Alain Cornet
And lots of activity ties in well with “Kick Lupus” of course 😉 For more information on Kick Lupus please read here.
There have been so many initiatives for World Lupus Day it’s difficult to name them all but here are a few that deserve to be highlighted.
The World Lupus Federation, of which LUPUS EUROPE is a founding member, has released an e-report and a press release entitled “Inactivity, Isolation and Impact on Daily Life are Top Concerns for People Living with Lupus.”
Our LUPUS EUROPE Vice-chair, Anne Charlet, has also been interviewed by Neovacs in France. Neovacs has released a press release for World Lupus Day. Together they have also created a series of four videos on various topics. One of the videos features Anne’s wonderful daughter who was kind enough to share her experience as a young lupus patient. The video links are below.
Testimonial – A young person living with lupus
The role of patient organisations
The importance of clinical trials
And of course, watch out for our awareness campaign, running all this month on Facebook and twitter. Feel free to share (many of our members have also translated the campaign into other languages).
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