As part of its cooperation with the ERN ReCONNET, Lupus Europe is launching an important survey, which we would like to ask you to disseminate as largely as you can to people actually living with lupus. We have made the effort of providing 13 different languages, and are open to adding new ones, so we hope that the responses will be at the measure of the effort. Our objective is to have at least 1 answer per 200,000 inhabitants in your country… Make the count and help us beat it.

The survey will be available at this link https://www.surveylegend.com/s/1gr6 till the end of June. It typically takes less than 5 minutes to complete.

While several questions are focused, on a current hot topic (discover which one by taking part in the survey 😊) there is more to it than you can think at a first glance. This survey is a first effort to collect some general information, which we will then be able to use next year when for the big Living with Lupus in 2020 survey. The more answers we get, the more feedback we obtain on the tool and the questions, … the better equipped we will be for the 2020 survey.

Share the link on  your Facebook group(s), send it to friends, encourage participation and distribute as widely as you can to people living with lupus, so that we gather valuable information. the only condition to participate is to have any form of lupus…

Thank you for your support

LUPUS EUROPE

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6 days ago
LUPUS EUROPE

Do you have #lupus?

Are you 18-30 years old and a volunteer of your national lupus group or interested in volunteering? In that case, get in contact with us and join us for exciting opportunities to exchange ideas and have some fun!

Send an email to zoe@lupus-europe.com and we will tell you more …
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Do you have #lupus?

Are you 18-30 years old and a volunteer of your national lupus group or interested in volunteering? In that case, get in contact with us and join us for exciting opportunities to exchange ideas and have some fun!

Send an email to zoe@lupus-europe.com and we will tell you more …
2 weeks ago
LUPUS EUROPE

In Lupus Europe, we work hard to fulfil our mission. A very important part of that work is to not only be successful in the projects we undertake, but to have high standards and to work collaboratively with #lupus patients, our member organisations and also with lupologists!

This morning we had a medical roundtable meeting, where we had the opportunity to discuss our Strategic Plan for 2023-2028 with a team of incredible lupologists: Professors Arnaud, Houssiau, Limper, Mosca and Schneider gave us incredibly useful feedback today and we had a very productive meeting with them!
... See MoreSee Less

In Lupus Europe, we work hard to fulfil our mission. A very important part of that work is to not only be successful in the projects we undertake, but to have high standards and to work collaboratively with #lupus patients, our member organisations and also with lupologists! 

This morning we had a medical roundtable meeting, where we had the opportunity to discuss our Strategic Plan for 2023-2028 with a team of incredible lupologists: Professors Arnaud, Houssiau, Limper, Mosca and Schneider gave us incredibly useful feedback today and we had a very productive meeting with them!Image attachment
3 weeks ago
LUPUS EUROPE

We are delighted to announce the start of our annual #KickLupus competition! Send your submission in the format of your choice (drawing/video/writing) & tell us:
How has volunteering for a #lupus organisation helped change your life?
Amazing prize to be announced soon!
... See MoreSee Less

We are delighted to announce the start of our annual #KickLupus competition! Send your submission in the format of your choice (drawing/video/writing) & tell us: 
How has volunteering for a #lupus organisation helped change your life? 
Amazing prize to be announced soon!
3 weeks ago
LUPUS EUROPE

LUPUS EUROPE • Newsletter • November 2022

Have you read our latest newsletter?
Read all about it by going to
mailchi.mp/lupus-europe.org/lupus-europe-newsletter-november2022
... See MoreSee Less

LUPUS EUROPE • Newsletter • November 2022

Have you read our latest newsletter? 
Read all about it by going to
https://mailchi.mp/lupus-europe.org/lupus-europe-newsletter-november2022

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Защо не се превеждат статийте за лупус

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