Alain CornetHelp us understand the multiple facets of life with lupus today…
Alain CornetSince Hydroxychloroquine (HcQ) has been regularly mentioned in media as a potential medication in the fight against COVID, the number of patients highlighting unavailability issues increased substantially. With the help of its members, LUPUS EUROPE initiated a survey amongst patients to obtain broad based feedback on the magnitude and impact of the issue. Results covering […]
Alain CornetOver the past weeks, LUPUS EUROPE and several of its members have worked to improve availability of Hydroxychloroquine for people with lupus in Europe, as speculations on its possible use for COVID treatment have resulted in an increased (off-label) demand. Our objective is that all patients with a chronic condition requiring Hydroxychloroquine have access, if […]
Alain CornetLUPUS EUROPE and the ERN ReCONNET Patient representatives have launched a short survey to better understand how we can improve quality of life for people living with a rheumatic condition through better patient education. If you are a patient living with a Rheumatic condition or any other Chronic or rare disease, simply follow this link […]
Alain CornetDid you know? Lupus is a Rare Disease! Lupus is rare, but not for us! Come and join us working on our vision: A fulfilling life for all people with Lupus in Europe until we have reached a world without Lupus What is a rare disease? It changes from country to country, but in Europe […]
Alain CornetWe are very proud to announce that LUPUS EUROPE has been recognized by the EMA (European Medicine Agency) as “eligible entity”, the select network of patient organizations that work with the EMA to ensure that the needs and concerns of a wide range of patients are represented via direct contact with the Agency. This status […]
Alain CornetWe would very much like to share some news with you! If you are a Lupus Europe member or potential member, volunteer or potential volunteer, or simply a member of the patient community interested in the activities of LUPUS EUROPE, join us on February 17, 2020 at 20:00 Paris time. On the agenda:– Introduction of […]
As part of its cooperation with the ERN ReCONNET, Lupus Europe is launching an important survey, which we would like to ask you to disseminate as largely as you can to people actually living with lupus. We have made the effort of providing 13 different languages, and are open to adding new ones, so we hope […]
Alain Cornet30 Years ago, on May 26, 2019, LUPUS EUROPE’s Constitution (then under the name of ELEF) was signed… The European Lupus Federation was born. as we celebrate this anniversary, we asked current and past Chairs to reflect on those years in support of People living with lupus in Europe. Yvonne Norton, Chair from 2002 […]
Alain CornetThe 22nd EULAR Annual European Conference of PARE took place in the stunning, historical city of Prague in the Czech Republic 5-7 April 2019 with over 120 delegates. PARE ‘People with Arthritis and Rheumatism in Europe’ forms an integral role at EULAR ‘The European League Against Rheumatism’. The presentations and workshops at the PARE Conference […]
✅ Today, focus 🔎 on the 4th #EULAR #recommendation for #Lupus 🐺 As you can see:
➡️ CYC is suggested for severe (organ/life-threatening) forms 🔥
➡️ #RITUXIMAB is recommended for REFRACTORY disease 💪 but I know that for MANY of you 🌏🌎🌍 RTX is the ONLY biologic available 😢
🔴 People with #lupus are twice as likely to develop cardiovascular disease as healthy people.
👀 Learn more about CV risk management in RMDs with the @eular_org recommendations by @SavinoSciascia @Lupusdoc @ramos_casals et al.➡️ ➡️ https://buff.ly/46nDCWT
#WorldHeartDay
🌺Thank you for your active participation & enthusiasm, which has made our webinar exceptional.
We hope that Dr. Bosch has provided valuable knowledge & shed some light on the incredible possibilities technology can bring to healthcare.
Stay tuned! More webinars to come soon!
‼️ Exercise is not only fundamental to general health but especially vital for individuals facing RMDs like #lupus.
➡️ According to the @WHO, physical inactivity is a significant global health risk, underlining the importance of staying active for overall well-being.
#KickLupus
✅ Do you REMEMBER the #PHOTOLUP Study 🌞 about #photosensitivity in #Lupus? I'm VERY HAPPY to report that the paper has been ACCEPTED in a very good journal 👍 Thanks to ALL of you with lupus who have contributed 🙏 and of course we will soon show the detailed results 👌
🚨 Only one day left!
🌟 Join our Webinar on digital health! 🌟
⏲️ Time is running out!
📧 Email: secretariat@lupus-europe.org and secure your spot!
✅ Engage with Dr. Philipp Bosch.
✅ Explore tech's potential in healthcare.
🗓️ Sep 28 (tomorrow!)
🕗 20:00 CET
✅ In line with the new #EULAR recommendations, #hydroxychloroquine is recommended for all with #lupus (unless contraindicated). If you haven't done so yet, have a look 👀 at our Editorial in @TheLancetRheum ⬇️ regarding #EMA concerns about the potential teratogenicity of #HCQ
‼️Lupus can have an impact on mental health.
