Use your free time to take survey from Lupus Europe

    Lupus Europe – Survey Centre

    We want to share some key information and links that we found particularly relevant for people living with lupus in Europe. While we do our utmost to select credible sources of information and quality publications, the articles and links reflect the views of their authors rather than of LUPUS EUROPE.

    LEAF - Lupus Expert system for the Assessment of Fatigue

    Go to the LEAF tool for an assessment and personalised recommendations on improving fatigue

    5 YES/NO questions on Clinical trials

    A very short “YES or NO” questionnaire on clinical trials to focus next steps

    Hydroxychloroquine Availability

    Did you find HydroxyChloroquine last time you tried to buy it?

    GRA COVID-19 Vax Survey

    Help scientists understand how people with rheumatic disease make decisions regarding vaccines

    Photolup Study

    Help scientists understand photosensitivity in lupus better by taking part in the survey

    ERN ReCONNET Survey

    Tell scientists about the unmet needs of rare disease patients (inc. lupus) around pregnancy

    GRA COVID-19 Vax Survey

    Help scientists understand how people with rheumatic disease make decisions regarding vaccines

    Photolup Study

    Help scientists understand photosensitivity in lupus better by taking part in the survey

    ERN ReCONNET Survey

    Tell scientists about the unmet needs of rare disease patients (inc. lupus) around pregnancy

    GRA COVID-19 Vax Survey

    Help scientists understand how people with rheumatic disease make decisions regarding vaccines

    Photolup Study

    Help scientists understand photosensitivity in lupus better by taking part in the survey

    ERN ReCONNET Survey

    Tell scientists about the unmet needs of rare disease patients (inc. lupus) around pregnancy

    Lupus Europe STRATEGIES

    Live Facebook Feed

    Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
    2 weeks ago
    LUPUS EUROPE

    As much as we love hearing from you all and appreciate the time you take to share how you #kicklupus and inspire others, we cannot allow any content specifically about healing products for lupus.

    We would greatly appreciate if you followed this rule when posting on the page.
    Thank you
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    2 weeks ago
    LUPUS EUROPE

    #WorldLupusDay finishes today, but #lupusawareness does not. There is so much more we can do to make life with #lupus better. Watch our vice chair, Anne Charlet, talk about her journey of becoming a Board Member.
    You can also join us and become a volunteer
    ... See MoreSee Less

    Comment on Facebook

    Wauvvvv SO good looking :-)