CONFINED AT HOME ? Make the next few minutes useful by answering this short research on Patient Education!

LUPUS EUROPE and the ERN ReCONNET Patient representatives have launched a short survey to better understand how we can improve quality of life for people living with a rheumatic condition through better patient education. If you are a patient living with a Rheumatic condition or any other Chronic or rare disease, simply follow this link , select your language, and give us 3 short minutes of your confinement time to share your input. Then send the link https://www.surveylegend.com/s/24fa to other patients, so that we get even more feedback.

Thank you for sharing your experience, it will help us make better programs.

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Alain Cornet

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    LUPUS EUROPE
    1 day ago
    LUPUS EUROPE

    🦋 Living with lupus can feel overwhelming when you're trying to sift through an ocean of information that may or may not be reliable.

    🥵 Are you tired of endless searches?
    😵‍💫 Do you feel overwhelmed by medical jargon?

    🙌 It’s time to try #LupusGPT! Our AI-driven tool is designed to cut through the noise, providing you with trusted, doctor/patient-validated information.

    💫 Whether you're a newly diagnosed patient, a long-term one, or a caregiver, #LupusGPT offers the support and knowledge you need to make informed health decisions alongside the invaluable support and guidance of your medical team.

    🌍 Plus, with availability in multiple languages, #LupusGPT ensures that high-quality lupus information is accessible to everyone, no matter where you are or what language you speak.

    Visit s.mtrbio.com/dkbhqzgrrd now and share this post to help us spread the word. Help us empower more individuals to gain control over their lupus management!     ... See MoreSee Less

    🦋 Living with lupus can feel overwhelming when youre trying to sift through an ocean of information that may or may not be reliable. 🥵 Are you tired of endless searches? 😵‍💫 Do you feel overwhelmed by medical jargon? 🙌 It’s time to try #LupusGPT! Our AI-driven tool is designed to cut through the noise, providing you with trusted, doctor/patient-validated information. 💫 Whether youre a newly diagnosed patient, a long-term one, or a caregiver, #LupusGPT offers the support and knowledge you need to make informed health decisions alongside the invaluable support and guidance of your medical team. 🌍 Plus, with availability in multiple languages, #LupusGPT ensures that high-quality lupus information is accessible to everyone, no matter where you are or what language you speak. Visit https://s.mtrbio.com/dkbhqzgrrd now and share this post to help us spread the word. Help us empower more individuals to gain control over their lupus management!
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    LUPUS EUROPE
    5 days ago
    LUPUS EUROPE

    ⁉️ Do you want to know more about diet & #lupus?

    ✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language.

    🔊 Whether you're looking for tips on living with lupus, treatment options, or understanding lupus better, this website has it all. Plus, it's available in multiple European languages! Making it accessible to a wider audience.

    Check it out now! ⬇️

    lupus100.org/en/questions/should-we-follow-a-special-diet-in-lupus

    🇩🇰 lupus100.org/da/questions/should-we-follow-a-special-diet-in-lupus
    🇩🇪 lupus100.org/de/questions/should-we-follow-a-special-diet-in-lupus
    🇪🇸 lupus100.org/es/questions/should-we-follow-a-special-diet-in-lupus
    🇬🇷 lupus100.org/el/questions/should-we-follow-a-special-diet-in-lupus
    🇫🇷 www.rhumatismes.net/index.php?id_q=854
    🇮🇹 lupus100.org/it/questions/should-we-follow-a-special-diet-in-lupus
    🇱🇹 lupus100.org/lt/questions/should-we-follow-a-special-diet-in-lupus
    🇳🇱 lupus100.org/nl/questions/should-we-follow-a-special-diet-in-lupus
    🇵🇹 lupus100.org/pt/questions/should-we-follow-a-special-diet-in-lupus
    🇷🇴 lupus100.org/ro/questions/should-we-follow-a-special-diet-in-lupus
    🇫🇮 lupus100.org/fi/questions/should-we-follow-a-special-diet-in-lupus
    🇺🇦 lupus100.org/uk/questions/should-we-follow-a-special-diet-in-lupus
    🇷🇺 lupus100.org/ru/questions/should-we-follow-a-special-diet-in-lupus
    Catalan: lupus100.org/ca/questions/should-we-follow-a-special-diet-in-lupus     ... See MoreSee Less

