Meet the Lupus World at the ICL in Vienna

Hofburg at night
Hofburg by night – ICL and Lupus Summit venue 2015

Today is World Lupus Day, a great time to be thinking about bringing the Lupus World together. 

‘Meet the Lupus World’ is our theme for the Lupus Summit in Vienna on 5th September 2015. The summit will take place as an integral part of our annual convention. Make sure your group is represented by getting in touch with the LUPUS EUROPE secretariat for further details secretariat@lupus-europe.org

LUPUS EUROPE’s convention will take place from 4th-6th September, following on directly from the ICL congress. We hope that this organisation will mean that many of our members also have the opportunity to visit the ICL. 

Happy World Lupus Day! 

11th International Congress on Systemic Lupus Erythematosus

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Alain Cornet

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    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    🚨 Call for patients🚨

    🔊 INSPIRE SURVEY from the University of Cambridge.

    This survey aims to improve the understanding of neurological symptoms in SLE and other rheumatic conditions.

    Lupus is a very heterogeneous disease, which means that it affects people of different ethnic backgrounds and gender in different ways.

    That is why, to get accurate research results, as many different groups as possible must be represented in the sample.

    The INSPIRE survey was launched last year to get the patient experience on the assessment/monitoring of neurological symptoms, but they received very few responses from people from ethnic minorities.

    That is why the research team led by Dr Chris Wincup has launched a new survey.

    The new INSPIRE survey can be completed by lupus patients or their carers from around the world.

    🟣 Please share as much as possible 🟣 in order to get a sample that includes a good proportion of all ethnic groups.

    Thank you!

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    I did it a second time and no it went good till the end

    The survey was demolished.

    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    Discoid lupus erythematosus (DLE) is the most common form of chronic cutaneous lupus erythematosus. It is characterised by persistent scaly plaques on the scalp, face, and ears, which can progress to scarring, atrophy, depigmentation, and permanent hair loss in affected hair-bearing areas (Source: DermNet).

    This study, published by Prof Marca Mosca et al., describes 2 cases of severe and refractory DLE successfully treated with anifrolumab, a human monoclonal antibody.

    Although anifrolumab has been recently approved for the treatment of SLE, data from randomized clinical trials have shown a significant difference in cutaneous response rate in patients treated with anifrolumab from those in the placebo group.

    While the effectiveness of this treatment in real life and in different types of skin lesions has yet to be determined, it could represent a new valid opportunity for treating DLE.

    jamanetwork.com/journals/jamadermatology/article-abstract/2798967     ... See MoreSee Less

    Discoid lupus erythematosus (DLE) is the most common form of chronic cutaneous lupus erythematosus. It is characterised by persistent scaly plaques on the scalp, face, and ears, which can progress to scarring, atrophy, depigmentation, and permanent hair loss in affected hair-bearing areas (Source: DermNet). This study, published by Prof Marca Mosca et al., describes 2 cases of severe and refractory DLE successfully treated with anifrolumab, a human monoclonal antibody. Although anifrolumab has been recently approved for the treatment of SLE, data from randomized clinical trials have shown a significant difference in cutaneous response rate in patients treated with anifrolumab from those in the placebo group. While the effectiveness of this treatment in real life and in different types of skin lesions has yet to be determined, it could represent a new valid opportunity for treating DLE. https://jamanetwork.com/journals/jamadermatology/article-abstract/2798967Image attachmentImage attachment
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    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    We know some of you missed the great seminar recently delivered by Prof. Laurent Arnaud.

    Well, no worries!

    You have the chance to see it again, thanks to the European Federation of Internal Medicine (EFIM).

    "Challenges in 2023 for Systemic Lupus Erythematosus".

    Next 29th of March at 18:00 CET (i.e. Paris time).

    Register for free here!

    us02web.zoom.us/webinar/register/WN_O5yMwjfgTS29pMKvOZfgZw     ... See MoreSee Less

    We know some of you missed the great seminar recently delivered by Prof. Laurent Arnaud. Well, no worries! You have the chance to see it again, thanks to the European Federation of Internal Medicine (EFIM). Challenges in 2023 for Systemic Lupus Erythematosus. Next 29th of March at 18:00 CET (i.e. Paris time). Register for free here! https://us02web.zoom.us/webinar/register/WN_O5yMwjfgTS29pMKvOZfgZwImage attachment
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    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    Did you miss this ERN RECONNET webinar with Lou Kawka and Prof Laurent Arnaud about #fatigue in #SLE?

    Now you have the chance to watch it!!! 😃🙌

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    Did you miss this ERN RECONNET webinar with Lou Kawka and Prof Laurent Arnaud about #fatigue in #SLE? Now you have the chance to watch it!!! 😃🙌 https://www.youtube.com/watch?v=7jc7SiP5BsA
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    • Likes: 12
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    Thkx

    LUPUS EUROPE Uniting people with Lupus throughout Europe
    Send