ERN ReCONNET questionnaire

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LUPUS EUROPE is very committed to the success of the European Reference Networks (ERN), in particular ReCONNET where we have a very active role. One of our key contributions is to raise the patient voice. Professor Hachulla is seeking our input on unmet needs in the area of Therapeutic Education. We would like the questionnaire linked below to reach as many patients as possible.

The link below goes to the generic survey in English. The LUPUS EUROPE secretariat (secretariat@lupus-europe.org) also has links to the survey in Portuguese, Dutch, Romanian, Italian, German, Slovenian and should soon receive French.

Therapeutic Patient Education needs: Questionnaire for patients

We are asking you to please relay the link through your social media channels and encourage your members to participate.

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Alain Cornet

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    LUPUS EUROPE
    1 day ago
    LUPUS EUROPE

    🔴 People with #lupus are twice as likely to develop cardiovascular disease as healthy people.

    👀 Learn more about cardiovascular risk management in rheumatic and musculoskeletal diseases (RMDs) with the EULAR recommendations ➡️ ➡️ buff.ly/46nDCWT

    🔴 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗶𝘀 𝗸𝗲𝘆 in RMDs Like #lupus.

    1️⃣ Always talk to your physician about preventive measures.
    2️⃣ Work to minimise risk factors ⤵️

    - Don't smoke🚭
    - Practise exercise🏃‍♂️
    - Have a healthy diet🍏

    #WorldHeartDay     ... See MoreSee Less

    🔴 People with #lupus are twice as likely to develop cardiovascular disease as healthy people. 👀 Learn more about cardiovascular risk management in rheumatic and musculoskeletal diseases (RMDs) with the EULAR recommendations ➡️ ➡️ https://buff.ly/46nDCWT 🔴 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗶𝘀 𝗸𝗲𝘆 in RMDs Like #lupus. 1️⃣ Always talk to your physician about preventive measures. 2️⃣ Work to minimise risk factors ⤵️ - Dont smoke🚭 - Practise exercise🏃‍♂️ - Have a healthy diet🍏 #WorldHeartDayImage attachment
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    7 CommentsComment on Facebook

    This 7 years since Dr. abacha transcendence, his presence is missed now more than ever. Dr.abach was known for his profound wisdom and inspiring messages. Below are some of his insightful statements that continue to be true today. These quotes reflect Dr abacha emphasis on the importance of natural healing, alkaline living, and the significance of a plant-based diet for overall health and wellness. His timeless messages continue to inspire and resonate with individuals seeking a holistic approach to health. The message is loud and clear, and we will continue to share the message of love, healing, and growth. We celebrate the life, work, and teachings of Dr.abacha today and always. We hope his words resonate in your hearts and give you the willpower to continue on your Alkaline Healing Journey. On Health and Healing🌿🌿🌿 Drabacha0442

    Accolades to my best doctor, Dr abacha Home of Cure , I have so much respect for how much positivity you put out while curing my herpes infection, I want to use the moment to appreciate you, God will continue to bless you ………….. Drabacha0442

    For every disease in the world... restore 100% health. That's the only way I could do it. Through what? An intra-cellular cleansing... whether AIDS or blindness... cancer, sarcoma... lupus, sickle cell anaemia, diabetes, sexually transmitted diseases... there is only one diseases. There never have been two disease in the world. There is only one disease: the compromising of the mucous membrane. And the mucous membrane of the Afrikan has been compromised 400 years now.🌿🌿🌿 Drabacha0442

    I was cured of herpes simplex virus by a great herbal doctor called Dr Ehicokya home cure with the use of different combination of Africa herbs contact him via drehicoky@gmail.com or whatsapp +2349035812786 Facebook page https:https://www.facebook.com/Dr-Ehicokya-home-spell-101978635749222/

    big congratulation to Me ♥️♥️♥️I just get rid of my herpes the herbal treatment really helpful am now free from herpes www.facebook.com/Dr-Ehicokya-home-spell-101978635749222/

    Finally I have been cured of my Herpes disease after suffering from the virus for over 6years with several out-breaks, thank you Dr abacha for curing me from Herpes for this I'm going to continue sharing so other people can be cured too. he also has cure, HIV, DIABETES, LUPUS, PEPTIC ULCER CANCER, HPV, ZODIAC INFERTILITY, HSV, FIBIORD, WARTS, KIDNEYS 👎👎👎 Drabacha0442

    There are illness drugs and injection can't cure, l have seen the great important of natural remedies and the wonderful work they have done in people lives, I have read many testimonies online on how they were cured from various illness and virus, so I decided to contact a herbal specialist, I found herbalist dr abacha a great healer, I ordered medicine for diabete2, Hernia and HBP, I used them as he prescribed and it work perfectly for me, Today I am healed and living a healthy life now, Thanks dr abacha you are the best. Every one needs to use this natural remedies for healing🌿🌿🌿🌿 Drabacha0442

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    LUPUS EUROPE
    2 days ago
    LUPUS EUROPE

    🌺Thank you for your active participation & enthusiasm, which has made our webinar truly exceptional.

    We hope that Dr. Bosch has provided valuable knowledge & shed some light on the incredible possibilities technology can bring to healthcare.

    Stay tuned! More webinars to come soon!     ... See MoreSee Less

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    LUPUS EUROPE was live.
    2 days ago
    LUPUS EUROPE

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    PlayDigital Health Webinar
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    If you have any questions or any points you would like to raise, please feel free to do so here! 😃

    LUPUS EUROPE
    3 days ago
    LUPUS EUROPE

    Only one day left for the great day!

    🌟 Don't miss our webinar on digital health & patient care! 🌟

    ⏲️ Time is running out to secure your spot at our transformative webinar.

    💻 In this rapidly evolving healthcare landscape, digital health is the way forward, and we want you to be at the forefront of this revolution.

    Here's a glimpse of what awaits you:

    ✅ Engage in enriching discussions led by the esteemed Dr. Philipp Bosch.
    ✅ Explore the boundless potential of technology in advancing healthcare.

    🗓️ Date: September 28th (tomorrow!).
    🕗 Time: 20:00 CET.

    This is your opportunity to be part of a digital health revolution that's shaping the future of patient care.

    Join us and empower yourself with the knowledge that can transform lives! 📱🏥

    The webinar will also be streamed live on Facebook. 🎥

    Secure your spot now by registering:
    📧 Email: secretariat@lupus-europe.org

    If you have registered for Zoom already, please ensure you attend via Zoom 🤗.

    See you at the webinar!     ... See MoreSee Less

    Play2023.09.28_Lupus Europe Digital Health webinar.mp4
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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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