Trustee nominations and volunteers

The Vienna Convention is just over two months away now. Has your organisation submitted its trustee nominations yet? If you have someone you think could be an asset, please don’t hesitate to get in touch with the LUPUS EUROPE secretariat (secretariat@lupus-europe.org) for more information on how to apply.

We are also still looking for volunteers to help out with various projects or attend events on our behalf. We would like to thank those who have already stepped forward and offered to help but there is so much going on and so many important initiatives in patient advocacy that more volunteers are always welcome. If you’d like to be part of that valuable work, please get in touch.

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The LUPUS EUROPE team at EULAR PARE in Dublin
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Alain Cornet

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    LUPUS EUROPE
    2 days ago
    LUPUS EUROPE

    🏆 We’re thrilled to announce that #LupusGPT has won the PFMD #MadeWithPatients Award 2025 as Best Emerging Innovation!

    🌍A huge moment for Lupus Europe & the European #lupus community — proving what’s possible through true patient innovation and collaboration.

    😃Celebrating at #EULAR2025!

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    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    🏆 This Wednesday, we will find out if LupusGPT will win the PFMD Made with Patients Award 2025!

    🎉 Join us in this exciting moment for the lupus community by watching the ceremony live online (registration is available at the link provided in our blog post).

    👉 If you still don’t know what this huge achievement means, read our latest blog post, where you will also find the link to register for the live ceremony at the Patient Engagement Open Forum (PEOF).

    💜 Created by patients, for patients, #LupusGPT and #EASYLupus are already breaking barriers in access to reliable, multilingual lupus information. Check the tool out and explore how easy it is to access valid and clear lupus information in your language.

    Remember! All the information and links are available in our latest blog post!

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    LUPUS EUROPE
    2 weeks ago
    LUPUS EUROPE

    🟣 LUPUS-ALERT is moving forward!

    Thanks to the amazing collaboration between healthcare professionals and patients, we’ve now identified many potential vulnerabilities that can impact access to appropriate lupus care.

    We want to extend a special thank you to all the lupus patients who responded to our call and shared the barriers patients may face: financial, social, linguistic, geographic…

    🌟 Your contribution is helping to develop a tool that will systematically identify the vulnerabilities patients face. This is a wonderful step towards lupus care that is more holistic, equitable, personalised, and responsive to patients' real-life needs.

    🔝 A huge thank you to Prof. Laurent Arnaud, Dr. Daniel Guimarães de Oliveira - Imunologia Clínica, Jeanette Andersen, and Zoe Karakikla-Mitsakou for their invaluable contributions and commitment to LUPUS-ALERT!

    🌍 And a special thank you to the many physicians and patients who have come together to work on this project for the benefit of lupus patients.

    🚀 #LupusAlert now moves into Step 2!!!

    🔔 Stay tuned!     ... See MoreSee Less

    🟣 LUPUS-ALERT is moving forward! Thanks to the amazing collaboration between healthcare professionals and patients, we’ve now identified many potential vulnerabilities that can impact access to appropriate lupus care. We want to extend a special thank you to all the lupus patients who responded to our call and shared the barriers patients may face: financial, social, linguistic, geographic… 🌟 Your contribution is helping to develop a tool that will systematically identify the vulnerabilities patients face. This is a wonderful step towards lupus care that is more holistic, equitable, personalised, and responsive to patients real-life needs. 🔝 A huge thank you to Prof. Laurent Arnaud, Dr. Daniel Guimarães de Oliveira - Imunologia Clínica, Jeanette Andersen, and Zoe Karakikla-Mitsakou for their invaluable contributions and commitment to LUPUS-ALERT! 🌍 And a special thank you to the many physicians and patients who have come together to work on this project for the benefit of lupus patients. 🚀 #LupusAlert now moves into Step 2!!! 🔔 Stay tuned!
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    LUPUS EUROPE
    2 weeks ago
    LUPUS EUROPE

    #EULAR2025 is around the corner!

    🦋 Lupus Europe plays a significant role in this year's Congress, with a diverse range of exciting topics and great participation.

    ✅ We will be sharing insights from most of the lupus sessions on X, so don't forget to follow us!

    😃 Stay tuned!     ... See MoreSee Less

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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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