17039112_1416509001714366_4066735195383475998_o

Monday 27th saw the official launch of EPF’s campaign on Access to Healthcare at the European Parliament. LUPUS EUROPE has been involved in the Working group for this project and the working group met on Tuesday to discuss Monday’s meeting and the next steps and the work which remains ahead. There is still a lot of work to do on this very important subject.

Photos from the kick off meeting at the parliament are visible on EPF’s facebook page here.

The following article is copied from EPF’s web page on the campaign.

Campaign on Access to Healthcare

From January 2017, EPF carries a flagship campaign on Access to Healthcare. This theme is a long standing priority for EPF and its membership, and is at the heart of the vision of the organisation.

Under the tagline ‘Universal Health Coverage For All’, the campaign is an opportunity to raise awareness about the barriers patients face in accessing healthcare, and to build on current political momentum – including the UN Sustainable Development Goals for health – to foster more EU cooperation on access to healthcare.

The EPF Working Group on Access drafted the following overarching strategic objective for the campaign:

The EPF Access campaign will contribute to make universal access a reality for EU patients by 2030, through defining and promoting concrete actions, in concert with the health community, to which decision makers need to commit, to ensure we achieve the Health SDGs by 2030.”

EPF has used use its prior work on access to shape the messages of the campaign; in particular looking at the definition of access to healthcare, and the statement on pricing and reimbursement of innovative medicines.

Practical info

The one-year campaign will be officially launched on 27 February at the European Parliament, in Brussels. The event – co-hosted by MEP Kateřina Konečná (GUE/NGL, Czech Republic) and MEP Andrey Kovatchev (EPP, Bulgaria) – will be an opportunity to present the campaign and to discuss what actions should be taken to achieve Universal Health Coverage at European level.

Rationale – Why a campaign on access?

Disparities in access to healthcare predate the financial crisis in Europe, but against a background of austerity measures and falling healthcare spending in many Member States since 2009, inequalities have been made worse. Access to care is affected by austerity policies in response to the economic crisis, such as cuts in healthcare budgets and in insurance coverage, increased fees and co-payments, and cuts in social protection measures.

At the same time, healthcare systems are facing increasing demands as a result of demographic change. As the population ages, the number of patients with chronic diseases is growing. Patients who developed a chronic disease at a younger age are also living longer, thanks to modern medical treatments. Patients with chronic diseases develop specific needs which the healthcare systems need to adapt to.

Patients across the EU are reporting multiple barriers to access to healthcare, whether it’s not available, not adapted to needs, or not affordable. EU Member States need to overturn the current trends of short sighted decisions on investment in healthcare, and commit to realising universal access by 2030 by taking concrete steps. EU Member States need to achieve universal health coverage and improve access to healthcare by 2030 according to the UN Sustainable Development Goals.

Contact

If you have questions about the campaign, don’t hesitate to contact us!

  • For policy-related content:

Katie Gallagher – Policy Adviser

  • For dissemination/communication activities & material:

Laurent Louette – EPF Communications Officer

Sara Gayarre – EPF Communications Assistant

 

 

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

🦋 Living with lupus can feel overwhelming when you're trying to sift through an ocean of information that may or may not be reliable.

🥵 Are you tired of endless searches?
😵‍💫 Do you feel overwhelmed by medical jargon?

🙌 It’s time to try #LupusGPT! Our AI-driven tool is designed to cut through the noise, providing you with trusted, doctor/patient-validated information.

💫 Whether you're a newly diagnosed patient, a long-term one, or a caregiver, #LupusGPT offers the support and knowledge you need to make informed health decisions alongside the invaluable support and guidance of your medical team.

🌍 Plus, with availability in multiple languages, #LupusGPT ensures that high-quality lupus information is accessible to everyone, no matter where you are or what language you speak.

Visit s.mtrbio.com/dkbhqzgrrd now and share this post to help us spread the word. Help us empower more individuals to gain control over their lupus management!
... See MoreSee Less

🦋 Living with lupus can feel overwhelming when youre trying to sift through an ocean of information that may or may not be reliable.

🥵 Are you tired of endless searches?
😵‍💫 Do you feel overwhelmed by medical jargon?

🙌 It’s time to try #LupusGPT! Our AI-driven tool is designed to cut through the noise, providing you with trusted, doctor/patient-validated information.

💫 Whether youre a newly diagnosed patient, a long-term one, or a caregiver, #LupusGPT offers the support and knowledge you need to make informed health decisions alongside the invaluable support and guidance of your medical team.

🌍 Plus, with availability in multiple languages, #LupusGPT ensures that high-quality lupus information is accessible to everyone, no matter where you are or what language you speak.

Visit https://s.mtrbio.com/dkbhqzgrrd now and share this post to help us spread the word. Help us empower more individuals to gain control over their lupus management!
5 days ago

⁉️ Do you want to know more about diet & #lupus?

✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language.

🔊 Whether you're looking for tips on living with lupus, treatment options, or understanding lupus better, this website has it all. Plus, it's available in multiple European languages! Making it accessible to a wider audience.

