In September, during the LUPUS EUROPE convention, we were delighted to welcome Jeanette Andersen to the board. She has written a little introduction for those who don’t already know her from her work in LUPUS EUROPE and Young PARE.

JeanetteAndersen04 head shot

“I was diagnosed with SLE in 2011, although I had had symptoms of the disease since the year 2000. I have a master´s degree in German and Philosophy from the University of Copenhagen and was a teacher in higher education until 2012.

Since I had to stop working in 2012, I have dedicated my time and energy to volunteer work for Lupus Denmark. In addition, I am a EULAR Young PARE working group member and now also on the LUPUS EUROPE board of trustees.

SLE has changed my life from a very active one, with a full-time job and a lot of fitness in my spare time to a condition, where I am immobilised in a wheelchair and can work only a few hours a week. Despite the disease casting a shadow over my life, my positive attitude and outlook has made me find a new purpose and meaning in life by helping other people with lupus all across Europe.

Unfortunately, I have been in the hospital a lot for my beginnings on the LUPUS EUROPE board, but hopefully things will change for the better and I will be able to be more active in the near future. For now, my two main focuses in LUPUS EUROPE are on the young lupus patients and communication to our members.”

 

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7 days ago
LUPUS EUROPE

Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus.

What is the question you should have asked and you didn't?

What is the question you think physicians should answer without being asked?

#Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.
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Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus. 

What is the question you should have asked and you didnt?

What is the question you think physicians should answer without being asked?
 
#Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.

Comment on Facebook

Qu'es le lupus ? Moi j'ai eu a " c'est un lupus...comme votre grand mère" point final Je me suis imaginer ,mes mains se déformer,me paralyser j'ai eu peur maintenant 7 ans plus tard bien-sûr chez changer d'internet me suis tourné vers un rhumatologue et centre des douleurs un nouveau immunosuppresseurs mais pas d'explication sur les effets secondaires a part pour le foie ... suspens es ce que mon corps va accepte ce médicament

Recording your appointment helps

Medication side effects short and long twem

1 week ago
LUPUS EUROPE

More good news for the #lupus commnunity!!

Voclosporin has been approved in Europe for the treatment of adults with active lupus nephritis in combination with a background immunosuppressive therapy regimen.

ir.auriniapharma.com/press-releases/detail/263/aurinia-announces-european-commission-approval-of
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1 week ago
LUPUS EUROPE

Date is set! And #Lupus100 is fast approaching.
If you haven't done yet, subscribe to our newsletter to get the latest updates!

www.lupus-europe.org/me-lupus/lupus-europe-info-centre/
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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