Alain CornetLupus Europe will be attending the following: EPF WE CARE – Final project meeting EUPATI – Taking off in your country – An interactive Workshop on Implementing in your country Eular PARE annual European conference – Members can read Blanca Rubio’s report from last year by following this link
Alain CornetTomorrow, 30th March, Katharine will be taking part in the second meeting of the EPF working group on Access to Healthcare. More details here.
Alain CornetDear Lupus Europe members, The theme for this year’s World Lupus Day is “Tame your wolf – Tame your lupus”. We were delighted to be able to ask Leslie Quagraine, a fellow lupus sufferer, if he could produce the artwork for our campaign. Leslie was born in London but is a long-time resident in Finland. […]
Alain CornetWork on the Lupus Tamer book is nearly complete for French and English. We will announce when it is available in e-book format.
Alain CornetFollowing on from the workshop held during the Helsinki convention, LUPUS EUROPE organised a Patient panel, bringing together 10 people living with lupus, from 7 countries, to share their experience about “treatment”, with a view to help improving the quality of life of people living with lupus. The Panel was conducted through a series of interactive presentations, […]
Alain CornetKirsten attended the Lupus Academy meeting in Rome from 27-28th February – 1st March The trustees will be meeting from 20th – 22nd March – Items on the agenda include organisation for our 2015 Convention to be held in Vienna following directly on from the ICL congress – more information on the convention coming soon!
Alain CornetWe have created this blog to keep you up to date with the latest news and happenings in Lupus Euorpe. We hope you enjoy reading it.
📣 One week left to register for our online EUPATI Essentials Training! 📣
Are you an industry, academia or consortium member wanting to enhance your knowledge on patient engagement?
🎯 Register now ▶️ https://bit.ly/4auAmen
#EUPATI #Essentials #OnlineTraining #RegisterToday
My absolute pleasure to work with @Lupusreference CC Mok and Talia for this nice review, prepared for the general medical community to better understand Dx challenge and Mx of SLE. Lots we can do to improve outcomes inc comorbidity burden! https://authors.elsevier.com/a/1ixq7V-4XOrME
✅ It is my IMMENSE PLEASURE to share with you our SEMINAR on systemic #Lupus just published in... The LANCET!!!!! Amazing work driven by @alberta_hoi 👍
LINK: https://authors.elsevier.com/a/1ixq7V-4XOrME
Urgent Reminder: The #NotJustMySkin campaign wraps up on April 19th. Join us in advocating for the prioritization of skin health by signing the open letter at http://notjustmyskin.org. Show your support & help spread the word by sharing this post. #ActNow #SkinHealthAwareness
🚨 Calling all lupologists!
✅ Kindly share our Living With Lupus survey and help us get as many responses as possible.
🇪🇺 Available in 21 languages!
https://buff.ly/3VZLsEc
✅ Just 3 more days before the 4th @SLEuroSociety Advanced #Workshop for #Lupus of Porto (19-20 April) and I'm happy to share my recap slide about antinuclear antibodies (#ANA) in #SLE 📝 We're going to discuss atypical lupus cases...so it's good to know what is typical first 👍
Part 2 of our #LupusNephritis case-based modules reviews treatment guidelines for #lupus nephritis and the prevention of chronic #kidneyDisease, with expertise from @ykoteng_LUMC and Luis Quintana: http://lupusCME.org #RheumTwitter #rheumatology #SLE #kidney #CME #autoimmune
Our Board & extended Board met last week for 2️⃣ full➕exciting days of work on the strategic plan. Lots of exciting plans in the pipeline🤩!
We also hosted an Industry Roundtable, bringing together our Industry Partners to talk about our work.
More on that 🔜 in the newsletter!
✍🏻Пройдіть опитування.
🔊Поділіться з вашою громадою.
👨🏼⚕Якщо ви медичний працівник і лікуєте пацієнтів з лупусом в Європі, ми були б дуже вдячні, якби ви поінформували своїх пацієнтів.
buff.ly/3xIyiBy
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Tässä Lupus Europen kysely, vastauksia toivotaan myös miehiltä. Vastausaikaa on tiistaihin 30.4. asti
s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
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Drogie Motylki, 🦋🥰
mamy do Was prośbę o wypełnienie ankiety LUPUS EUROPE.
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
Udział w tego typu ankietach ma wpływ na badania, zatwierdzenie leków, praktyki lekarskie oraz na publikacje naukowe wyników, które są cytowane w różnych artykułach w czasopismach medycznych.
Dzięki poprzedniej dużej ankiecie powstał lupus100.org
Dlatego bardzo prosimy o poświęcenie kilku minut na wypełnienie ankiety. Dzięki temu, mamy wpływ na to, co dla nas jest najważniejsze.
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
#lupuspoland #lupuseurope #ankieta #toczeń #sle
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