Zoe Karakikla-MitsakouLupus Europe Youth Group Meet Up Lupus Europe is organising a Meet Up of the Lupus Europe Youth Group! This event will take place from October 20 to October 22, in Leuven (Belgium). There are a few remaining spots available for new members to join: Do you have lupus? Do you live in geographical Europe? […]
Zoe Karakikla-MitsakouSandra Schaftner volunteers for the German Lupus Group, Lupus Erythematodes Selbsthilfegemeinschaft e.V.. She is also one of the German-version translation volunteers of Lupus100. Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus100.org has also been […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Ram Blass from Inbar who talked to us about the wonderful work the […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Marga Schut and Wendy Zacouris from NVLE who talked to us about the […]
Alain CornetLUPUS EUROPE is very committed to the success of the European Reference Networks (ERN), in particular ReCONNET where we have a very active role. One of our key contributions is to raise the patient voice. Professor Hachulla is seeking our input on unmet needs in the area of Therapeutic Education. We would like the questionnaire […]
Alain CornetToday is the first day of the big European Rheumatology Congress, EULAR. The 2018 edition is being held in Amsterdam and will reunite thousands of delegates, mainly medical professionals. Eular is “a platform to facilitate interactions between patients, medical doctors, scientists, health professionals and professionals representing the pharmaceutical industry, both from within Europe and from […]
Alain CornetWe at LUPUS EUROPE wish you all a great World Lupus Day, full of hope and awareness! For this we have created a little animated video about LUPUS EUROPE. Please feel free to share! [wpvideo ILoguQxs] We would also like to repost a video made a couple of years ago about the importance of World […]
Alain CornetLUPUS EUROPE BECOMES FIRST ASSOCIATE MEMBER OF SLEuro, the European Lupus Society We are very proud to announce that LUPUS EUROPE has just become the first Associate member of SLEuro, the European Lupus Society. SLEuro is a voluntary and non-political association with social and philanthropic purposes that promotes scientific research and information with regard to […]
Alain CornetOn December 6th Katharine Wheeler participated in the closing conference for EPF’s campaign on Access to Healthcare for All. At the conference EPF presented their Roadmap for Universal Health Coverage for all. Katharine was invited to speak as a patient organisation representative and stressed the importance of leaving no-one behind if we want to achieve […]
Alain CornetThe LUPUS EUROPE annual convention has just come to a close. Hosted in Milan by Lupus Italy on the occasion of their 30thanniversary, the convention was an inspiring event centred around the theme of “pain, fatigue and stress”, with Dr Chiara Tani as a key note speaker. Benefitting from the Italian Lupus Clinic experience, we […]
😃 ¿Has probado #SLAKE? Si tienes #lupus, ¡te la recomendamos al 100%!
#SLAKE is not just a quiz to test your knowledge about lupus — it's the first step toward personalised education 🙌 .
🔜 tailored digital content to help reinforce what you need most!
Check out this great slide by Prof. @Lupusreference 👇
✅ What's the plan with #SLAKE?
First, that anyone living with #lupus can test her/his essential knowledge about #SLE,
THEN that we (will) provide on-demand personalized digital content (educational videos mostly), tailored to the knowledge that needs to be reinforced 💪
🦋 How much do you really know about lupus?
Try #SLAKE — a quick, easy tool (available in 20 languages) to assess your #lupus knowledge!
👉 Take it now + keep learning at #Lupus100 & #LupusGPT!
https://maladie-autoimmune.fr/SLAKE/
cc @Lupusreference
💫 Do you know #SLAKE?
🦋 We are proud to have contributed to this exceptional tool from the beginning. This is a tool that can help enhance patients' knowledge of #lupus 👏
I would like to thank Antonin Satrin, who does his MD thesis on #SLAKE as well as our international groups of lupus experts & patient-experts including @LupusEurope & @Lupus_Chile. #SLAKE is now a @ERN_RECONNET project and we're proud of this as it will come in 15+ languages 👍
✅ T2T in #Lupus 👀 ⬇️⬇️
📥 LINK https://authors.elsevier.com/a/1kdub5alwYF%7EsD
#NosVemosEnPANLAR2025
🇪🇺On March 27, we held our General Assembly, bringing together all our member organisations to share updates & discuss future plans.
Also, @StopArtritis was admitted as member!
Welcome! We're excited to work together towards a fulfilling life for all people with lupus in Europe
✅ If you have #LUPUS and would like to test #SLAKE, our DIGITAL study designed to TEST your level of ESSENTIAL KNOWLEDGE about #SLE, please go to:
-English: https://lupusresearch.limequery.org/775349?lang=en
-Español: https://lupusresearch.limequery.org/775349?lang=es
Or go to English and select one of the 15 available languages 👌
🦋 How much do you really know about lupus?
Stop wondering — find out now with SLAKE, the Systemic Lupus Assessment score for Essential Knowledge.
✔️ Quick and easy
✔️ Just a few minutes
✔️ Available in 20 languages
✔️ Get your personal lupus knowledge score
SLAKE is not a test — it’s a tool designed to help you understand which areas of lupus you already know well and where you could learn more.
And if you want to keep learning, remember to visit #Lupus100 and #LupusGPT — two reliable resources to improve your lupus knowledge.
Don’t wait any longer.
👉 Click the link, choose your language, and take SLAKE today!
maladie-autoimmune.fr/SLAKE/
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🇪🇺 On March 27, Lupus Europe held its General Assembly, bringing together all our member organisations.
🗳️ We shared updates, discussed future plans, and welcomed Udruženje obolelih od reumatskih bolesti Republike Srbije - ORS as our newest member! 🎉
💜 Welcome to the family! We're excited to work together towards a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.
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🦋 Lupus Europe took part in the 2nd ERN RECONNET International Congress on rare and low-prevalence connective tissue diseases, held in Prague, Czech Republic, from April 9 to 11, 2025.
🙌 Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus!
👩 Our Chair, Jeanette Andersen, delivered a powerful session on The Patient Perspective on Telemedicine, highlighting the opportunities and challenges for people living with lupus.
📊 Alain Cornet also took the stage to share key findings from our Swiss Knife Survey, reflecting patients' priorities, unmet needs, and experiences across Europe.
🙌 Thank you to ERN ReCONNET for fostering collaboration to improve care and outcomes for people with rare connective tissue diseases!
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