Join the Conversation: Lupus Europe’s Youth Webinar for World Lupus Day

Lupus Europe is set to mark World Lupus Day with a webinar aimed specifically at young people living with lupus. The webinar, “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist,” is scheduled for the 10th of May at 19:00 CET.

Why This Webinar Matters

 

Lupus frequently affects people during their prime years. Openly discussing and addressing the unique challenges faced by young people with lupus is crucial for enhancing their quality of life and understanding of their condition. Lupus Europe recognises this need and is bringing the Lupus Europe Youth Group and a Young Rheumatologist together to foster a supportive dialogue.

 

What to Expect

 

The webinar will be led by the vibrant and knowledgeable Dr. Francesca Crisafulli from Italy. Co-leading the webinar will be members of the Lupus Europe Youth Group. Dr. Crisafulli, a young rheumatologist and lupologist, will offer her expert insights into the disease and answer questions from participants. This format encourages open communication between young lupus patients and the specialist. It also allows attendees to gain a deeper understanding of young peoples’ concerns and experiences.

 

Engaging Young Voices

 

Lupus Europe’s is committed to involving youth people in conversations around lupus. By dedicating this webinar to young voices, led by young voices, the specific concerns and perspectives of younger patients can be heard in their own voice. This is an event where young people with lupus can freely express their concerns, share their experiences, and openly discuss solutions with both peers and professionals.

 

How to Participate

 

Don’t miss the opportunity to participate! Register by sending an email to secretariat@lupus-europe.org. The webinar will be highly interactive. Participants will have the opportunity to engage directly with the Youth Group and the rheumatologist!

 

Final Thoughts

 

This webinar is not just an event, but a bridge connecting young lupus patients with experts. It is a rare chance to interact, ask important questions, and connect with others who understand the challenges of living with lupus as a young person.

 

Don’t miss out on this opportunity to be part of a meaningful conversation. Mark your calendar for May 10! Take the first step towards engaging with a community of young people committed to supporting other young people with lupus.

 

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Zoe Karakikla-Mitsakou

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    LUPUS EUROPE
    1 day ago
    LUPUS EUROPE

    🦋 Living with lupus can feel overwhelming when you're trying to sift through an ocean of information that may or may not be reliable.

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    Visit s.mtrbio.com/dkbhqzgrrd now and share this post to help us spread the word. Help us empower more individuals to gain control over their lupus management!     ... See MoreSee Less

    🦋 Living with lupus can feel overwhelming when youre trying to sift through an ocean of information that may or may not be reliable. 🥵 Are you tired of endless searches? 😵‍💫 Do you feel overwhelmed by medical jargon? 🙌 It’s time to try #LupusGPT! Our AI-driven tool is designed to cut through the noise, providing you with trusted, doctor/patient-validated information. 💫 Whether youre a newly diagnosed patient, a long-term one, or a caregiver, #LupusGPT offers the support and knowledge you need to make informed health decisions alongside the invaluable support and guidance of your medical team. 🌍 Plus, with availability in multiple languages, #LupusGPT ensures that high-quality lupus information is accessible to everyone, no matter where you are or what language you speak. Visit https://s.mtrbio.com/dkbhqzgrrd now and share this post to help us spread the word. Help us empower more individuals to gain control over their lupus management!
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    LUPUS EUROPE
    5 days ago
    LUPUS EUROPE

    ⁉️ Do you want to know more about diet & #lupus?

    ✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language.

    🔊 Whether you're looking for tips on living with lupus, treatment options, or understanding lupus better, this website has it all. Plus, it's available in multiple European languages! Making it accessible to a wider audience.

    Check it out now! ⬇️

    lupus100.org/en/questions/should-we-follow-a-special-diet-in-lupus

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    🇫🇷 www.rhumatismes.net/index.php?id_q=854
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    🇳🇱 lupus100.org/nl/questions/should-we-follow-a-special-diet-in-lupus
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    🇷🇺 lupus100.org/ru/questions/should-we-follow-a-special-diet-in-lupus
    Catalan: lupus100.org/ca/questions/should-we-follow-a-special-diet-in-lupus     ... See MoreSee Less

