Did you know? Lupus is a Rare Disease!

Lupus is rare, but not for us! Come and join us working on our vision:

A fulfilling life

for all people with Lupus in Europe

until we have reached a world without Lupus

What is a rare disease?  It changes from country to country, but in Europe it means that the disease affects less than 1 in 2000 people.  However, Lupus is also an umbrella word that covers many different types of the disease, as Lupus can affect the joints, skin, kidneys, blood cells, brain, heart and lungs. Each one of these expressions of the disease are rare and very specific, with different treatments.  Lupus is an autoimmune disease, mainly affecting women all around the globe.

To learn more about Lupus and how to help – link to www.lupus-europe.org

to learn more about “Rare Disease Day” – link to https://www.rarediseaseday.org/

To learn more about Lupus as a rare disease – link to https://www.orpha.net/ and search for SLE or ORPHA:536.

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7 days ago
LUPUS EUROPE

Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus.

What is the question you should have asked and you didn't?

What is the question you think physicians should answer without being asked?

#Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.
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Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus. 

What is the question you should have asked and you didnt?

What is the question you think physicians should answer without being asked?
 
#Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.

Comment on Facebook

Qu'es le lupus ? Moi j'ai eu a " c'est un lupus...comme votre grand mère" point final Je me suis imaginer ,mes mains se déformer,me paralyser j'ai eu peur maintenant 7 ans plus tard bien-sûr chez changer d'internet me suis tourné vers un rhumatologue et centre des douleurs un nouveau immunosuppresseurs mais pas d'explication sur les effets secondaires a part pour le foie ... suspens es ce que mon corps va accepte ce médicament

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Medication side effects short and long twem

1 week ago
LUPUS EUROPE

More good news for the #lupus commnunity!!

Voclosporin has been approved in Europe for the treatment of adults with active lupus nephritis in combination with a background immunosuppressive therapy regimen.

ir.auriniapharma.com/press-releases/detail/263/aurinia-announces-european-commission-approval-of
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1 week ago
LUPUS EUROPE

Date is set! And #Lupus100 is fast approaching.
If you haven't done yet, subscribe to our newsletter to get the latest updates!

www.lupus-europe.org/me-lupus/lupus-europe-info-centre/
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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