There is still so much to learn about lupus in Europe. One of the ways this is happening is through surveys. Some are organised by LUPUS EUROPE, others by the European reference Networks or our partners, others by academics or other member groups… To help you contribute, we have assembled here some of the surveys currently available. Don’t hesitate to click on the respective links to provide your input to all!

Living with lupus in 2020

Tell us about your experience about living with lupus in 2020 (10 min)

Hydroxychloroquine Availability

Did you find HydroxyChloroquine last time you tried to buy it? (real time tracking)

Rheum-Covid alliance

Help the scientists understand specifics of Covid for people with Rheumatic diseases

World Lupus Federation Survey

The world federation collects information in anticipation of World Lupus Day.

Eurordis Rare Barometer

What is the direct and indirect impact of COVID for people with a rare disease (like lupus)

5 YES/NO questions

A very short yes no questionnaire on clinical trials to focus next steps