Image shows the participants of the Lupus Europe 2nd Patient Panel on Youth, in a meeting room. Participants are split into two groups, across two tables and they are in the middle of a workshop. A slide on being a young patient with lupus is projected onto the screen. On February 3-5 2023, Lupus Europe organised its 2nd Patient Panel on Youth, bringing together 10 young people from all  over Europe to share their experience of living with lupus. The Panel addressed key issues young participants identified in their life with lupus and explored the possibility of creating a Lupus Europe youth group.

 

 

 

 

 

In their own words, Participants write: 

A group of European Young adults who are living with lupus met in Barcelona in February 2023 to discuss how to best support the next generation of people with lupus. Collectively, we put together what we would like to share about our treatment and experience of living with lupus with doctors.

To read the letter, go to: https://www.lupus-europe.org/wp-content/uploads/2023/07/Letter-to-the-Doctor.pdf 

 

As a result of this Patient Panel, many of those young adults went on to form the Lupus Europe Youth Group. To find out more about this initiative e-mail secretariat@lupus-europe.org. To apply to join the next Youth Group Meet Up due to take place in October 2023, go to:  https://www.lupus-europe.org/lupus-europe-youth-group-meet-up/

 

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2 days ago

🏆 We’re thrilled to announce that #LupusGPT has won the PFMD #MadeWithPatients Award 2025 as Best Emerging Innovation!

🌍A huge moment for Lupus Europe & the European #lupus community — proving what’s possible through true patient innovation and collaboration.

😃Celebrating at #EULAR2025!

#PEOF2025
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1 week ago

🏆 This Wednesday, we will find out if LupusGPT will win the PFMD Made with Patients Award 2025!

🎉 Join us in this exciting moment for the lupus community by watching the ceremony live online (registration is available at the link provided in our blog post).

👉 If you still don’t know what this huge achievement means, read our latest blog post, where you will also find the link to register for the live ceremony at the Patient Engagement Open Forum (PEOF).

💜 Created by patients, for patients, #LupusGPT and #EASYLupus are already breaking barriers in access to reliable, multilingual lupus information. Check the tool out and explore how easy it is to access valid and clear lupus information in your language.

Remember! All the information and links are available in our latest blog post!

www.lupus-europe.org/lupusgpt-made-with-patients-awards-2025/
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2 weeks ago

🟣 LUPUS-ALERT is moving forward!

Thanks to the amazing collaboration between healthcare professionals and patients, we’ve now identified many potential vulnerabilities that can impact access to appropriate lupus care.

We want to extend a special thank you to all the lupus patients who responded to our call and shared the barriers patients may face: financial, social, linguistic, geographic…

🌟 Your contribution is helping to develop a tool that will systematically identify the vulnerabilities patients face. This is a wonderful step towards lupus care that is more holistic, equitable, personalised, and responsive to patients' real-life needs.

🔝 A huge thank you to Prof. Laurent Arnaud, Dr. Daniel Guimarães de Oliveira - Imunologia Clínica, Jeanette Andersen, and Zoe Karakikla-Mitsakou for their invaluable contributions and commitment to LUPUS-ALERT!

🌍 And a special thank you to the many physicians and patients who have come together to work on this project for the benefit of lupus patients.

🚀 #LupusAlert now moves into Step 2!!!

🔔 Stay tuned!
... See MoreSee Less

🟣 LUPUS-ALERT is moving forward!

Thanks to the amazing collaboration between healthcare professionals and patients, we’ve now identified many potential vulnerabilities that can impact access to appropriate lupus care. 

We want to extend a special thank you to all the lupus patients who responded to our call and shared the barriers patients may face: financial, social, linguistic, geographic… 

🌟 Your contribution is helping to develop a tool that will systematically identify the vulnerabilities patients face. This is a wonderful step towards lupus care that is more holistic, equitable, personalised, and responsive to patients real-life needs.

🔝 A huge thank you to Prof. Laurent Arnaud, Dr. Daniel Guimarães de Oliveira - Imunologia Clínica, Jeanette Andersen, and Zoe Karakikla-Mitsakou for their invaluable contributions and commitment to LUPUS-ALERT!

🌍 And a special thank you to the many physicians and patients who have come together to work on this project for the benefit of lupus patients.

🚀 #LupusAlert now moves into Step 2!!!

🔔 Stay tuned!
2 weeks ago

#EULAR2025 is around the corner!

🦋 Lupus Europe plays a significant role in this year's Congress, with a diverse range of exciting topics and great participation.

✅ We will be sharing insights from most of the lupus sessions on X, so don't forget to follow us!

😃 Stay tuned!
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