fr/SLAKE/ ... See MoreSee Less

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LUPUS EUROPE
6 days ago
LUPUS EUROPE

🇪🇺 On March 27, Lupus Europe held its General Assembly, bringing together all our member organisations.

🗳️ We shared updates, discussed future plans, and welcomed Udruženje obolelih od reumatskih bolesti Republike Srbije - ORS as our newest member! 🎉

💜 Welcome to the family! We're excited to work together towards a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus. ... See MoreSee Less

🇪🇺 On March 27, Lupus Europe held its General Assembly, bringing together all our member organisations. 🗳️ We shared updates, discussed future plans, and welcomed Udruženje obolelih od reumatskih bolesti Republike Srbije - ORS as our newest member! 🎉 💜 Welcome to the family! Were excited to work together towards a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.
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LUPUS EUROPE
1 week ago
LUPUS EUROPE

#happyeaster ... See MoreSee Less

#HappyEaster
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LUPUS EUROPE
2 weeks ago
LUPUS EUROPE

🦋 Lupus Europe took part in the 2nd ERN RECONNET International Congress on rare and low-prevalence connective tissue diseases, held in Prague, Czech Republic, from April 9 to 11, 2025.

🙌 Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus!

👩 Our Chair, Jeanette Andersen, delivered a powerful session on The Patient Perspective on Telemedicine, highlighting the opportunities and challenges for people living with lupus.

📊 Alain Cornet also took the stage to share key findings from our Swiss Knife Survey, reflecting patients' priorities, unmet needs, and experiences across Europe.

🙌 Thank you to ERN ReCONNET for fostering collaboration to improve care and outcomes for people with rare connective tissue diseases! ... See MoreSee Less

🦋 Lupus Europe took part in the 2nd ERN RECONNET International Congress on rare and low-prevalence connective tissue diseases, held in Prague, Czech Republic, from April 9 to 11, 2025. 🙌 Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus! 👩 Our Chair, Jeanette Andersen, delivered a powerful session on The Patient Perspective on Telemedicine, highlighting the opportunities and challenges for people living with lupus. 📊 Alain Cornet also took the stage to share key findings from our Swiss Knife Survey, reflecting patients priorities, unmet needs, and experiences across Europe. 🙌 Thank you to ERN ReCONNET for fostering collaboration to improve care and outcomes for people with rare connective tissue diseases!Image attachmentImage attachment+3Image attachment
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