Alain CornetAt the recent American Congress of Rheumatology in San Fransisco this week, we received fantastic news on two promising trial results. 1. AstraZeneca Phase IIb Anifrolumab 300 mg showed positive results, where it produced a response in 34.4 percent of patients after 169 days of treatment and this rose to more than 50 percent after […]
Alain CornetThis is just a reminder that the December deadline for patient stories is fast approaching. If you are a member of one of our patient organisations and want to share your story please send it to katharine@lupus-europe.org
Alain CornetEPF is launching a second consultation on a draft position on defining and measuring access to healthcare. The position paper was developed with the working group on access. The first consultation was held in September/October. Lupus Europe is involved in this working group and your input to the consultation would be much appreciated if you […]
✅ #Rosacea versus #LUPUS ⬇️
Practical tips for distinguishing the 2 conditions 👍
🚨𝗗𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝗔𝗽𝗽𝗿𝗼𝗮𝗰𝗵𝗶𝗻𝗴 𝗙𝗮𝘀𝘁❗
Please take part in the Living With Lupus in 2024 survey.
🗣️ Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.
🧵Find the link for all 21 languages in this thread ⤵️
✅ Management of #glucocorticoids at the 4th advanced workshop on #Lupus by @SLEuroSociety by J Delgado Alves:
- Main mechanisms of action
- Optimal starting dose (organ- and severity driven)
- Tapering strategy (how fast/additional medications?)
- Stopping? (Yes/no/who?)
🔥 #SLE #lupus patients: Be part of the conversation. Let your voice be heard.
What is it like living with lupus?
Help @LupusEurope learn more about lupus patients so the rest of us know what you are going through
✅ Today is the start of the 4th @SLEuroSociety Advanced #Lupus #Workshop, an event created when I became President of the European Lupus Society. We bring together 30 lucky participants + an amazing faculty for 2 days of intensive & collective discussion of complex #SLE cases 👍
✍🏻Пройдіть опитування.
🔊Поділіться з вашою громадою.
👨🏼⚕Якщо ви медичний працівник і лікуєте пацієнтів з лупусом в Європі, ми були б дуже вдячні, якби ви поінформували своїх пацієнтів.
https://buff.ly/3xIyiBy
📣 One week left to register for our online EUPATI Essentials Training! 📣
Are you an industry, academia or consortium member wanting to enhance your knowledge on patient engagement?
🎯 Register now ▶️ https://bit.ly/4auAmen
#EUPATI #Essentials #OnlineTraining #RegisterToday
My absolute pleasure to work with @Lupusreference CC Mok and Talia for this nice review, prepared for the general medical community to better understand Dx challenge and Mx of SLE. Lots we can do to improve outcomes inc comorbidity burden! https://authors.elsevier.com/a/1ixq7V-4XOrME
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Doe mee aan de enquête.
🔊Deel met uw gemeenschap.
🙏 Help us and NVLE achieve more answers to ensure that the Dutch population is represented in the results
buff.ly/3xGBU6T
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Deltag i undersøgelsen.
🔊Del med dit fællesskab.
👨🏼⚕Hvis du er sundhedsprofessionel og behandler patienter med lupus i Europa, ville vi sætte stor pris på, at du informerer dine patienter.
🙏 Help us and Sle-Lupus- info achieve more answers to ensure that the Danish population is represented in the results
s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Dalyvaukite apklausoje.
🔊Dalinkitės savo bendruomenėje
👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.
🙏 Help us and Lupus Lt achieve more answers to ensure that the Lithuanian population is represented in the results
s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
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✍🏻Doe mee aan de enquête.
🔊Deel met uw gemeenschap.
👨🏼⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.
s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
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