Alain CornetHello again – now a note about day 2 at the IAPO GPC 2016! (International Alliance of Patients Organisations) Global Patients Conference 2016) Sunday morning was devoted to UHC (Universal Health Coverage). We had two presenters, from the WHO (World Health Organisation), Nittita Prasopa-Plaizier and Mario Ottigilo. UHC is a global project with the goals : health […]
Alain CornetThis week the training begins… dedicated to Denmark – click on Run with Andreas for more.
Alain CornetWe have a new page on the LUPUS EUROPE blog, in honour of an inspiring young man who has decided to run with and for LUPUS EUROPE. To follow his story each week simply click on the tab ‘Run with Andreas’. Week 0/24 Greatest life Challenge, till the next one! A few months ago […]
Alain CornetLUPUS EUROPE’s annual convention will be held in Würzburg, Germany this year from 28th September (afternoon welcome and registration) – 02 October 2016 (closing after morning sessions). The German Lupus Association is celebrating their 30th anniversary this year and is looking forward to welcoming us to Germany for the occasion. More information coming soon…
Alain CornetHI! from the IAPO (International Alliance of Patients Organisations) Global Patients Conference 2016! I’m representing Lupus Europe at this amazing conference! From www.iapo.org.uk “150 patients’ advocates from 48 countries are meeting in London to discuss how innovation can help achieve universal, patient-centred and sustainable access to healthcare around the world.” My objective here was to represent Lupus Europe […]
Alain CornetPatients take universal health coverage into their own hands 150 patients’ advocates from 48 countries are meeting in London to discuss how innovation can help achieve universal, patient-centred and sustainable access to healthcare around the world. Patients’ groups, academics and health organisations will meet at the 7th Global Patients Congress, from 9-11 April, to share innovative […]
Alain CornetIn one month’s time it’s World Lupus Day. For the occasion the World Lupus Federation (which reunites the Lupus Foundation of America, LUPUS Europe and other Lupus federations around the world) has set up a petition, addressed to the World Health Organisation, requesting that Lupus become a priority, enabling patients to be diagnosed and treated as quickly […]
Yes! #LupusGPT is a multilingual AI tool that delivers dr & patient-validated results from selected sources.
Also #EasyLupus! A simplified version that makes info even more accessible by breaking down complex medical terms into easy-to-understand language https://easy.lupusgpt.org/
It was an absolute pleasure to speak with @Jeanette_Lupus of @LupusEurope about the work I am undertaking on abnormal immunometabolism as a possible cause of fatigue in #SLE at the @SLEuroSociety meeting earlier this year 🧪
@LupusEurope thanks for pointing this out. Many to most #lupus #SLE patients with #Sjogrens do not even know they have it. A study in a major rheumatologic clinic showed that this was the fact in patients with MCTD. I highly suspect the same would occur in a lupus study
July
🚨All the updates you want about #pregnancy in #rheumatology are in this @TheLancetRheum series 🤰
🎧Do not miss the related podcast
@KarenS_LDN @nelson_piercy @drbags71 @Graversgaard_C @Jeanette_Lupus @LupusEurope @IonaThorne @EMEUNET @TadejAvcin
Listen to our latest podcast🎙️
Deputy Editor, Sophie Woolven, spoke to Karen Schreiber (@KarenS_LDN), Ian Giles, and Angela Tincani about the Pregnancy and Rheumatic Diseases Series
‼️Today is #WorldSjogrensDay, a chronic autoimmune disease that affects 14-17.8% of lupus patients.
💁♀️ Although Sjögren's is a systemic disease that goes far beyond dryness, dryness remains a frequent, significant & disabling symptom.
➡️ Follow @SjogrenEurope to know more
🩺 Calling doctors:
#EasyLupus is the easyread version of #LupusGPT. Made to give easy & valid info on #SLE for patients in many languages. Currently in beta & being tested.
Go to: https://easy.lupusgpt.org/ to try the tool & e-mail secretariat@lupus-europe.org with any feedback!
