On February 3-5 2023, Lupus Europe organised its 2nd Patient Panel on Youth, bringing together 10 young people from all over Europe to share their experience of living with lupus. The Panel addressed key issues young participants identified in their life with lupus and explored the possibility of creating a Lupus Europe youth group.
In their own words, Participants write:
A group of European Young adults who are living with lupus met in Barcelona in February 2023 to discuss how to best support the next generation of people with lupus. Collectively, we put together what we would like to share about our treatment and experience of living with lupus with doctors.
To read the letter, go to: https://www.lupus-europe.org/wp-content/uploads/2023/07/Letter-to-the-Doctor.pdf
As a result of this Patient Panel, many of those young adults went on to form the Lupus Europe Youth Group. To find out more about this initiative e-mail firstname.lastname@example.org. To apply to join the next Youth Group Meet Up due to take place in October 2023, go to: https://www.lupus-europe.org/lupus-europe-youth-group-meet-up/