Lupus Europe Youth Group Meet Up

Lupus Europe Youth Group Meet Up

Lupus Europe is organising a Meet Up of the Lupus Europe Youth Group! This event will take place from October 20 to October 22, in Leuven (Belgium).

There are a few remaining spots available for new members to join:

Do you have lupus?
Do you live in geographical Europe?
Are you between 18-35 years old?
Do you speak English?
Do you want to connect with other young people with lupus?
Are you interested in volunteering?

Send us an e-mail, telling us your reasons for wanting to take part, and be selected to join other young people from all around Europe at an exciting meet up! You will have the opportunity to exchange ideas, make new friends and have some fun! The Lupus Europe Youth Group is made for young people with lupus by young people with lupus. No outsiders, just us.

All reasonable costs (travel and stay) will be paid by LUPUS EUROPE. The language will be English, but don’t worry, most participants are not native speakers!

Apply now by sending an e-mail to secretariat@lupus-europe.org

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Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

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2 May 1785999045741117708

🦋It's #LupusAwarenessMonth❗

🦵 #KickLupus: make it visible

Take part in the Living With Lupus in 2024 survey.

🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

🧵Find the link for all 21 languages in this thread⤵️

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26 Apr 1783851260069736915

Are you aware of the new recommendations on physical activity and exercise for patients with SLE?
Find out here 👉 https://loom.ly/2S3OoJg
@Lupusreference @mugartegil @IoannisParodis #MedEd #MedTwitter #lupus #RheumTwitter

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30 Apr 1785365872833429630

✅ May is #Lupusawareness month!!! 🦋 Let's spread the word! #Lupus is an #autoimmune disease affecting approximately 3.4 MILLION people in the world 🌎🌍🌏 and is associated with a wide range of #symptoms, some of which are not always visible!

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26 Apr 1783894560382374364

🙏 Si vives en España y no lo has hecho aún, rellena esta encuesta en español de @lupuseurope.

🦋 Necesitamos un buen número de respuestas de pacientes españoles para obtener datos más reales con los q poder trabajar para mejorar la calidad de vida de las personas con #lupus.

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30 Apr 1785233088039047246

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Compila il sondaggio.

🔊Condividi con il tuo network.

https://s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0

🙏 Help us and @GruppoLesItalia achieve more answers to ensure that the Italian population is represented in the results

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; Laurent ARNAUD @Lupusreference ·

27 Apr 1784107307992797233

✅ If you have not downloaded 📥 the 2024 #Lupus 'SEMINAR' 🧑‍🎓 from @TheLancet ⬇️ please keep in mind that this is a temporary (free) link ⏳ provided by the Editor before this moves on to regular download 😉⬇️⬇️⬇️

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; Lupus Europe @LupusEurope ·

29 Apr 1785006783406256194

❗Save the date❗

🤩Lupus Europe is excited to invite you to a unique event on #WorldLupusDay:

🧑‍💻“Lupus & Youth: A Dialogue between the Lupus Europe Youth Group & a Young Rheumatologist”

📆 10th May
🕖 19:00 CET

‼️ Register now! Send an e-mail to secretariat@lupus-europe.org

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; EULAR @eular_org ·

27 Apr 1784115265887781295

📢The call to submit your late-breaking abstracts to #EULAR2024 is open!

🔔Upcoming Deadline: 28 April 2024

Submit your clinical and scientific breakthroughs today👉https://pulse.ly/bwpafhygzd

#eularCONGRESS #EULAR #Rheumatology

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2 days ago

🦋 It's #LupusAwarenessMonth❗

🦵 #KickLupus: make it visible

Take part in the Living With Lupus in 2024 survey.

🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

𝗞𝗲𝘆 𝗽𝗼𝗶𝗻𝘁𝘀 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘂𝗿𝘃𝗲𝘆:

1️⃣ Confidential and brief: Your identity stays anonymous and takes only 15 minutes.
2️⃣ Personalized and relevant: The survey adapts to your unique situation and covers aspects pertinent to your life with lupus.

👨‍💻 We're gathering data to:

🔹 Understand the current landscape of lupus treatment and management in Europe.
🔹 Identify key areas for support and improvement.
🔹 Ensure that the voices of those living with lupus are heard.
🔹 Recognise the diverse needs and challenges faced by the lupus community.

🦋 This survey will dive into your unique experience on 🩺 diagnosis & symptoms, 💊 treatment & 👨‍👩‍👧‍👦 how lupus affects your daily activities and the strategies you employ to manage it.

🔄 Please 𝘀𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝘀𝘂𝗿𝘃𝗲𝘆 with your community and on your social media.

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Association Lupus erythémateux Belgique Luupuse Selts / Lupus Estonia Организация на пациентите с ревматологични заболявания Σύνδεσμος Ρευματοπαθών Κύπρου ΣύΡεΚ Lupus Suomi ry Association Francaise du lupus et autres maladies auto-immunes AFL + LUPUS FRANCE Lupus Erythematodes SHG e.V. Ελληνική Εταιρεία Αντιρευματικού Αγώνα ΕΛ Ε ΑΝ Α Lupus Poland Lupus Klub Motýlik Reumatikerförbundet Lupus UK Felupus Associação de Doentes com Lúpus ... See MoreSee Less

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♦️ Few days left to fill the Living With Lupus in 2024 survey!

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🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results

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LUPUS EUROPE Uniting people with Lupus throughout Europe