Alain CornetAn invitation from EULAR to join their Brussels conference. LUPUS EUROPE’s chair, Kirsten Lerstrom will be in Brussels for the event. This 6th edition of the EULAR Brussels Conference is coming up next Tuesday 13 October 2015 under the theme: “Towards more integrated health care in Europe: Strengthening patients’ access to cross-border care and enhancing […]
Alain CornetAs you may know, LUPUS EUROPE is involved in an EPF work group on Access to Healthcare. EPF needs patient input on the subject of Access to Healthcare. Attention, the deadline is 6th October. For more information and to make your voice heard please click here.
Alain CornetWe are back from a great and productive LUPUS EUROPE convention. Fully inspired from meeting so many committed people, not only from Europe, but from around the world during our Meet the Lupus World patient leader summit. One of the projects being kicked off following the convention is a call for Patient Stories. If you […]
Alain CornetThere will be more news from Vienna but as a teaser, here are a few photos of the great work going on here. This is the first time we have got together, with international groups and patient leaders from the four corners of the world, in one patient summit. There is so much to inspire […]
Alain CornetTomorrow the ICL congress starts in Vienna. Many of you will already be there to get the most benefit from the congress before attending our very own convention. We wish you all a great congress and convention! See you there!
Alain CornetGSK is looking for patients with cutaneous lupus to share their experiences. For more details please click here.
Alain CornetIt’s time to get writing again! The EULAR PARE Edgar Stene prize is open for entries. To make your voice heard and have a chance of winning this prestigious prize click here for more details.
Alain CornetYour input as a patient group is needed in a study seeking patient group perspectives on Bio-similars. To participate please click here.
Alain CornetThe Vienna Convention is just over two months away now. Has your organisation submitted its trustee nominations yet? If you have someone you think could be an asset, please don’t hesitate to get in touch with the LUPUS EUROPE secretariat (secretariat@lupus-europe.org) for more information on how to apply. We are also still looking for volunteers to […]
Alain CornetJune is quite a busy month for LUPUS EUROPE and its representatives. Here’s some of what’s going on. Nuria Zúñiga is representing LUPUS EUROPE at Doctors 2.0 & You from 4th-5th June in Paris. She will also be representing us at the Eyeforpharma patient summit in London from 25th-26th June and at Aware for All in London. […]
The 4th SLEuro Advanced Workshop on SLE was succesfully completed in Porto!
Keep up-to-date to register for the next Workshop! ⏰
Check out the past editions at the bottom of the following webpage: https://sleuro.org/advanced-workshop-on-sle/
✅ Only 10% of #lupus patients are men.
‼️ However, their symptoms & disease burden may differ from those commonly reported by women.
🇪🇺 If you're a man with lupus in Europe, fill out this survey & help us better understand the real impact of SLE on men
https://buff.ly/3UMZkAQ
🟪May is #LupusAwarenessMonth 🟪
Raise #awareness about #lupus may increase early diagnosis ⏰ and consequently reduce its complications 🚨
Our review focuses on #SLE disease course providing actionable strategies for early diagnosis
OPEN ACCESS link ⬇️
https://www.sciencedirect.com/science/article/pii/S1521694224000093
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Weź udział w ankiecie.
🔊Udostępnij w swojej społeczności.
🙏 Help us achieve more answers to ensure that the Polish population is represented in the results
https://s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🌟Have you heard about RheumaFacts, the new initiative from EULAR Research?
👉Learn more about the initiative here!
✅ During STEP 3, a total of 234 potential #treatment strategies have been submitted by the experts of @ern_reconnet #SLICC & @SLEuroSociety for rare #Lupus manifestations. I will do a lil bit of triage and duplicate removal and we will pick the winners🏅during phase 4 👌
♦️ Few days left to fill the survey!
✍🏻 Realiza la encuesta.
🔊 Comparte con tu comunidad.
🙏 Help us and @felupus ensure the Spanish population is represented
https://s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
📢 Explore captivating sessions promoting high-quality research, enhancing clinical practice, and support the professional development of healthcare practitioners.
📅 See you in Vienna from 12 - 15 June!
👉https://pulse.ly/omc4parykm
#EULAR #Rheumatology #eularHPR #EULAR2024
🌍 This #WorldLupusDay, take part in a unique event specially tailored for young people living with lupus:
😃 "Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist".
📆 May 10th.
🕖 19:00 CET (i. e. Paris time).
‼️ This is not just any webinar for the youth. It is a webinar made by youth for youth.
👀 So expect anything! This is why you cannot miss this date, whether you are young or not: understanding the worries and needs of young people with lupus is key to addressing their needs.
📧 Join us! Send an e-mail to secretariat@lupus-europe.org and secure your spot now.
www.lupus-europe.org/lupus-europe-youth-webinar/
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✅ While it's true that 9 out of 10 individuals diagnosed with #lupus are women, it's crucial to also reflect on the significant impact this disease has on men. Lupus does not discriminate, and understanding its effects on all genders is vital.
🌍 𝗠𝗲𝗻 𝗺𝗮𝘆 𝗳𝗮𝗰𝗲 𝘂𝗻𝗶𝗾𝘂𝗲 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲𝘀 𝗮𝗻𝗱 𝘀𝘆𝗺𝗽𝘁𝗼𝗺𝘀 that can differ from those typically reported by women and that is why we have included a specific section for men with lupus that has been created by men with lupus.
🇪🇺 If you are a 𝗺𝗮𝗻 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗹𝘂𝗽𝘂𝘀 𝗶𝗻 𝗘𝘂𝗿𝗼𝗽𝗲, your participation in this survey is essential to help us better understand how lupus affects men.
Your insights can lead to better support and more effective interventions for all men affected by lupus.
🔊 Remember! This anonymous survey is available in 21 languages and will take no more than 10 minutes to complete.
buff.ly/3UMZkAQ
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♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Weź udział w ankiecie.
🔊Udostępnij w swojej społeczności.
🙏 Help us and Lupus Poland achieve more answers to ensure that the Polish population is represented in the results
s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
0 CommentsComment on Facebook
♦️ Few days left to fill the survey!
✍🏻 Realiza la encuesta.
🔊 Comparte con tu comunidad.
🙏 Help us and Felupus ensure the Spanish population is represented
s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
0 CommentsComment on Facebook
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