Patient Panel - "Senior with Lupus"

Zoe Karakikla-Mitsakou
Posted on December 1, 2022December 7, 2022
CategoriesProject

How does it feel when you have had lupus for more than 20 years ?

Lupus Europe is organising its 4th Patient Panel which will focus on the theme of « Senior with lupus ». If you are 60 Years + and have been diagnosed before 2000, send us an email and be selected to join another 10 persons from different countries in Europe that live in a similar situation. We very much would like to hear your opinion! What questions or concerns are biggest for you now? How is your lupus different now than it was at the start? What helps you kick lupus every day?

The Patient Panel is made for people with lupus by people with lupus. No outsiders, just among us. It will be held in Barcelona from Friday, February 3rd in the evening until Sunday, February 5th around lunch time. All costs (travel and stay) will be paid by LUPUS EUROPE. The language will be English, but don’t worry, most participants are not native speakers!

Please apply as soon as possible by email to secretariat@lupus-europe.org

Click on the language names below to view, download and share this announcement in YOUR national language:

Bulgarian , Croatian, Danish, Dutch, Estonian, Finnish, French, German, Greek, Hebrew, Hungarian, Icelandic, Italian, Lithuanian, Norwegian, Polish, Portuguese, Slovak, Slovenian, Spanish, Swedish

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Thank you Martijn, for your question! We will ensure your question is raised 🙂

Thank you for following this joint Lupus Europe / ERN ReCONNET webinar! If you have any questions for the speakers, please post them here and we will ensure they are raised! 😃

Hi from Corfu thank you for this it was really helpful!!!

I am curious about diet and microbiome as well. I think the topic is very much understudied and not good understood - but has great influence.

There are huge differences!

Are there possibility’s with food to have remission

There were only young people for the treatment with Car-T cells In am nog young any more. Is ther hope for me?

Only on my phone de zoom started. I do not know why

Metty Staal volgt

What is there to expect the coming years. I mean mean in treatments?

Thank you very much professor Arnoud

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Not succeeding to send an email for registration. I would like to participate. Thanks

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Patient Panel – “Senior with Lupus”

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Zoe Karakikla-Mitsakou

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