Did you know? Lupus is a Rare Disease!

Lupus is rare, but not for us! Come and join us working on our vision:

A fulfilling life

for all people with Lupus in Europe

until we have reached a world without Lupus

What is a rare disease?  It changes from country to country, but in Europe it means that the disease affects less than 1 in 2000 people.  However, Lupus is also an umbrella word that covers many different types of the disease, as Lupus can affect the joints, skin, kidneys, blood cells, brain, heart and lungs. Each one of these expressions of the disease are rare and very specific, with different treatments.  Lupus is an autoimmune disease, mainly affecting women all around the globe.

To learn more about Lupus and how to help – link to www.lupus-europe.org

to learn more about “Rare Disease Day” – link to https://www.rarediseaseday.org/

To learn more about Lupus as a rare disease – link to https://www.orpha.net/ and search for SLE or ORPHA:536.

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5 days ago

As much as we love hearing from you all and appreciate the time you take to share how you #kicklupus and inspire others, we cannot allow any content specifically about healing products for lupus.

We would greatly appreciate if you followed this rule when posting on the page.
Thank you
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1 week ago

#WorldLupusDay finishes today, but #lupusawareness does not. There is so much more we can do to make life with #lupus better. Watch our vice chair, Anne Charlet, talk about her journey of becoming a Board Member.
You can also join us and become a volunteer
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Comment on Facebook

Wauvvvv SO good looking :-)

LUPUS EUROPE Uniting people with Lupus throughout Europe