Alain CornetKirsten represents LUPUS EUROPE at ERN meeting in Vilnius
For tweets and pictures from the event, visit LUPUS EUROPE’s twitter page.
From our recent newsflash: On March 9th EU President of the European Commission, Jean-Claude Juncker, opened the third meeting and Kick-off of the European Reference Networks (ERNs) taking place in Vilnius, Lithuania.
Please see the short video presenting the concept of ERNs here .
European reference networks (ERNs) help professionals and centres of expertise in different countries to share knowledge. ERNs should:
– apply EU criteria to tackle rare diseases requiring specialised care
– serve as research and knowledge centres treating patients from other EU countries
– ensure the availability of treatment facilities where necessary
24 ERNs have been established, with LUPUS EUROPE the patient representative in the ReCONNet on rare and complex rheumatic diseases, along with, among others, Scleroderma and EURORDIS’ EPAG. For more information , please contact Kirsten.
For tweets and pictures from the event, visit LUPUS EUROPE’s twitter page.
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