During the Pandemic various online webinars were given about the Psycho-Social Impacts of COVID-19 on Patients with Chronic Skin Conditions. Generally they showed that:

Patients with chronic skin conditions (auto-immune disease related) using HQC have no higher risk of getting Covid. When using immune suppressants, patients should be more careful. When infected with Covid, consult your doctor whether to go on with the prescribed medication. People with autoimmune diseases of the skin do not have a greater risk of getting infected with Covid-19. There is no proof that Covid will have a worse effect on patients with autoimmune diseases of the skin.

In general anxiety and mood related complaints are the most common complaints of patients with skin conditions during the pandemic. When getting Covid, stigmatization and feeling rejected are also present.

About 20-40% of Chronic Skin patients experience a psycho-social impact of Covid-19.

Two webinars can be found at:

https://youtu.be/3bvWIwDAIHE (Impacts of Covid-19 on Autoimmune Diseases & Immune Suppressed Patients)

https://youtu.be/5FJQWqpJ2fs (The Psycho-Social Impacts of COVID-19 on Patients with Chronic Skin Conditions)

 

By Annemarie Sluijmers[/vc_column_text][/vc_column][/vc_row]

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🦋 How much do you really know about lupus?

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🇪🇺 On March 27, Lupus Europe held its General Assembly, bringing together all our member organisations.

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🇪🇺 On March 27, Lupus Europe held its General Assembly, bringing together all our member organisations.

🗳️ We shared updates, discussed future plans, and welcomed Udruženje obolelih od reumatskih bolesti Republike Srbije - ORS as our newest member! 🎉

💜 Welcome to the family! Were excited to work together towards a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.
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🦋 Lupus Europe took part in the 2nd ERN RECONNET International Congress on rare and low-prevalence connective tissue diseases, held in Prague, Czech Republic, from April 9 to 11, 2025.

🙌 Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus!

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📊 Alain Cornet also took the stage to share key findings from our Swiss Knife Survey, reflecting patients' priorities, unmet needs, and experiences across Europe.

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🦋 Lupus Europe took part in the 2nd ERN RECONNET International Congress on rare and low-prevalence connective tissue diseases, held in Prague, Czech Republic, from April 9 to 11, 2025.

🙌 Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus!

👩 Our Chair, Jeanette Andersen, delivered a powerful session on The Patient Perspective on Telemedicine, highlighting the opportunities and challenges for people living with lupus.

📊 Alain Cornet also took the stage to share key findings from our Swiss Knife Survey, reflecting patients priorities, unmet needs, and experiences across Europe.

🙌 Thank you to ERN ReCONNET for fostering collaboration to improve care and outcomes for people with rare connective tissue diseases!Image attachmentImage attachment+3Image attachment
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