On this page, we want to share some key information and links that we found particularly relevant for people living with lupus in Europe. These can be recent scientific publications, information, news from our members, old articles that are still very valuable today. we will update this selection as new articles pop up, so come back regularly…

While we do our utmost to select credible sources of information and quality publications, the articles and links reflect the views of their authors rather than of LUPUS EUROPE.


See our latest Blog articles, initiatives or projects.

Living with lupus in 2020 - SURVEY PUBLISHED

Thank you to the 5922 respondents

Hydroxychloroquine Dosing survey

Our survey on HcQ dosing, retinopathy and adherence is published in Lupus Science and medicine!

Pandemic learning

Read the Perspectives and Recommendations from the Rare Disease Community'

EULAR COVID clinic visit guidelines

simple guidelines on how to go about hospital visits/treatments

EULAR on Vaccination

Read the updated EULAR recommendations for vaccination of people with an autoimmune inflammatory rheumatic disease


Watch this fascinating video on The history of lupus

COVID impact on rare diseases patients

look at the attached infographic made by EURORDIS based on 6945 answers

Lupusreference TWEETS

Prof. L. Arnaud is very active on twitter, often with recent news in 1 slide

Do you know ERN ReCONNET

This is the European Reference Network responsible for lupus

European Reference Network?

If you have no idea what it is, watch this short clip!


See attached Simon Stones slides explaining how to make a poster for a scientific event!

EULAR 2021

Summary of Key Abstracts on Lupus Treatment - by Prof. Arnaud