February 29th 2024 is Rare Disease Day. Lupus is a condition that is classified as rare in Europe. While it remains rare in numbers, lupus is all too familiar to those it affects.

 

Living with lupus often means navigating a world that is not designed with rare diseases in mind. The challenges faced by people living with lupus— from accessing a timely diagnosis to finding effective treatments—underscore the need for greater awareness and more research. Yet, the spirit of the European lupus community remains unyielding, driven by resilience and a shared vision of a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.

 

This Rare Disease Day let’s amplify the voices of the European lupus community. Visit the Rare Disease Day website:  https://www.rarediseaseday.org/   to learn more about how you can take part in Rare Disease Day 2024!

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✍🏻Täytä kysely.

🔊Jaa yhteisösi kanssa.

👨🏼‍⚕Jos olet terveydenhuollon ammattilainen ja kohtelet lupuspotilaita Euroopassa, arvostaisimme suuresti, jos informoisit potilaitasi.

s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
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✍🏻Täytä kysely.

🔊Jaa yhteisösi kanssa.

👨🏼‍⚕Jos olet terveydenhuollon ammattilainen ja kohtelet lupuspotilaita Euroopassa, arvostaisimme suuresti, jos informoisit potilaitasi. 

https://s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
2 days ago

✍🏻Dalyvaukite apklausoje.

🔊Dalinkitės savo bendruomenėje

👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.

s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
... See MoreSee Less

✍🏻Dalyvaukite apklausoje.

🔊Dalinkitės savo bendruomenėje

👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus. 

https://s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
3 days ago

✍🏻Completează sondajul.

🔊Împărtășește cu comunitatea ta.

👨🏼⚕Dacă ești un profesionist în sănătate și tratezi pacienți cu lupus în Europa, am aprecia foarte mult dacă i-ai informa pe pacienții tăi.

s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
... See MoreSee Less

✍🏻Completează sondajul.

🔊Împărtășește cu comunitatea ta.

👨🏼⚕Dacă ești un profesionist în sănătate și tratezi pacienți cu lupus în Europa, am aprecia foarte mult dacă i-ai informa pe pacienții tăi.

https://s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
LUPUS EUROPE Uniting people with Lupus throughout Europe
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