Convention call

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The summer is a quieter time in terms of events to attend for LUPUS EUROPE but it is not quiet in terms of ongoing projects (including starting to build the next strategic plan for 2018-2023) and getting ready for the convention later in the year.

As you know, this year’s convention will be held from 15th-19th November in Milan, Italy. We’re looking forward to reconnecting with all our old friends and new representatives. If you haven’t already done so, it is time to sign up to attend the convention. The discount for registration ends 15th of July.

We are also looking for further trustee nominations. If you would be interested in getting more involved in LUPUS EUROPE, please don’t hesitate to get in touch with the secretariat or anyone on the board. You can read more about being a trustee in these blog posts: Katharine and Kirsi.

We’re really looking forward to seeing you in Milan for an exciting programme with lots of warmth, information and motivation.

 

 

 

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Alain Cornet

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    LUPUS EUROPE
    4 days ago

    🚨 New publication alert: EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement- 2025 update.

    ‼️ According to Lupus Europe's 2024 Swiss knife survey:

    1️⃣ Kidney involvement remains one of the most worrying and impactful lupus manifestations for many people in Europe.
    2️⃣ Kidney problems are among the manifestations causing the greatest long-term concern.
    3️⃣ Only a small minority of patients report long-term stability without flares.
    4️⃣ Patients want clearer goals, better communication, and care that looks beyond lab values alone.

    That is why the 2025 update of the EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement is such an important step forward.

    ✅ These updated recommendations reinforce several key messages that matter to patients:
    - Early and regular monitoring of kidney involvement.
    - Timely kidney biopsy when needed.
    - Clear treatment targets to preserve kidney function.
    - A strong focus on combination therapies when appropriate.
    - Long-term kidney protection, not only short-term control.

    🌟 We are especially proud that our Chair, Jeanette Andersen, was part of the international task force that developed these recommendations, ensuring that the patient perspective was present at the table.

    You can read the EULAR Recommendations here: ard.eular.org/article/S0003-4967(25)04412-7/fulltext

    And the Swiss Knife Survey here: www.sciencedirect.com/science/article/pii/S1568997225000989     ... See MoreSee Less

    🚨 New publication
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    LUPUS EUROPE
    1 week ago

    😃 Thank you to all who attended our latest Youth Group webinar!

    🌟 So many interesting questions were asked and addressed! Showing how important safe spaces arefor talking openly about lupus without judgment.

    Did you miss it? Watch it here! 👇

    Alcohol & Drugs - Lupus     ... See MoreSee Less

    😃 Thank you to al
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    LUPUS EUROPE was live.
    2 weeks ago

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    PlayAlcohol & Drugs - Lupus
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    LUPUS EUROPE
    2 weeks ago

    🚨 𝗟𝗮𝘀𝘁 𝗰𝗵𝗮𝗻𝗰𝗲❗

    🙏 Help Prof Laurent Arnaud and his team validate the Lupus Brain Fog Severity Scale.

    ✅ Make lupus brain fog measurable.

    ⏱️ 5 minutes of your time can make a huge impact!

    lupusresearch.limequery.org/337533?lang=en     ... See MoreSee Less

    🚨 𝗟𝗮𝘀�
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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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