February 29th 2024 is Rare Disease Day. Lupus is a condition that is classified as rare in Europe. While it remains rare in numbers, lupus is all too familiar to those it affects.

 

Living with lupus often means navigating a world that is not designed with rare diseases in mind. The challenges faced by people living with lupus— from accessing a timely diagnosis to finding effective treatments—underscore the need for greater awareness and more research. Yet, the spirit of the European lupus community remains unyielding, driven by resilience and a shared vision of a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.

 

This Rare Disease Day let’s amplify the voices of the European lupus community. Visit the Rare Disease Day website:  https://www.rarediseaseday.org/   to learn more about how you can take part in Rare Disease Day 2024!

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2 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

🙏 Help us and NVLE achieve more answers to ensure that the Dutch population is represented in the results

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3 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Deltag i undersøgelsen.

🔊Del med dit fællesskab.

👨🏼⚕Hvis du er sundhedsprofessionel og behandler patienter med lupus i Europa, ville vi sætte stor pris på, at du informerer dine patienter.

🙏 Help us and Sle-Lupus- info achieve more answers to ensure that the Danish population is represented in the results

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4 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Dalyvaukite apklausoje.

🔊Dalinkitės savo bendruomenėje

👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.

🙏 Help us and Lupus Lt achieve more answers to ensure that the Lithuanian population is represented in the results

s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
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5 days ago

✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

👨🏼‍⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.

s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
... See MoreSee Less

✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

👨🏼‍⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.

https://s.surveylegend.com/-NqgyeOSaTVcd7gBoK15

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LUPUS EUROPE Uniting people with Lupus throughout Europe
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