Zoe Karakikla-Mitsakou
We are very proud to share that LupusGPT has now been published in The Lancet Rheumatology, one of the world’s leading medical journals in rheumatology.
For us, this is not only about a publication. It is about what LupusGPT stands for.
LupusGPT is free. It is patient-led. And it was built to help people living with lupus find reliable, accessible information in almost any language.
It began with a simple but important question: what could become possible if patients, clinicians, and digital experts truly worked together from the start?
That question was first opened up in a fishbowl discussion at the European Lupus Meeting 2024 on how the lupus community could get the best, but not the worst, out of AI. From there, LupusGPT was shaped through the care, intelligence, and effort of many people: volunteers, patient testers, clinicians testing across languages, people who gave feedback, and people already helping us share it with patients in clinics, organisations, and communities.
This publication matters because it shows that patient-led innovation belongs in the scientific world too. It shows that when patient voice is not added at the end, but built in from the start, something real can grow.
A heartfelt thank you to all authors: Zoe Karakikla-Mitsakou, Alain Cornet, Jeanette Andersen, Sarah Dyball, Cristiana Sieiro Santos, Daniel Guimarães de Oliveira, and Laurent Arnaud. Special thanks also to Daniel Guimarães de Oliveira for the thought, care, and belief he brought to this work, and to Professor Laurent Arnaud for his outstanding support, steadiness, and guidance.
And above all, thank you to everyone in the LUPUS EUROPE community who keeps showing us why this matters.
LupusGPT. Free. Multilingual. Patient-led. And now part of the scientific record.
You can read the publication here:
https://doi.org/10.1016/S2665-9913(25)00370-4
The article is completely free to access with a simple, quick registration.
