February 29th 2024 is Rare Disease Day. Lupus is a condition that is classified as rare in Europe. While it remains rare in numbers, lupus is all too familiar to those it affects.

 

Living with lupus often means navigating a world that is not designed with rare diseases in mind. The challenges faced by people living with lupus— from accessing a timely diagnosis to finding effective treatments—underscore the need for greater awareness and more research. Yet, the spirit of the European lupus community remains unyielding, driven by resilience and a shared vision of a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.

 

This Rare Disease Day let’s amplify the voices of the European lupus community. Visit the Rare Disease Day website:  https://www.rarediseaseday.org/   to learn more about how you can take part in Rare Disease Day 2024!

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😱 New tool for lupus!

✅ Lupus Europe proudly presents the Lupus Consultation Cards: a tool designed to help both patients and healthcare professionals structure consultations, prioritise what matters to patients, and support more focused discussions.

Because lupus is complex, and consultation time is limited.

✔️ Set your priorities
✔️ Organise your thoughts
✔️ Focus the conversation

🌍 Available in 18 languages
📥 Download for free or fill it in online: www.lupus-europe.org/lupus-consultation-cards/

🟣 #makeitcount
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🟪 Consultations don’t always leave enough time to cover everything that matters.

😩 Symptoms, concerns, and questions can quickly become overwhelming when living with lupus.

🍀 The Lupus Consultation Cards are designed to help you come prepared, prioritise what matters, and make the most of your time with your doctor.

✔️ Set your priorities
✔️ Organise your thoughts
✔️ Focus the conversation

🌍 Available in 18 languages
🔗 Download them for free: www.lupus-europe.org/lupus-consultation-cards/

🟣 Make your consultation count.
#MakeItCount
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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