There is still so much to learn about lupus in Europe. One of the ways this is happening is through surveys. Some are organised by LUPUS EUROPE, others by the European reference Networks or our partners, others by academics or other member groups… To help you contribute, we have assembled here some of the surveys currently available. Don’t hesitate to click on the respective links to provide your input to all!

Health info access

Help the medical community understand which channels you use to collect quality information

5 YES/NO questions on Clinical trials

A very short ``YES or NO`` questionnaire on clinical trials to focus next steps

Vaccine & COVID

Help understand the expectations and concerns related to the COVID vaccine for people with autoimmune diseases and their family.

Rare Barometer

Help EURORDIS communicate facts and figures to decision makers on the future of rare diseases (incl. lupus), so that your voice is heard

EULAR Survey on Physical Activity

Help understand more about physical activity and include related advice in clinical practice

Rheum - COVID alliance

Help the scientists understand specifics of Covid for people with Rheumatic diseases

EULAR- COVID19 Vaccine Database

Raise awareness of this professionals database for people with RMDs who have been vaccinated against Covid

Hydroxychloroquine Availability

Did you find HydroxyChloroquine last time you tried to buy it? (real time tracking)


Help scientists understand the tolerance and consequences of vaccination against COVID-19 in lupus patients.