✅ Happy to report that 100+ #Lupus experts from @ERN_RECONNET @SLICC and @SLEuroSociety have participated to the FINAL stage 🏆 of the taskforce for rare #SLE manifestations. In just a few weeks (data analysis) we'll have clear recommendations for these complex manifestations 👍
🌍 Socio-economic factors can significantly impact the health outcomes of people with SLE, particularly those from economically or socially disadvantaged backgrounds. A multitude of issues such as limited access to transportation, low health literacy, insufficient healthcare resources can influence various aspects of access to healthcare, and affect the management and outcomes of diseases like #lupus
👨⚕️ In this insightful YouTube video, Dr. Daniel Guimarães de Oliveira discusses the crucial need for holistic care approaches that take into account a person's wider context, including these non-clinical factors.
🎥 Watch the video now to learn more about these insights and the need for tailored healthcare strategies that address a person’s broader context.
www.youtube.com/watch?v=RT2Qtllx2-s
13 CommentsComment on Facebook
Daniel Guimarães de Oliveira - Imunologia Clínica
That's true! Many people with problems are compelled to stop their cures because they do not have the money
I was never a person who believe in herbs as a means of treatment, now I know better, herbs has more efficiency than any pharmaceutical medicine. I suffered from FND with no results from pharmaceutical medicines, but after using herbal medicine from Dr Ehota I got cured of my ailments. I will advice you to try herbal medicine as well Contact Dr Ehota Dr Ehota
‼️Today is #worldsjogrensday, a chronic autoimmune disease that affects 14-17.8% of #lupus patients.
💁♀️ Although Sjögren's is a systemic disease that goes far beyond dryness, dryness remains a frequent, significant and disabling symptom.
➡️ Follow Sjögren Europe to know more.
5 CommentsComment on Facebook
I know
Truly, natural remedies do work. If they didn't, we wouldn't have used them for thousands of years. And, pharmaceutical companies wouldn't be studying plants, taking extracts of them, and patenting them as drugs.this is not a claim or lies I was totally cured from herpes and neuropathy by Dr osewen, His remedy is surely the best. I suggest you try him out if you are having any health challenges and also get cured too, give him a try 👇👇 www.facebook.com/114932024817210
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🪫 Fatigue is one of the most common and challenging symptoms of lupus. Even in remission, this persistent issue can continue to affect the daily lives of those with lupus, highlighting the complex nature of this autoimmune disease and its symptoms.
🔬 On our YouTube channel, Dr. Chris Wincup shares groundbreaking research on lupus-related fatigue, presented at ELM. This study offers new insights into some of the possible underlying mechanisms of fatigue in lupus patients and potential therapeutic approaches.
🎥 Watch the full video to discover how these findings could potentially improve the quality of life for those living with lupus.
youtu.be/R5usgt-soE4?si=o426qWO-TP7WiMik
4 CommentsComment on Facebook
Wow, it would certainly make an enormous difference in our lives!!! Iron deficiency can be difficult to overcome because of stomach problems but it would certainly be worth trying to get rid of this perennial fatigue.
Natural🌿remedies do work. If they didn't, we wouldn't have used them for thousands of years. And, pharmaceutical companies wouldn't be studying plants, taking extracts of them, and patenting them as drugs.this is not a claim or lies I was totally cured from a deadly disease and neuropathy by Herbalist His remedy is surely the best. I suggest you try him out if you are having any health challenges and also get cured too, give him a try 👇👇 Dr Osabor herbal home
Herbal remedies is the most recent cure I can only imagine I thought it was lies when I saw some one testifying about Dr Osabor. I was so happy that I get back my health, and with the help of dr Osabor. I was cured you can also give a try 👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻 www.facebook.com/Dr-osabor-Herbal-home-113980518216580/
👨⚕️ Don't miss Prof. Ian Bruce talking about the Systemic Lupus Erythematosus Damage Index (SDI) revision!
📈 The SDI is a tool designed to track lupus progression and impacts treatment decisions worldwide.
🔍 The revised SDI aims to enhance accuracy, include pediatric cases, and update outdated definitions, ensuring that every patient’s condition is comprehensively evaluated.
🎥 Do you want to explore these updates more thoroughly and understand what they mean for patients and healthcare providers? Click the link to watch the full video!
youtu.be/okAJvPAzIWg?si=6dwHxhoaqS0OJ7zm
0 CommentsComment on Facebook
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