🚶♀️Exercise can help #KickLupus by managing stress, anxiety & depression.
It can be a good aid in promoting relaxation & ⬇️ stress, offering a positive coping outlet.
Remember: #MentalHealth is important. Talk to your doctor about it
🔴 People with #lupus are twice as likely to develop cardiovascular disease as healthy people.
👀 Learn more about cardiovascular risk management in rheumatic and musculoskeletal diseases (RMDs) with the EULAR recommendations ➡️ ➡️ buff.ly/46nDCWT
🔴 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗶𝘀 𝗸𝗲𝘆 in RMDs Like #lupus.
1️⃣ Always talk to your physician about preventive measures.
2️⃣ Work to minimise risk factors ⤵️
- Don't smoke🚭
- Practise exercise🏃♂️
- Have a healthy diet🍏
#WorldHeartDay
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This 7 years since Dr. abacha transcendence, his presence is missed now more than ever. Dr.abach was known for his profound wisdom and inspiring messages. Below are some of his insightful statements that continue to be true today. These quotes reflect Dr abacha emphasis on the importance of natural healing, alkaline living, and the significance of a plant-based diet for overall health and wellness. His timeless messages continue to inspire and resonate with individuals seeking a holistic approach to health. The message is loud and clear, and we will continue to share the message of love, healing, and growth. We celebrate the life, work, and teachings of Dr.abacha today and always. We hope his words resonate in your hearts and give you the willpower to continue on your Alkaline Healing Journey. On Health and Healing🌿🌿🌿 Drabacha0442
Accolades to my best doctor, Dr abacha Home of Cure , I have so much respect for how much positivity you put out while curing my herpes infection, I want to use the moment to appreciate you, God will continue to bless you ………….. Drabacha0442
For every disease in the world... restore 100% health. That's the only way I could do it. Through what? An intra-cellular cleansing... whether AIDS or blindness... cancer, sarcoma... lupus, sickle cell anaemia, diabetes, sexually transmitted diseases... there is only one diseases. There never have been two disease in the world. There is only one disease: the compromising of the mucous membrane. And the mucous membrane of the Afrikan has been compromised 400 years now.🌿🌿🌿 Drabacha0442
I was cured of herpes simplex virus by a great herbal doctor called Dr Ehicokya home cure with the use of different combination of Africa herbs contact him via drehicoky@gmail.com or whatsapp +2349035812786 Facebook page https:https://www.facebook.com/Dr-Ehicokya-home-spell-101978635749222/
big congratulation to Me ♥️♥️♥️I just get rid of my herpes the herbal treatment really helpful am now free from herpes www.facebook.com/Dr-Ehicokya-home-spell-101978635749222/
Finally I have been cured of my Herpes disease after suffering from the virus for over 6years with several out-breaks, thank you Dr abacha for curing me from Herpes for this I'm going to continue sharing so other people can be cured too. he also has cure, HIV, DIABETES, LUPUS, PEPTIC ULCER CANCER, HPV, ZODIAC INFERTILITY, HSV, FIBIORD, WARTS, KIDNEYS 👎👎👎 Drabacha0442
There are illness drugs and injection can't cure, l have seen the great important of natural remedies and the wonderful work they have done in people lives, I have read many testimonies online on how they were cured from various illness and virus, so I decided to contact a herbal specialist, I found herbalist dr abacha a great healer, I ordered medicine for diabete2, Hernia and HBP, I used them as he prescribed and it work perfectly for me, Today I am healed and living a healthy life now, Thanks dr abacha you are the best. Every one needs to use this natural remedies for healing🌿🌿🌿🌿 Drabacha0442
🌺Thank you for your active participation & enthusiasm, which has made our webinar truly exceptional.
We hope that Dr. Bosch has provided valuable knowledge & shed some light on the incredible possibilities technology can bring to healthcare.
Stay tuned! More webinars to come soon!
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If you have any questions or any points you would like to raise, please feel free to do so here! 😃
Only one day left for the great day!
🌟 Don't miss our webinar on digital health & patient care! 🌟
⏲️ Time is running out to secure your spot at our transformative webinar.
💻 In this rapidly evolving healthcare landscape, digital health is the way forward, and we want you to be at the forefront of this revolution.
Here's a glimpse of what awaits you:
✅ Engage in enriching discussions led by the esteemed Dr. Philipp Bosch.
✅ Explore the boundless potential of technology in advancing healthcare.
🗓️ Date: September 28th (tomorrow!).
🕗 Time: 20:00 CET.
This is your opportunity to be part of a digital health revolution that's shaping the future of patient care.
Join us and empower yourself with the knowledge that can transform lives! 📱🏥
The webinar will also be streamed live on Facebook. 🎥
Secure your spot now by registering:
📧 Email: secretariat@lupus-europe.org
If you have registered for Zoom already, please ensure you attend via Zoom 🤗.
See you at the webinar!
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