The First Ever Interim Review Meeting

 

The 18th of September 2023 marked a significant milestone for Lupus Europe as the Lupus Europe Board and National Members from across Europe gathered virtually for the first-ever Interim Review Meeting. It was wonderful to see so many familiar faces on the screen! Everyone was united by a common purpose: working together towards a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.

National Member Spotlight

We were astonished by the passion and commitment of our National Members. It was a delight to hear about the incredible activities they are undertaking in their own countries and communities. Their dedication and the breadth of their work are truly inspiring.

The Purpose of Interim Review Meetings

The Interim Review Meeting is held annually, approximately six months after the Lupus Europe General Assembly. The Interim Review is one of the ways through which we work to ensure National Member Organisations are kept informed on the progress of Lupus Europe initiatives and that members actively participate in discussions on priorities and projects. It is also a great opportunity for the Lupus Europe community to come together to hear about the needs and the amazing work of its members. One of the focal points of the Interim Review Meeting was updating National Members on the progress of Lupus Europe initiatives in 2023 and discussing priorities for the upcoming year, 2024.

Perhaps the most powerful takeaway from the meeting was the sense of unity and solidarity among National Members. Their passion and dedication are a testament to the strength of the Lupus Europe Community.

We extend our heartfelt gratitude to everyone who participated in the Interim Review Meeting. Your presence and contributions were invaluable. Remember, our communication channels are always open. Whether you have questions, ideas, or simply want to connect, do not hesitate to reach out. Together, we are stronger, and together, we will continue to make a difference for people with lupus in Europe.

 

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2 days ago

🏆 We’re thrilled to announce that #LupusGPT has won the PFMD #MadeWithPatients Award 2025 as Best Emerging Innovation!

🌍A huge moment for Lupus Europe & the European #lupus community — proving what’s possible through true patient innovation and collaboration.

😃Celebrating at #EULAR2025!

#PEOF2025
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1 week ago

🏆 This Wednesday, we will find out if LupusGPT will win the PFMD Made with Patients Award 2025!

🎉 Join us in this exciting moment for the lupus community by watching the ceremony live online (registration is available at the link provided in our blog post).

👉 If you still don’t know what this huge achievement means, read our latest blog post, where you will also find the link to register for the live ceremony at the Patient Engagement Open Forum (PEOF).

💜 Created by patients, for patients, #LupusGPT and #EASYLupus are already breaking barriers in access to reliable, multilingual lupus information. Check the tool out and explore how easy it is to access valid and clear lupus information in your language.

Remember! All the information and links are available in our latest blog post!

www.lupus-europe.org/lupusgpt-made-with-patients-awards-2025/
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2 weeks ago

🟣 LUPUS-ALERT is moving forward!

Thanks to the amazing collaboration between healthcare professionals and patients, we’ve now identified many potential vulnerabilities that can impact access to appropriate lupus care.

We want to extend a special thank you to all the lupus patients who responded to our call and shared the barriers patients may face: financial, social, linguistic, geographic…

🌟 Your contribution is helping to develop a tool that will systematically identify the vulnerabilities patients face. This is a wonderful step towards lupus care that is more holistic, equitable, personalised, and responsive to patients' real-life needs.

🔝 A huge thank you to Prof. Laurent Arnaud, Dr. Daniel Guimarães de Oliveira - Imunologia Clínica, Jeanette Andersen, and Zoe Karakikla-Mitsakou for their invaluable contributions and commitment to LUPUS-ALERT!

🌍 And a special thank you to the many physicians and patients who have come together to work on this project for the benefit of lupus patients.

🚀 #LupusAlert now moves into Step 2!!!

🔔 Stay tuned!
... See MoreSee Less

🟣 LUPUS-ALERT is moving forward!

Thanks to the amazing collaboration between healthcare professionals and patients, we’ve now identified many potential vulnerabilities that can impact access to appropriate lupus care. 

We want to extend a special thank you to all the lupus patients who responded to our call and shared the barriers patients may face: financial, social, linguistic, geographic… 

🌟 Your contribution is helping to develop a tool that will systematically identify the vulnerabilities patients face. This is a wonderful step towards lupus care that is more holistic, equitable, personalised, and responsive to patients real-life needs.

🔝 A huge thank you to Prof. Laurent Arnaud, Dr. Daniel Guimarães de Oliveira - Imunologia Clínica, Jeanette Andersen, and Zoe Karakikla-Mitsakou for their invaluable contributions and commitment to LUPUS-ALERT!

🌍 And a special thank you to the many physicians and patients who have come together to work on this project for the benefit of lupus patients.

🚀 #LupusAlert now moves into Step 2!!!

🔔 Stay tuned!
2 weeks ago

#EULAR2025 is around the corner!

🦋 Lupus Europe plays a significant role in this year's Congress, with a diverse range of exciting topics and great participation.

✅ We will be sharing insights from most of the lupus sessions on X, so don't forget to follow us!

😃 Stay tuned!
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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