    ⁉️ Do you want to know more about diet & #lupus? ✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language. 🔊 Whether youre looking for tips on living with lupus, treatment options, or understanding lupus better, this website has it all. Plus, its available in multiple European languages! Making it accessible to a wider audience. Check it out now! ⬇️ https://lupus100.org/en/questions/should-we-follow-a-special-diet-in-lupus 🇩🇰 https://lupus100.org/da/questions/should-we-follow-a-special-diet-in-lupus 🇩🇪 https://lupus100.org/de/questions/should-we-follow-a-special-diet-in-lupus 🇪🇸 https://lupus100.org/es/questions/should-we-follow-a-special-diet-in-lupus 🇬🇷 https://lupus100.org/el/questions/should-we-follow-a-special-diet-in-lupus 🇫🇷 https://www.rhumatismes.net/index.php?id_q=854 🇮🇹 https://lupus100.org/it/questions/should-we-follow-a-special-diet-in-lupus 🇱🇹 https://lupus100.org/lt/questions/should-we-follow-a-special-diet-in-lupus 🇳🇱 https://lupus100.org/nl/questions/should-we-follow-a-special-diet-in-lupus 🇵🇹 https://lupus100.org/pt/questions/should-we-follow-a-special-diet-in-lupus 🇷🇴 https://lupus100.org/ro/questions/should-we-follow-a-special-diet-in-lupus 🇫🇮 https://lupus100.org/fi/questions/should-we-follow-a-special-diet-in-lupus 🇺🇦 https://lupus100.org/uk/questions/should-we-follow-a-special-diet-in-lupus 🇷🇺 https://lupus100.org/ru/questions/should-we-follow-a-special-diet-in-lupus Catalan: https://lupus100.org/ca/questions/should-we-follow-a-special-diet-in-lupus
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    LUPUS EUROPE
    6 days ago
    LUPUS EUROPE

    ✅ Yes! As many of you guessed, the January theme of the #kicklupus campaign is... diet! One of the New Year's resolutions that is among the most commonly chosen by people every year.

    🤓 Did you know that a well-balanced diet plays an essential role in the holistic approach to #lupus management🦋? It also helps support overall health and well-being.

    🥦 From incorporating the Mediterranean diet🐟 to staying hydrated💧, small dietary changes can greatly impact the lives of those with lupus.

    💪 Let's make this a year of health: join us in this challenge!

    📸 Share your journey and tips and tricks towards a healthier diet using the hashtag and inspire others to make positive changes too.     ... See MoreSee Less

    ✅ Yes! As many of you guessed, the January theme of the #KickLupus campaign is... diet! One of the New Years resolutions that is among the most commonly chosen by people every year. 🤓 Did you know that a well-balanced diet plays an essential role in the holistic approach to #lupus management🦋? It also helps support overall health and well-being. 🥦 From incorporating the Mediterranean diet🐟 to staying hydrated💧, small dietary changes can greatly impact the lives of those with lupus. 💪 Lets make this a year of health: join us in this challenge! 📸 Share your journey and tips and tricks towards a healthier diet using the hashtag and inspire others to make positive changes too.
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    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    🛠️ We are currently performing maintenance to enhance your experience with #LupusGPT.

    ✅ Adjustments & updates are normal and expected.

    We appreciate your understanding & support as we fine-tune our tool to better meet your needs.     ... See MoreSee Less

    🛠️ We are currently performing maintenance to enhance your experience with #LupusGPT. ✅ Adjustments & updates are normal and expected. We appreciate your understanding & support as we fine-tune our tool to better meet your needs.
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    I come from a Pacific Island nation called Papua New Guinea. My country shares borders with Indonesia, Australia, and the Solomon Islands. I usually search on YouTube for interesting documentaries. Whilst looking up YouTube videos, I came across a documentary on people who suffer from SLE Lupus disease and their real treatment from www. multivitamincare .org. I had never heard of this crippling and debilitating disease affecting a lot of American Europeans. It is very tortuous to watch and hear patients who suffer. It is more like a combination of various diseases all put into one. Like a person who has suffered a stroke, plus someone suddenly becoming paralyzed, Parkinson's disease, COPD, ALS, cancer, etc., but I also get to understand that there has been a successful cure for this disease from www. multivitamin care. org It is too much for a patient to endure, such as they slowly begin to pass away if the right medication is not taken . Having a positive mind is a powerful tool . My prayers go out to Lupus patients and their caregivers.

    LUPUS EUROPE Uniting people with Lupus throughout Europe
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