Use your free time to take survey from Lupus Europe

    Lupus Europe – Survey Centre

    We want to share some key information and links that we found particularly relevant for people living with lupus in Europe. While we do our utmost to select credible sources of information and quality publications, the articles and links reflect the views of their authors rather than of LUPUS EUROPE.

    LEAF - Lupus Expert system for the Assessment of Fatigue

    Go to the LEAF tool for an assessment and personalised recommendations on improving fatigue

    5 YES/NO questions on Clinical trials

    A very short “YES or NO” questionnaire on clinical trials to focus next steps

    Hydroxychloroquine Availability

    Did you find HydroxyChloroquine last time you tried to buy it?

    GRA COVID-19 Vax Survey

    Help scientists understand how people with rheumatic disease make decisions regarding vaccines

    Rheumatology Patient Survey

    Help scientists raise awareness of the areas most important to you, where more support may be needed by taking part in the survey

    ERN ReCONNET Survey

    Tell scientists about the unmet needs of rare disease patients (inc. lupus) around pregnancy

    GRA COVID-19 Vax Survey

    Help scientists understand how people with rheumatic disease make decisions regarding vaccines

    Photolup Study

    Help scientists understand photosensitivity in lupus better by taking part in the survey

    ERN ReCONNET Survey

    Tell scientists about the unmet needs of rare disease patients (inc. lupus) around pregnancy

    GRA COVID-19 Vax Survey

    Help scientists understand how people with rheumatic disease make decisions regarding vaccines

    Photolup Study

    Help scientists understand photosensitivity in lupus better by taking part in the survey

    ERN ReCONNET Survey

    Tell scientists about the unmet needs of rare disease patients (inc. lupus) around pregnancy

    Lupus Europe STRATEGIES

    Live Facebook Feed

    Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
    3 days ago
    LUPUS EUROPE

    Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus.

    What is the question you should have asked and you didn't?

    What is the question you think physicians should answer without being asked?

    #Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.
    ... See MoreSee Less

    Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus. 

What is the question you should have asked and you didnt?

What is the question you think physicians should answer without being asked?
 
#Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.

    Comment on Facebook

    Qu'es le lupus ? Moi j'ai eu a " c'est un lupus...comme votre grand mère" point final Je me suis imaginer ,mes mains se déformer,me paralyser j'ai eu peur maintenant 7 ans plus tard bien-sûr chez changer d'internet me suis tourné vers un rhumatologue et centre des douleurs un nouveau immunosuppresseurs mais pas d'explication sur les effets secondaires a part pour le foie ... suspens es ce que mon corps va accepte ce médicament

    Recording your appointment helps

    Medication side effects short and long twem

    6 days ago
    LUPUS EUROPE

    More good news for the #lupus commnunity!!

    Voclosporin has been approved in Europe for the treatment of adults with active lupus nephritis in combination with a background immunosuppressive therapy regimen.

    ir.auriniapharma.com/press-releases/detail/263/aurinia-announces-european-commission-approval-of
    ... See MoreSee Less

    6 days ago
    LUPUS EUROPE

    Date is set! And #Lupus100 is fast approaching.
    If you haven't done yet, subscribe to our newsletter to get the latest updates!

    www.lupus-europe.org/me-lupus/lupus-europe-info-centre/
    ... See MoreSee Less