How does it feel when you have had lupus for more than 20 years ?

 

Lupus Europe is organising its 4th Patient Panel which will focus on the theme of « Senior with lupus ». If you are 60 Years + and have been diagnosed before 2000, send us an email and be selected to join another 10 persons from different countries in Europe that live in a similar situation. We very much would like to hear your opinion! What questions or concerns are biggest for you now? How is your lupus different now than it was at the start? What helps you kick lupus every day?

 

The Patient Panel is made for people with lupus by people with lupus. No outsiders, just among us. It will be held in Barcelona from Friday, February 3rd in the evening until Sunday, February 5th around lunch time. All costs (travel and stay) will be paid by LUPUS EUROPE. The language will be English, but don’t worry, most participants are not native speakers!

 

Please apply as soon as possible by email to secretariat@lupus-europe.org

 

Click on the language names below to view, download and share this announcement in YOUR national language:

Bulgarian , Croatian, Danish, Dutch, Estonian, Finnish, French, German, Greek, Hebrew, Hungarian, Icelandic, Italian, Lithuanian, Norwegian, Polish, Portuguese, Slovak, Slovenian, Spanish, Swedish

 

 

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8 hours ago

🦋 It's #LupusAwarenessMonth❗

🦵 #KickLupus: make it visible

Take part in the Living With Lupus in 2024 survey.

🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

𝗞𝗲𝘆 𝗽𝗼𝗶𝗻𝘁𝘀 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘂𝗿𝘃𝗲𝘆:

1️⃣ Confidential and brief: Your identity stays anonymous and takes only 15 minutes.
2️⃣ Personalized and relevant: The survey adapts to your unique situation and covers aspects pertinent to your life with lupus.

👨‍💻 We're gathering data to:

🔹 Understand the current landscape of lupus treatment and management in Europe.
🔹 Identify key areas for support and improvement.
🔹 Ensure that the voices of those living with lupus are heard.
🔹 Recognise the diverse needs and challenges faced by the lupus community.

🦋 This survey will dive into your unique experience on 🩺 diagnosis & symptoms, 💊 treatment & 👨‍👩‍👧‍👦 how lupus affects your daily activities and the strategies you employ to manage it.

🔄 Please 𝘀𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝘀𝘂𝗿𝘃𝗲𝘆 with your community and on your social media.

Languages available:

🇨🇿 Czech s.surveylegend.com/-NtkhoZPH8WNeA5e2ZCC
🇩🇰 Danish s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
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🇪🇸 Spanish s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
🇬🇧 English s.surveylegend.com/-NqgyR5b7jLpCyBwEssv
🇪🇪 Estonian s.surveylegend.com/-Nt145Q5s02kLYdspFDs
🇫🇷 French s.surveylegend.com/-NrWK4Io8HFYwgd_JF9W
🇮🇹 Italian s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🇳🇴 Norwegian s.surveylegend.com/-NrQBaJNQ4HcwZblYzh5
🇱🇹 Lithuanian s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
🇳🇱 Dutch s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
🇵🇱 Polish s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🇷🇴 Romanian s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
🇷🇺 Russian s.surveylegend.com/-NtkhreGgEglDg9AeMfH
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🇫🇮 Finnish s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
🇺🇦 Ukrainian s.surveylegend.com/-Nt1t0lpqlsn9jRPHe-3
🇧🇬 Bulgarian s.surveylegend.com/-NuOC4mQDrt8udTrqS85
🇵🇹 Portuguese s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
🇭🇺 Hungarian s.surveylegend.com/-Nucu0zQ8je0kzInRWb8

Association Lupus erythémateux Belgique Luupuse Selts / Lupus Estonia Организация на пациентите с ревматологични заболявания Σύνδεσμος Ρευματοπαθών Κύπρου ΣύΡεΚ Lupus Suomi ry Association Francaise du lupus et autres maladies auto-immunes AFL + LUPUS FRANCE Lupus Erythematodes SHG e.V. Ελληνική Εταιρεία Αντιρευματικού Αγώνα ΕΛ Ε ΑΝ Α Lupus Poland Lupus Klub Motýlik Reumatikerförbundet Lupus UK Felupus Associação de Doentes com Lúpus
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♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍️ Responda à pesquisa e compartilhe com sua comunidade.

🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results

s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi

#LupusAwarenessMonth
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2 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Compila il sondaggio.

🔊Condividi con il tuo network.

s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0

🙏 Help us and Gruppo LES Italiano ODV achieve more answers to ensure that the Italian population is represented in the results
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1 CommentComment on Facebook

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3 days ago

📅 𝗠𝗮𝗿𝗸 𝘆𝗼𝘂𝗿 𝗰𝗮𝗹𝗲𝗻𝗱𝗮𝗿❗

🤩 Lupus Europe is excited to invite you to a unique event on World Lupus Day:

🧑‍💻 “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist”

🚀 𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗼𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗮𝗻𝗱 𝗹𝗲𝗱 𝗲𝘅𝗰𝗹𝘂𝘀𝗶𝘃𝗲𝗹𝘆 𝗯𝘆 𝗼𝘂𝗿 𝗬𝗼𝘂𝘁𝗵 𝗚𝗿𝗼𝘂𝗽.

📆 10th of May.
🕖 19:00 CET.

🙌 A space dedicated to discussing issues that impact youth, by the youth and for the youth.

This event is a tremendous opportunity to connect, learn, and share experiences related to lupus from a youthful perspective.

👩‍⚕️ Joining us will be the talented young rheumatologist from Italy, Francesca Crisafulli, who will answer your questions and engage in meaningful conversation.

Don't miss the chance to interact directly with a specialist in rheumatology!

🦋 At Lupus Europe, we deeply understand the importance of paying attention to the needs and voices of the young. This webinar reflects our commitment to supporting and including youth in the dialogue on living with lupus.

‼️ Register now by sending an e-mail to secretariat@lupus-europe.org ‼️
... See MoreSee Less

📅 𝗠𝗮𝗿𝗸 𝘆𝗼𝘂𝗿 𝗰𝗮𝗹𝗲𝗻𝗱𝗮𝗿❗

🤩 Lupus Europe is excited to invite you to a unique event on World Lupus Day:

🧑‍💻 “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist”

 🚀 𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗼𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗮𝗻𝗱 𝗹𝗲𝗱 𝗲𝘅𝗰𝗹𝘂𝘀𝗶𝘃𝗲𝗹𝘆 𝗯𝘆 𝗼𝘂𝗿 𝗬𝗼𝘂𝘁𝗵 𝗚𝗿𝗼𝘂𝗽.

📆 10th of May.
🕖 19:00 CET.

🙌  A space dedicated to discussing issues that impact youth, by the youth and for the youth.

This event is a tremendous opportunity to connect, learn, and share experiences related to lupus from a youthful perspective.

👩‍⚕️ Joining us will be the talented young rheumatologist from Italy, Francesca Crisafulli, who will answer your questions and engage in meaningful conversation.

Dont miss the chance to interact directly with a specialist in rheumatology!

🦋 At Lupus Europe, we deeply understand the importance of paying attention to the needs and voices of the young. This webinar reflects our commitment to supporting and including youth in the dialogue on living with lupus.

‼️ Register now by sending an e-mail to secretariat@lupus-europe.org ‼️

1 CommentComment on Facebook

I ordered a remedy🌿☘️ for weight loss and herpes and it works after 18days of taking his medicine He also have the following treatment for ... DIABETES, HPV, CANCER, CHRONIC FATIGUE, LEAKY GUT HEALING, HSV, HIV, THYROID, PSORIASIS, COPD, PCOS, LUPUS, BP, HS and many more.👇👇👇🏿👇🏿👇🏿 www.facebook.com/-Dr-Abumere-herbal-remedies-592671634437907

LUPUS EUROPE Uniting people with Lupus throughout Europe
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