Uncategorized Archives - Page 3 of 14

Convention call

The summer is a quieter time in terms of events to attend for LUPUS EUROPE but it is not quiet in terms of ongoing projects (including starting to build the next strategic plan for 2018-2023) and getting ready for the convention later in the year. As you know, this year’s convention will be held from […]

Busy busy!

The blog has been quiet recently, and with good reason! We have all been so busy attending events, participating in work groups and meeting face-to-face, that we haven’t been able to keep up on the blog – despite our super-human lupus powers! Hopefully you’ll know everything that has been going on from reading the […]

Open letter – Make health a priority – Please support!

As discussed during its Annual General Meeting last month, the European Patients’ Forum is deeply concerned with the very uncertain future of European health collaboration and of the Health Programme post-2020. The five scenarios proposed by the European Commission Mr. Junker in April show that health is not a priority for the European Union. To […]

Lots of activity for World Lupus Day

And lots of activity ties in well with “Kick Lupus” of course 😉 For more information on Kick Lupus please read here. There have been so many initiatives for World Lupus Day it’s difficult to name them all but here are a few that deserve to be highlighted. The World Lupus Federation, of which LUPUS […]

It’s World Lupus Day!

May 10th is World Lupus Day What is lupus? Lupus is a chronic autoimmune disease that causes the immune system to attack the body’s connective tissue and organs. Parts of the body affected can include the joints, kidneys, heart, lungs, brain, blood and skin. Up to 500,000 people in Europe have lupus. 90% of people […]

Building up to World Lupus Day

10th of May is #WorldLupusDay and for that occasion #LUPUSEUROPE in cooperation with #LUPUSUK has created a campaign for every day in the month of May. Please feel free to share with everybody you know! In the build up to World Lupus Day, look out for our info-messages on Facebook and Twitter. Here are the first two.

European Patients’ Forum AGM

From April 10th-11th EPF held its annual AGM. Katharine Wheeler attended on behalf of LUPUS EUROPE. Naturally, in the year of EPF’s campaign on Access to Healthcare, there was a strong focus on the #Access2030 campaign and putting healthcare firmly back on every politician’s agenda. A noteworthy result of EPF’s survey on Access to healthcare is […]

#Access2030 petition

As part of the EPF #Access2030 campaign a petition has been created to ensure that decision-makers are aware of how important people feel healthcare is and that we want it to remain very firmly on the agenda. To read more about the petition and to sign, please click here.

CNN highlights Lupus

CNN has highlighted lupus and celebrities who have lupus. You can read the article here.

Andreas’ final story

Since his amazing feat Andreas has been busy recovering and getting back to normal life, but he hasn’t forgotten about his lupus supporters and has been working on his final article, telling us all about his fantastic achievement. Lupus New York Marathon Finisher – 06.11.2016 For Lupus Warriors, Lupus Heros, Lupus Scientists, Lupus Family, Lupus Friends, […]