December board meeting

The LUPUS EUROPE board met in Milan for a fruitful week-end of meetings from 9-11th of December.

Several topics were on the agenda, including the very first preparations for the 2017 convention and mapping out the very busy 2017 calendar of events and work sessions. As well as the board (minus the wonderful Anne who was unfortunately unable to attend), Augusta Canzona, Lucia Di Bernado and Daniela Rava from Lupus Italy were on hand to help out with convention details.

From left to right, Augusta Canzona, Kirsi Myllys, Kirsten Lerstrom, Alain Cornet, Katharine Wheeler, Lucia Di Bernardo, Sara Badreh and Jeanette Andersen (front).

board-plus-italy

facebookShare on Facebook
TwitterTweet
FollowFollow us

About the author

Alain Cornet

    Live Facebook Feed

    Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
    LUPUS EUROPE
    2 days ago
    LUPUS EUROPE

    🍂 Welcome October, welcome new #kicklupus challenge!

    🤔Can you guess our October theme based on this sneak peek image?

    👀 Stay tuned because this month, we're unveiling a powerful way to fortify our health!     ... See MoreSee Less

    🍂 Welcome October, welcome new #KickLupus challenge! 🤔Can you guess our October theme based on this sneak peek image? 👀 Stay tuned because this month, were unveiling a powerful way to fortify our health!
    View on Facebook
    · Share
    Share on Facebook Share on Twitter Share on Linked In Share by Email
    View Comments
    • likes 16
    • Shares: 1
    • Comments: 2

    2 CommentsComment on Facebook

    Thank you! Great moment indeed.

    I am so delighted to have found this page, very supportive and informative. I was diagnosed with SLE lupus in 2015, my symptoms started out with severe fatigue, poor balance, numbness, heat intolerance, and anxiety. I was unable to go back to work, so I tried analgesics for about 6 years. Tried every shot available, and all made me sick. In November 2023, I started on lupus Herbal formula from www. multivitamincare .org , the treatment worked incredibly for my SLE condition. I used the Natural Lupus Herbal formula for a total time period of 3 months, it totally reversed lupus. I had a total decline of all symptoms including joint stiffness, ulcers, and others. Sometimes, I totally forget I ever had Lupus.

    LUPUS EUROPE
    4 days ago
    LUPUS EUROPE

    🔴 People with #lupus are twice as likely to develop cardiovascular disease as healthy people.

    👀 Learn more about cardiovascular risk management in rheumatic and musculoskeletal diseases (RMDs) with the EULAR recommendations ➡️ ➡️ ard.bmj.com/content/81/6/768

    🔴 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗶𝘀 𝗸𝗲𝘆 in RMDs Like #lupus.

    1️⃣ Always talk to your physician about preventive measures.
    2️⃣ Work to minimise risk factors ⤵️

    - Don't smoke🚭
    - Practise exercise🏃‍♂️
    - Have a healthy diet🍏

    #WorldHeartDay     ... See MoreSee Less

    🔴 People with #lupus are twice as likely to develop cardiovascular disease as healthy people. 👀 Learn more about cardiovascular risk management in rheumatic and musculoskeletal diseases (RMDs) with the EULAR recommendations ➡️ ➡️ https://ard.bmj.com/content/81/6/768 🔴 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗶𝘀 𝗸𝗲𝘆 in RMDs Like #lupus. 1️⃣ Always talk to your physician about preventive measures. 2️⃣ Work to minimise risk factors ⤵️ - Dont smoke🚭 - Practise exercise🏃‍♂️ - Have a healthy diet🍏 #WorldHeartDayImage attachment
    View on Facebook
    · Share
    Share on Facebook Share on Twitter Share on Linked In Share by Email
    View Comments
    • likes love 20
    • Shares: 1
    • Comments: 1

    1 CommentComment on Facebook

    I am so delighted to have found this page, very supportive and informative. I was diagnosed with SLE lupus in 2015, my symptoms started out with severe fatigue, poor balance, numbness, heat intolerance, and anxiety. I was unable to go back to work, so I tried analgesics for about 6 years. Tried every shot available, and all made me sick. In November 2023, I started on lupus Herbal formula from www. multivitamincare .org , the treatment worked incredibly for my SLE condition. I used the Natural Lupus Herbal formula for a total time period of 3 months, it totally reversed lupus. I had a total decline of all symptoms including joint stiffness, ulcers, and others. Sometimes, I totally forget I ever had Lupus.

    LUPUS EUROPE
    7 days ago
    LUPUS EUROPE

    ⁉️Do you have depression? If you do, know that it is frequent in #lupus patients.

    🚨Our 2020 Living with Lupus survey unveiled that #depression ranks among the most common symptoms in lupus patients.