Check it out now! ⬇️

lupus100.org/en/questions/should-we-follow-a-special-diet-in-lupus

🇩🇰 lupus100.org/da/questions/should-we-follow-a-special-diet-in-lupus
🇩🇪 lupus100.org/de/questions/should-we-follow-a-special-diet-in-lupus
🇪🇸 lupus100.org/es/questions/should-we-follow-a-special-diet-in-lupus
🇬🇷 lupus100.org/el/questions/should-we-follow-a-special-diet-in-lupus
🇫🇷 www.rhumatismes.net/index.php?id_q=854
🇮🇹 lupus100.org/it/questions/should-we-follow-a-special-diet-in-lupus
🇱🇹 lupus100.org/lt/questions/should-we-follow-a-special-diet-in-lupus
🇳🇱 lupus100.org/nl/questions/should-we-follow-a-special-diet-in-lupus
🇵🇹 lupus100.org/pt/questions/should-we-follow-a-special-diet-in-lupus
🇷🇴 lupus100.org/ro/questions/should-we-follow-a-special-diet-in-lupus
🇫🇮 lupus100.org/fi/questions/should-we-follow-a-special-diet-in-lupus
🇺🇦 lupus100.org/uk/questions/should-we-follow-a-special-diet-in-lupus
🇷🇺 lupus100.org/ru/questions/should-we-follow-a-special-diet-in-lupus
Catalan: lupus100.org/ca/questions/should-we-follow-a-special-diet-in-lupus
... See MoreSee Less

⁉️ Do you want to know more about diet & #lupus?

✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language.

🔊 Whether youre looking for tips on living with lupus, treatment options, or understanding lupus better, this website has it all. Plus, its available in multiple European languages! Making it accessible to a wider audience.

Check it out now! ⬇️

https://lupus100.org/en/questions/should-we-follow-a-special-diet-in-lupus

🇩🇰 https://lupus100.org/da/questions/should-we-follow-a-special-diet-in-lupus
🇩🇪 https://lupus100.org/de/questions/should-we-follow-a-special-diet-in-lupus
🇪🇸 https://lupus100.org/es/questions/should-we-follow-a-special-diet-in-lupus
🇬🇷 https://lupus100.org/el/questions/should-we-follow-a-special-diet-in-lupus
🇫🇷 https://www.rhumatismes.net/index.php?id_q=854
🇮🇹 https://lupus100.org/it/questions/should-we-follow-a-special-diet-in-lupus
🇱🇹 https://lupus100.org/lt/questions/should-we-follow-a-special-diet-in-lupus
🇳🇱 https://lupus100.org/nl/questions/should-we-follow-a-special-diet-in-lupus
🇵🇹 https://lupus100.org/pt/questions/should-we-follow-a-special-diet-in-lupus
🇷🇴 https://lupus100.org/ro/questions/should-we-follow-a-special-diet-in-lupus
🇫🇮 https://lupus100.org/fi/questions/should-we-follow-a-special-diet-in-lupus
🇺🇦 https://lupus100.org/uk/questions/should-we-follow-a-special-diet-in-lupus
🇷🇺 https://lupus100.org/ru/questions/should-we-follow-a-special-diet-in-lupus
Catalan: https://lupus100.org/ca/questions/should-we-follow-a-special-diet-in-lupus
6 days ago

✅ Yes! As many of you guessed, the January theme of the #kicklupus campaign is... diet! One of the New Year's resolutions that is among the most commonly chosen by people every year.

🤓 Did you know that a well-balanced diet plays an essential role in the holistic approach to #lupus management🦋? It also helps support overall health and well-being.

🥦 From incorporating the Mediterranean diet🐟 to staying hydrated💧, small dietary changes can greatly impact the lives of those with lupus.

💪 Let's make this a year of health: join us in this challenge!

📸 Share your journey and tips and tricks towards a healthier diet using the hashtag and inspire others to make positive changes too.
... See MoreSee Less

✅ Yes! As many of you guessed, the January theme of the #KickLupus campaign is... diet! One of the New Years resolutions that is among the most commonly chosen by people every year.

🤓 Did you know that a well-balanced diet plays an essential role in the holistic approach to #lupus management🦋? It also helps support overall health and well-being.

🥦 From incorporating the Mediterranean diet🐟 to staying hydrated💧, small dietary changes can greatly impact the lives of those with lupus.

💪 Lets make this a year of health: join us in this challenge!

📸 Share your journey and tips and tricks towards a healthier diet using the hashtag and inspire others to make positive changes too.
1 week ago

🛠️ We are currently performing maintenance to enhance your experience with #LupusGPT.

✅ Adjustments & updates are normal and expected.

We appreciate your understanding & support as we fine-tune our tool to better meet your needs.
... See MoreSee Less

🛠️ We are currently performing maintenance to enhance your experience with #LupusGPT.

✅ Adjustments & updates are normal and expected.

We appreciate your understanding & support as we fine-tune our tool to better meet your needs.

1 CommentComment on Facebook

I come from a Pacific Island nation called Papua New Guinea. My country shares borders with Indonesia, Australia, and the Solomon Islands. I usually search on YouTube for interesting documentaries. Whilst looking up YouTube videos, I came across a documentary on people who suffer from SLE Lupus disease and their real treatment from www. multivitamincare .org. I had never heard of this crippling and debilitating disease affecting a lot of American Europeans. It is very tortuous to watch and hear patients who suffer. It is more like a combination of various diseases all put into one. Like a person who has suffered a stroke, plus someone suddenly becoming paralyzed, Parkinson's disease, COPD, ALS, cancer, etc., but I also get to understand that there has been a successful cure for this disease from www. multivitamin care. org It is too much for a patient to endure, such as they slowly begin to pass away if the right medication is not taken . Having a positive mind is a powerful tool . My prayers go out to Lupus patients and their caregivers.

LUPUS EUROPE Uniting people with Lupus throughout Europe
Send