    ⁉️ Do you want to know more about diet & #lupus? ✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language. 🔊 Whether youre looking for tips on living with lupus, treatment options, or understanding lupus better, this website has it all. Plus, its available in multiple European languages! Making it accessible to a wider audience. Check it out now! ⬇️ https://lupus100.org/en/questions/should-we-follow-a-special-diet-in-lupus 🇩🇰 https://lupus100.org/da/questions/should-we-follow-a-special-diet-in-lupus 🇩🇪 https://lupus100.org/de/questions/should-we-follow-a-special-diet-in-lupus 🇪🇸 https://lupus100.org/es/questions/should-we-follow-a-special-diet-in-lupus 🇬🇷 https://lupus100.org/el/questions/should-we-follow-a-special-diet-in-lupus 🇫🇷 https://www.rhumatismes.net/index.php?id_q=854 🇮🇹 https://lupus100.org/it/questions/should-we-follow-a-special-diet-in-lupus 🇱🇹 https://lupus100.org/lt/questions/should-we-follow-a-special-diet-in-lupus 🇳🇱 https://lupus100.org/nl/questions/should-we-follow-a-special-diet-in-lupus 🇵🇹 https://lupus100.org/pt/questions/should-we-follow-a-special-diet-in-lupus 🇷🇴 https://lupus100.org/ro/questions/should-we-follow-a-special-diet-in-lupus 🇫🇮 https://lupus100.org/fi/questions/should-we-follow-a-special-diet-in-lupus 🇺🇦 https://lupus100.org/uk/questions/should-we-follow-a-special-diet-in-lupus 🇷🇺 https://lupus100.org/ru/questions/should-we-follow-a-special-diet-in-lupus Catalan: https://lupus100.org/ca/questions/should-we-follow-a-special-diet-in-lupus
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    LUPUS EUROPE
    6 days ago
    LUPUS EUROPE

    ✅ Yes! As many of you guessed, the January theme of the #kicklupus campaign is... diet! One of the New Year's resolutions that is among the most commonly chosen by people every year.

    🤓 Did you know that a well-balanced diet plays an essential role in the holistic approach to #lupus management🦋? It also helps support overall health and well-being.

    🥦 From incorporating the Mediterranean diet🐟 to staying hydrated💧, small dietary changes can greatly impact the lives of those with lupus.

    💪 Let's make this a year of health: join us in this challenge!

    📸 Share your journey and tips and tricks towards a healthier diet using the hashtag and inspire others to make positive changes too.     ... See MoreSee Less

    ✅ Yes! As many of you guessed, the January theme of the #KickLupus campaign is... diet! One of the New Years resolutions that is among the most commonly chosen by people every year. 🤓 Did you know that a well-balanced diet plays an essential role in the holistic approach to #lupus management🦋? It also helps support overall health and well-being. 🥦 From incorporating the Mediterranean diet🐟 to staying hydrated💧, small dietary changes can greatly impact the lives of those with lupus. 💪 Lets make this a year of health: join us in this challenge! 📸 Share your journey and tips and tricks towards a healthier diet using the hashtag and inspire others to make positive changes too.
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    • likes 15
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    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    🛠️ We are currently performing maintenance to enhance your experience with #LupusGPT.

    ✅ Adjustments & updates are normal and expected.

    We appreciate your understanding & support as we fine-tune our tool to better meet your needs.     ... See MoreSee Less

    🛠️ We are currently performing maintenance to enhance your experience with #LupusGPT. ✅ Adjustments & updates are normal and expected. We appreciate your understanding & support as we fine-tune our tool to better meet your needs.
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    • likes 15
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    • Comments: 1

    1 CommentComment on Facebook

    I come from a Pacific Island nation called Papua New Guinea. My country shares borders with Indonesia, Australia, and the Solomon Islands. I usually search on YouTube for interesting documentaries. Whilst looking up YouTube videos, I came across a documentary on people who suffer from SLE Lupus disease and their real treatment from www. multivitamincare .org. I had never heard of this crippling and debilitating disease affecting a lot of American Europeans. It is very tortuous to watch and hear patients who suffer. It is more like a combination of various diseases all put into one. Like a person who has suffered a stroke, plus someone suddenly becoming paralyzed, Parkinson's disease, COPD, ALS, cancer, etc., but I also get to understand that there has been a successful cure for this disease from www. multivitamin care. org It is too much for a patient to endure, such as they slowly begin to pass away if the right medication is not taken . Having a positive mind is a powerful tool . My prayers go out to Lupus patients and their caregivers.

    LUPUS EUROPE Uniting people with Lupus throughout Europe
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