    ⚠️ Out of 683 patients (16.7%) who identified anxiety or depression as one of their most bothersome symptoms, only 315 (46.1%) reported using antidepressant or anxiolytic medication.

    lupus.bmj.com/content/8/1/e000469

    🔬 Recent studies support these findings, revealing that depressive symptoms affect anywhere from 11% to 71% of patients with systemic lupus erythematosus (SLE).

    🔴 This common neuropsychiatric manifestation can be due to:

    1️⃣ The illness itself.
    2️⃣ Some of its treatments.
    3️⃣ Other clinical variables, like fatigue or pain.
    4️⃣ Sociodemographic factors.

    👉 A specific study highlighted that #SLE patients report worse health-related quality of life, fatigue, anxiety, depression, and sleep quality compared to the general population and other chronic diseases.

    ‼️ Understanding these realities profoundly is essential for providing lupus patients with the necessary support and holistic care.

    ✅ It's crucial to encourage dialogue and action around mental health.

    🌈 The #kicklupus campaign is committed to shedding light on these issues and driving positive change in the lives of those affected by lupus.

    For more information and support, visit the member organisations section on our website and reach out to your national lupus organisation.

    www.lupus-europe.org/lupus-members/     ... See MoreSee Less

    ⁉️Do you have depression? If you do, know that it is frequent in #lupus patients. 🚨Our 2020 Living with Lupus survey unveiled that #depression ranks among the most common symptoms in lupus patients. ⚠️ Out of 683 patients (16.7%) who identified anxiety or depression as one of their most bothersome symptoms, only 315 (46.1%) reported using antidepressant or anxiolytic medication. https://lupus.bmj.com/content/8/1/e000469 🔬 Recent studies support these findings, revealing that depressive symptoms affect anywhere from 11% to 71% of patients with systemic lupus erythematosus (SLE). 🔴 This common neuropsychiatric manifestation can be due to: 1️⃣ The illness itself. 2️⃣ Some of its treatments. 3️⃣ Other clinical variables, like fatigue or pain. 4️⃣ Sociodemographic factors. 👉 A specific study highlighted that #SLE patients report worse health-related quality of life, fatigue, anxiety, depression, and sleep quality compared to the general population and other chronic diseases. ‼️ Understanding these realities profoundly is essential for providing lupus patients with the necessary support and holistic care. ✅ Its crucial to encourage dialogue and action around mental health. 🌈 The #KickLupus campaign is committed to shedding light on these issues and driving positive change in the lives of those affected by lupus. For more information and support, visit the member organisations section on our website and reach out to your national lupus organisation. https://www.lupus-europe.org/lupus-members/Image attachmentImage attachment+1Image attachment
    View on Facebook
    · Share
    Share on Facebook Share on Twitter Share on Linked In Share by Email
    View Comments
    • likes 20
    • Shares: 9
    • Comments: 1

    1 CommentsComment on Facebook

    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    🦋 Participate in the LUPPOS Survey!

    Help health professionals understand your attitudes towards steroid use in #SLE treatment.

    📊 This study aims to identify the habits and attitudes towards the use and withdrawal of glucocorticoids among those living with SLE.

    💬 The survey is available in English, French, Spanish, Portuguese, and Italian.

    Your responses will help improve patient care.

    🔗 Participate and share your valuable insights:

    🇬🇧English: forms.gle/QajmuT7AtTZw1YeaA
    🇫🇷French: forms.gle/LzJ9ZNPzejToveWX9
    🇪🇸Spanish: forms.gle/U78xb3CrdPr7ZUPh7
    🇵🇹Portuguese: forms.gle/Ej5jmc5SHezbt7Cn7
    🇮🇹Italian: forms.gle/rgByP8KZDMLY8f2V9     ... See MoreSee Less

    🦋 Participate in the LUPPOS Survey! Help health professionals understand your attitudes towards steroid use in #SLE treatment. 📊 This study aims to identify the habits and attitudes towards the use and withdrawal of glucocorticoids among those living with SLE. 💬 The survey is available in English, French, Spanish, Portuguese, and Italian. Your responses will help improve patient care. 🔗 Participate and share your valuable insights: 🇬🇧English: https://forms.gle/QajmuT7AtTZw1YeaA 🇫🇷French: https://forms.gle/LzJ9ZNPzejToveWX9 🇪🇸Spanish: https://forms.gle/U78xb3CrdPr7ZUPh7 🇵🇹Portuguese: https://forms.gle/Ej5jmc5SHezbt7Cn7 🇮🇹Italian: https://forms.gle/rgByP8KZDMLY8f2V9
    View on Facebook
    · Share
    Share on Facebook Share on Twitter Share on Linked In Share by Email
    View Comments
    • likes 11
    • Shares: 7
    • Comments: 0

    0 CommentsComment on Facebook

    LUPUS EUROPE Uniting people with Lupus throughout Europe
    Send