Alain CornetAs part of its cooperation with the ERN ReCONNET, Lupus Europe is launching an important survey, which we would like to ask you to disseminate as largely as you can to people actually living with lupus. We have made the effort of providing 13 different languages, and are open to adding new ones, so we hope that the responses will be at the measure of the effort. Our objective is to have at least 1 answer per 200,000 inhabitants in your country… Make the count and help us beat it.
The survey will be available at this link https://www.surveylegend.com/s/1gr6 till the end of June. It typically takes less than 5 minutes to complete.
While several questions are focused, on a current hot topic (discover which one by taking part in the survey 😊) there is more to it than you can think at a first glance. This survey is a first effort to collect some general information, which we will then be able to use next year when for the big Living with Lupus in 2020 survey. The more answers we get, the more feedback we obtain on the tool and the questions, … the better equipped we will be for the 2020 survey.
Share the link on your Facebook group(s), send it to friends, encourage participation and distribute as widely as you can to people living with lupus, so that we gather valuable information. the only condition to participate is to have any form of lupus…
Thank you for your support
LUPUS EUROPE
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Hi Alain.
Put the survey on FB. I suppose Jeanette will put it on our webside, she is one of the two who have access to the site.
Hope you and your family are doing well
.Big hug
Tove